• 75973 Citations
1984 …2024

Research output per year

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Personal profile

Research Interests

As Chair of an interdisciplinary Department of Medical Social Sciences, I play a leadership role in the development and orchestration of transdisciplinary scientific collaborations. Our department conducts basic and applied social science research to advance the understanding of the mechanisms and measurement of health and disease. I oversee all academic and research programs, financial operations, faculty affairs and program development of the department. In both my capacity as PI on multiple trans-NIH initiatives and as Chair, I play leadership roles in the development and orchestration of transdisciplinary scientific collaborations. As a measurement scientist with expertise in applied health status measurement, I have led the development of numerous item banks and instruments, intended for both normal and clinical populations including paper-and-pencil and computer administered instruments. I was the principal investigator of the trans-NIH NeuroQoL and the PROMIS Statistical Center. In the first cycle of PROMIS (2004-2009), I was PI of the Statistical Coordinating Center (SCC). Currently I am the PI of The National Person-Centered Assessment Resource (PCAR) grant and ECHO PRO CORE grant. A theme of my work has been ensuring that the voice of the patient is reflected in clinical care and clinical research, including areas of high-stakes decision-making such as regulatory review, payer negotiations, and individual clinical care. A major focus of many of these initiatives has been ensuring measurement sensitive to diverse populations including issues of health literacy and health disparities and developmentally-sensitive measurement across the lifespan.

Training Experience

1980Internship, Loyola University Counseling Center
1982Internship, Payne Whitney Psychiatric Clinic
1983Fellowship, Payne Whitney Psychiatric Clinic
1986Fellowship, Memorial Sloan-Kettering Cancer Center

Education/Academic qualification

PhD, Loyola University/Stritch School of Medicine

… → 1984

Research interests

  • Cancer Communications
  • Health Disparities
  • Outcome Measures
  • Patient-Reported Outcomes
  • Psychological Issues of Patients Dealing with Medical Illness
  • Psychometrics
  • Quality of Life

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Grants

  • Research Output

    A cohort study of quality of life in partners of young breast cancer survivors compared to partners of healthy controls

    Cohee, A., Storey, S., Winger, J. G., Cella, D., Stump, T., Monahan, P. O. & Champion, V. L., Dec 1 2020, In : Journal of Patient-Reported Outcomes. 4, 1, 19.

    Research output: Contribution to journalArticle

    Open Access
  • 1 Scopus citations

    A New Brief Clinical Assessment of Lower Urinary Tract Symptoms for Women and Men: LURN SI-10

    LURN Study Group, Jan 1 2020, In : The Journal of urology. 203, 1, p. 164-170 7 p.

    Research output: Contribution to journalArticle

  • 1 Scopus citations

    Applying the COM-B model to patient-reported barriers to medication adherence in pediatric acute lymphoblastic leukemia

    Heneghan, M. B., Hussain, T., Barrera, L., Cai, S. W., Haugen, M., Duff, A., Shoop, J., Morgan, E., Rossoff, J., Weinstein, J., Hijiya, N., Cella, D. & Badawy, S. M., Jan 1 2020, (Accepted/In press) In : Pediatric Blood and Cancer. e28216.

    Research output: Contribution to journalArticle

  • Assessing meaning & purpose in life: development and validation of an item bank and short forms for the NIH PROMIS®

    Salsman, J. M., Schalet, B. D., Park, C. L., George, L., Steger, M. F., Hahn, E. A., Snyder, M. A. & Cella, D., Jan 1 2020, (Accepted/In press) In : Quality of Life Research.

    Research output: Contribution to journalArticle