Grants per year
Personal profile
Research Interests
As Chair of an interdisciplinary Department of Medical Social Sciences, I play a leadership role in the development and orchestration of transdisciplinary scientific collaborations. Our department conducts basic and applied social science research to advance the understanding of the mechanisms and measurement of health and disease. I oversee all academic and research programs, financial operations, faculty affairs and program development of the department. In both my capacity as PI on multiple trans-NIH initiatives and as Chair, I play leadership roles in the development and orchestration of transdisciplinary scientific collaborations. As a measurement scientist with expertise in applied health status measurement, I have led the development of numerous item banks and instruments, intended for both normal and clinical populations including paper-and-pencil and computer administered instruments. I was the principal investigator of the trans-NIH NeuroQoL and the PROMIS Statistical Center. In the first cycle of PROMIS (2004-2009), I was PI of the Statistical Coordinating Center (SCC). Currently I am the PI of The National Person-Centered Assessment Resource (PCAR) grant and ECHO PRO CORE grant. A theme of my work has been ensuring that the voice of the patient is reflected in clinical care and clinical research, including areas of high-stakes decision-making such as regulatory review, payer negotiations, and individual clinical care. A major focus of many of these initiatives has been ensuring measurement sensitive to diverse populations including issues of health literacy and health disparities and developmentally-sensitive measurement across the lifespan.
Training Experience
1980 | Internship, Loyola University Counseling Center |
1982 | Internship, Payne Whitney Psychiatric Clinic |
1983 | Fellowship, Payne Whitney Psychiatric Clinic |
1986 | Fellowship, Memorial Sloan-Kettering Cancer Center |
Expertise related to UN Sustainable Development Goals
In 2015, UN member states agreed to 17 global Sustainable Development Goals (SDGs) to end poverty, protect the planet and ensure prosperity for all. This person’s work contributes towards the following SDG(s):
Education/Academic qualification
Clinical Psychology, PhD, Loyola University/Stritch School of Medicine
… → 1984
Research interests keywords
- Cancer Communications
- Health Disparities
- Outcome Measures
- Patient-Reported Outcomes
- Psychological Issues of Patients Dealing with Medical Illness
- Psychometrics
- Quality of Life
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- 1 Similar Profiles
Collaborations and top research areas from the last five years
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Sarcopenia Physical Function Clinical Outcome Assessments for Regulatory Use
Cella, D. (PD/PI), Greene, G. J. (Co-Investigator), Lai, J.-S. (Co-Investigator) & Shaunfield, S. (Co-Investigator)
12/18/24 → 11/30/25
Project: Research project
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COAST-CONQUEST: Cognitive Debriefing of CONQUEST Clinical Trial Endpoint Measures
Cella, D. (PD/PI), Greene, G. J. (Co-Investigator) & Kaiser, K. (Co-Investigator)
Scleroderma Research Foundation
9/1/24 → 10/1/25
Project: Research project
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Clinical Interpretation of PROMs in Care of Knee Osteoarthritis and TJR
Franklin, P. D. (PD/PI), Bass, M. (Co-Investigator), Berry, A. B. (Co-Investigator), Cella, D. (Co-Investigator), Kaat, A. J. (Co-Investigator), Scott, K. (Co-Investigator) & Sharma, L. (Co-Investigator)
National Institute of Arthritis and Musculoskeletal and Skin Diseases
7/16/24 → 5/31/28
Project: Research project
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Anxiety and Depression Patient-Reported Outcome Performance Measure
Cella, D. (PD/PI), Cella, D. (PD/PI), Bass, M. (Co-Investigator), Bass, M. (Co-Investigator), Franklin, P. D. (Co-Investigator), Franklin, P. D. (Co-Investigator), Rothrock, N. (Co-Investigator) & Rothrock, N. (Co-Investigator)
RAND Corporation, National Quality Forum
4/15/24 → 6/30/25
Project: Research project
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Consultant Services and Supplies. F&A waiver
Cella, D. (PD/PI) & Cella, D. (PD/PI)
Office of the Director, National Institutes of Health
9/1/23 → 5/31/30
Project: Research project
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Evaluating Meaningful Changes in Patient-Reported Outcome Measurement Information System–Fatigue Scores from Three Phase 3 Clinical Trials of Sarilumab for Patients With Rheumatoid Arthritis
Bingham, C. O., Molina, E., Praestgaard, A., Fiore, S. & Cella, D., Jan 2025, In: ACR open rheumatology. 7, 1, e11763.Research output: Contribution to journal › Article › peer-review
Open Access -
Risk of significant functional impairment across cancer diagnosis and care continuum
Flores, A. M., Shah, M., Bedjeti, K., Franklin, P. D., Peipert, J. D., Garcia, S. F., Lancki, N., Webster, K. A., O’Connor, M. & Cella, D., Jan 1 2025, In: cancer. 131, 1, e35571.Research output: Contribution to journal › Article › peer-review
Open Access -
[Special issue PRO] Considering endpoints for comparative tolerability of cancer treatments using patient report given the estimand framework
Peipert, J. D., Breslin, M., Basch, E., Calvert, M., Cella, D., Smith, M. L., Thanarajasingam, G. & Roydhouse, J., 2024, (Accepted/In press) In: Journal of Biopharmaceutical Statistics.Research output: Contribution to journal › Article › peer-review
2 Scopus citations -
A comparison of measurement properties between EORTC QLU-C10D and FACT-8D in patients with hematological malignances
Cao, Y., Li, H., Cheng, L. J., King, M. T., Kemmler, G., Cella, D., Yu, H., Huang, W. & Luo, N., Dec 2024, In: Health Economics Review. 14, 1, 79.Research output: Contribution to journal › Article › peer-review
Open Access -
Administering selected subscales of patient-reported outcome questionnaires to reduce patient burden and increase relevance: a position statement on a modular approach
Serrano, D., Cella, D., Husereau, D., King-Kallimanis, B., Mendoza, T., Salmonson, T., Stone, A., Zaleta, A., Dhanda, D., Moshyk, A., Liu, F., Shields, A. L., Taylor, F., Spite, S., Shaw, J. W. & Braverman, J., Apr 2024, In: Quality of Life Research. 33, 4, p. 1075-1084 10 p.Research output: Contribution to journal › Article › peer-review
Open Access1 Scopus citations
Datasets
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Understanding key symptoms, side effects, and impacts of HR+/HER2- advanced breast cancer: qualitative study findings
Galipeau, N. (Creator), Klooster, B. (Creator), Krohe, M. (Creator), Tang, D. H. (Creator), Revicki, D. A. (Creator) & Cella, D. (Creator), figshare, 2019
DOI: 10.6084/m9.figshare.c.4394126, https://springernature.figshare.com/collections/Understanding_key_symptoms_side_effects_and_impacts_of_HR_HER2-_advanced_breast_cancer_qualitative_study_findings/4394126
Dataset
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PROMIS Neuropathic Pain Dataset
Chapman, R. S. (Contributor) & Cella, D. F. (Creator), Harvard Dataverse, Apr 8 2018
DOI: 10.7910/dvn/tj9mnm, https://dataverse.harvard.edu/citation?persistentId=doi:10.7910/DVN/TJ9MNM
Dataset
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sj-zip-2-apm-10.1177_01466216211013106 – Supplemental material for PROsetta: An R Package for Linking Patient-Reported Outcome Measures
Choi, S. W. (Contributor), Lim, S. (Contributor), Schalet, B. D. (Contributor), Kaat, A. J. (Contributor) & Cella, D. (Contributor), SAGE Journals, 2021
DOI: 10.25384/sage.14633258, https://sage.figshare.com/articles/dataset/sj-zip-2-apm-10_1177_01466216211013106_Supplemental_material_for_PROsetta_An_R_Package_for_Linking_Patient-Reported_Outcome_Measures/14633258
Dataset
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Evaluation of Nurse Preferences Between the Lanreotide Autogel New Syringe and the Octreotide Long-Acting Release Syringe: An International Simulated-Use Study (PRESTO)
Adelman, D. (Creator), Truong Thanh, X.-M. (Contributor), Feuilly, M. (Creator), Houchard, A. (Creator) & Cella, D. (Creator), Adis Journals, 2020
DOI: 10.6084/m9.figshare.11806605.v1, https://adisjournals.figshare.com/articles/Evaluation_of_Nurse_Preferences_Between_the_Lanreotide_Autogel_New_Syringe_and_the_Octreotide_Long-Acting_Release_Syringe_An_International_Simulated-Use_Study_PRESTO_/11806605/1
Dataset
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Patient and Healthcare Provider Perspectives of First-Generation Somatostatin Analogs in the Management of Neuroendocrine Tumors and Acromegaly: A Systematic Literature Review
Cella, D. (Creator), Evans, J. (Creator), Feuilly, M. (Creator), Neggers, S. (Creator), Van Genechten, D. (Contributor), Herman, J. (Creator) & Khan, M. S. (Contributor), Adis Journals, 2020
DOI: 10.6084/m9.figshare.13333565.v1, https://adisjournals.figshare.com/articles/figure/Patient_and_Healthcare_Provider_Perspectives_of_First-Generation_Somatostatin_Analogs_in_the_Management_of_Neuroendocrine_Tumors_and_Acromegaly_A_Systematic_Literature_Review/13333565/1
Dataset