• 68043 Citations
1984 …2024
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Personal profile

Research Interests

As Chair of an interdisciplinary Department of Medical Social Sciences, I play a leadership role in the development and orchestration of transdisciplinary scientific collaborations. Our department conducts basic and applied social science research to advance the understanding of the mechanisms and measurement of health and disease. I oversee all academic and research programs, financial operations, faculty affairs and program development of the department. In both my capacity as PI on multiple trans-NIH initiatives and as Chair, I play leadership roles in the development and orchestration of transdisciplinary scientific collaborations. As a measurement scientist with expertise in applied health status measurement, I have led the development of numerous item banks and instruments, intended for both normal and clinical populations including paper-and-pencil and computer administered instruments. I was the principal investigator of the trans-NIH NeuroQoL and the PROMIS Statistical Center. In the first cycle of PROMIS (2004-2009), I was PI of the Statistical Coordinating Center (SCC). Currently I am the PI of The National Person-Centered Assessment Resource (PCAR) grant and ECHO PRO CORE grant. A theme of my work has been ensuring that the voice of the patient is reflected in clinical care and clinical research, including areas of high-stakes decision-making such as regulatory review, payer negotiations, and individual clinical care. A major focus of many of these initiatives has been ensuring measurement sensitive to diverse populations including issues of health literacy and health disparities and developmentally-sensitive measurement across the lifespan.

Training Experience

1980Internship, Loyola University Counseling Center
1982Internship, Payne Whitney Psychiatric Clinic
1983Fellowship, Payne Whitney Psychiatric Clinic
1986Fellowship, Memorial Sloan-Kettering Cancer Center

Education/Academic qualification

PhD, Loyola University-Stritch School of Medicine

… → 1984

Keywords

  • Cancer Communications
  • Health Disparities
  • Outcome Measures
  • Patient-Reported Outcomes
  • Psychological Issues of Patients Dealing with Medical Illness
  • Psychometrics
  • Quality of Life

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Grants 2001 2024

Learning
Health
Research
Patient Outcome Assessment
Quality Improvement
Clinical Trials
Research Personnel
Research Ethics Committees
Pharmaceutical Preparations
Patient Reported Outcome Measures

SP0046767 Project Core

Cella, D., Condon, D. M., Gershon, R., Nowinski, C. J. & Reber, P. J.

National Institute on Aging

9/15/185/31/23

Project: Research project

Libraries
Software
Research Personnel
Population
Aptitude

Research Output 1984 2019

Assessment of change in quality of life, carcinoid syndrome symptoms and healthcare resource utilization in patients with carcinoid syndrome

Halperin, D. M., Huynh, L., Beaumont, J. L., Cai, B., Bhak, R. H., Narkhede, S., Totev, T., Duh, M. S., Neary, M. P. & Cella, D., Mar 28 2019, In : BMC cancer. 19, 1, 274.

Research output: Contribution to journalArticle

Open Access
Carcinoid Tumor
Somatostatin
Quality of Life
Delivery of Health Care
Information Systems
Prostatic Neoplasms
Anxiety
Therapeutics

Comprehensive validation of the functional assessment of anorexia/cachexia therapy (FAACT) anorexia/cachexia subscale (A/CS) in lung cancer patients with involuntary weight loss

Gelhorn, H. L., Gries, K. S., Speck, R. M., Duus, E. M., Bourne, R. K., Aggarwal, D. & Cella, D., Jan 1 2019, In : Quality of Life Research.

Research output: Contribution to journalArticle

Cachexia
Anorexia
Weight Loss
Lung Neoplasms
Therapeutics

Development and validation of the caregiver roles and responsibilities scale in cancer caregivers

Shilling, V., Starkings, R., Jenkins, V., Cella, D. & Fallowfield, L., Jan 1 2019, In : Quality of Life Research.

Research output: Contribution to journalArticle

Open Access
Caregivers
Neoplasms
Melanoma
Breast
Kidney Neoplasms