• 65446 Citations
1984 …2023
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Personal profile

Research Interests

As Chair of an interdisciplinary Department of Medical Social Sciences, I play a leadership role in the development and orchestration of transdisciplinary scientific collaborations. Our department conducts basic and applied social science research to advance the understanding of the mechanisms and measurement of health and disease. I oversee all academic and research programs, financial operations, faculty affairs and program development of the department. In both my capacity as PI on multiple trans-NIH initiatives and as Chair, I play leadership roles in the development and orchestration of transdisciplinary scientific collaborations. As a measurement scientist with expertise in applied health status measurement, I have led the development of numerous item banks and instruments, intended for both normal and clinical populations including paper-and-pencil and computer administered instruments. I was the principal investigator of the trans-NIH NeuroQoL and the PROMIS Statistical Center. In the first cycle of PROMIS (2004-2009), I was PI of the Statistical Coordinating Center (SCC). Currently I am the PI of The National Person-Centered Assessment Resource (PCAR) grant and ECHO PRO CORE grant. A theme of my work has been ensuring that the voice of the patient is reflected in clinical care and clinical research, including areas of high-stakes decision-making such as regulatory review, payer negotiations, and individual clinical care. A major focus of many of these initiatives has been ensuring measurement sensitive to diverse populations including issues of health literacy and health disparities and developmentally-sensitive measurement across the lifespan.

Training Experience

1980Internship, Loyola University Counseling Center
1982Internship, Payne Whitney Psychiatric Clinic
1983Fellowship, Payne Whitney Psychiatric Clinic
1986Fellowship, Memorial Sloan-Kettering Cancer Center

Education/Academic qualification

PhD, Loyola University-Stritch School of Medicine

… → 1984


  • Cancer Communications
  • Health Disparities
  • Outcome Measures
  • Patient-Reported Outcomes
  • Psychological Issues of Patients Dealing with Medical Illness
  • Psychometrics
  • Quality of Life

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Grants 2001 2023

Patient Outcome Assessment
Quality Improvement

SP0046767 Project Core

Cella, D., Condon, D. M., Gershon, R., Nowinski, C. J. & Reber, P. J.

National Institute of Aging


Project: Research project

Research Personnel
Delivery of Health Care
Patient Participation
Costs and Cost Analysis
Patient-Centered Care

Consultant Costs no F&A

Cella, D.

Peter G. Peterson Foundation


Project: Research project

Costs and Cost Analysis
Delivery of Health Care
Patient Participation

Research Output 1984 2019

1 Citations

A Comprehensive Conceptual Model of the Experience of Chronic Itch in Adults

Silverberg, J. I., Kantor, R. W., Dalal, P., Hickey, C., Shaunfield, S. L., Tegel, K. K., Lai, J-S. & Cella, D., Oct 1 2018, In : American Journal of Clinical Dermatology. 19, 5, p. 759-769 11 p.

Research output: Contribution to journalArticle

Quality of Life
Social Stigma
Affective Symptoms
Self Report
Health Status
1 Citations

Agreement between clinician-rated versus patient-reported outcomes in Huntington disease

Carlozzi, N. E., Boileau, N. R., Perlmutter, J. S., Chou, K. L., Stout, J. C., Paulsen, J. S., McCormack, M. K., Cella, D., Nance, M. A., Lai, J-S. & Dayalu, P., Jun 1 2018, In : Journal of Neurology. 265, 6, p. 1443-1453 11 p.

Research output: Contribution to journalArticle

Huntington Disease
Self Report
Behavioral Research
Analysis of Variance

A method to create a standardized generic and condition-specific patient-reported outcome measure for patient care and healthcare improvement

Schifferdecker, K. E., Yount, S. E., Kaiser, K., Adachi-Mejia, A., Cella, D., Carluzzo, K. L., Eisenstein, A., Kallen, M. A., Greene, G. J., Eton, D. T. & Fisher, E. S., Feb 1 2018, In : Quality of Life Research. 27, 2, p. 367-378 12 p.

Research output: Contribution to journalArticle

Patient Care
Knee Osteoarthritis
Delivery of Health Care
Quality of Health Care
Focus Groups

A new measure for end of life planning, preparation, and preferences in Huntington disease: HDQLIFE end of life planning

Carlozzi, N. E., Hahn, E. A., Frank, S. A., Perlmutter, J. S., Downing, N. D., McCormack, M. K., Barton, S., Nance, M. A., Schilling, S. G., Carlozzi, N., Dayalu, P., Schilling, S., Austin, A., Canter, M., Goodnight, S., Miner, J., Migliore, N., Paulsen, J., Downing, N., DeSoriano, I. & 31 othersShadrick, C., Miller, A., Quaid, K., Wesson, M., Ross, C., Churchill, G., Ong, M. J., Perlman, S., Clemente, B., Fisher, A., Obialisi, G., Rosco, M., McCormack, M., Marin, H., Dicke, A., Perlmutter, J. S., Barton, S., Smith, S., Nance, M., Ede, P., Rao, S., Ahmed, A., Lengen, M., Mourany, L., Reece, C., Geschwind, M., Winer, J., Cella, D., Gershon, R., Hahn, E. & Hdqlife Site Investigators And Coordinators, Jan 1 2018, In : Journal of Neurology. 265, 1, p. 98-107 10 p.

Research output: Contribution to journalArticle

Huntington Disease
Statistical Factor Analysis
Hospice Care
Terminal Care