Elizabeth A Hahn

  • 6376 Citations
1990 …2020

Research output per year

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Research Output

  • 6376 Citations
  • 130 Article
  • 2 Letter
  • 2 Review article
  • 1 Comment/debate
2020

Assessing meaning & purpose in life: development and validation of an item bank and short forms for the NIH PROMIS®

Salsman, J. M., Schalet, B. D., Park, C. L., George, L., Steger, M. F., Hahn, E. A., Snyder, M. A. & Cella, D., Aug 1 2020, In : Quality of Life Research. 29, 8, p. 2299-2310 12 p.

Research output: Contribution to journalArticle

Assessing Vigilance in Caregivers After Traumatic Brain Injury: TBI-CareQOL Caregiver Vigilance

Carlozzi, N. E., Lange, R. T., Kallen, M. A., Boileau, N. R., Sander, A. M., Massengale, J. P., Nakase-Richardson, R., Tulsky, D. S., French, L. M., Hahn, E. A., Ianni, P. A., Miner, J. A., Hanks, R. & Brickell, T. A., Jan 1 2020, (Accepted/In press) In : Rehabilitation Psychology.

Research output: Contribution to journalArticle

Health Literacy, Health Outcomes, and the Caregiver Role in Traumatic Brain Injury

Hahn, E. A., Boileau, N. R., Hanks, R. A., Sander, A. M., Miner, J. A. & Carlozzi, N. E., 2020, (Accepted/In press) In : Rehabilitation Psychology.

Research output: Contribution to journalArticle

Impact of Health Literacy and Social Support on Self-Efficacy Regarding Self-Care among Patients with a Left Ventricular Assist Device (LVAD): Findings from the Mechanical Circulatory Support: Measures of Adjustment and Quality of Life (MCS A-QOL) Study

Hahn, E. A., Wortman, K., Teuteberg, J. J., Rich, J. D., Yancy, C. W., Cella, D., Allen, L. A., McIlvennan, C. K., Kiernan, M. S., Lindenfeld, J., Klein, L., Murks, C. M., Lee, C. S., Denfeld, Q., Walsh, M. N., Ruo, B., Buono, S. K., Cummings, P. & Grady, K. L., Apr 1 2020, In : The Journal of heart and lung transplantation : the official publication of the International Society for Heart Transplantation. 39, 4, p. S435-S436

Research output: Contribution to journalArticle

Symptom Frequency and Severity over Time for Patients Undergoing LVAD Implantation

Grady, K. L., Wortman, K., Ruo, B., Teuteberg, J. J., Lindenfeld, J., Rich, J. D., Yancy, C. W., Pham, D., McIlvennan, C. K., Allen, L., Kiernan, M. S., Beiser, D., Murks, C. M., Klein, L., Lee, C. S., Denfeld, Q., Walsh, M., Cella, D., Buono, S., Cummings, P. & 2 others, Kallen, M. & Hahn, E. A., Apr 1 2020, In : The Journal of heart and lung transplantation : the official publication of the International Society for Heart Transplantation. 39, 4, p. S437

Research output: Contribution to journalArticle

TBI-CareQOL Military Health Care Frustration in Caregivers of Service Members/Veterans With Traumatic Brain Injury

Carlozzi, N. E., Lange, R. T., French, L. M., Kallen, M. A., Boileau, N. R., Hanks, R. A., Nakase-Richardson, R., Massengale, J. P., Sander, A. M., Hahn, E. A., Miner, J. A. & Brickell, T. A., Jan 1 2020, (Accepted/In press) In : Rehabilitation Psychology.

Research output: Contribution to journalArticle

Understanding Domains That Influence Perceived Stigma in Individuals With Huntington Disease

Boileau, N. R., Paulsen, J. S., Ready, R. E., Hahn, E. A., Lai, J. S. & Carlozzi, N. E., 2020, (Accepted/In press) In : Rehabilitation Psychology.

Research output: Contribution to journalArticle

2019

Calibration and initial validation of a general self-efficacy item bank and short form for the NIH PROMIS®

Salsman, J. M., Schalet, B. D., Merluzzi, T. V., Park, C. L., Hahn, E. A., Snyder, M. A. & Cella, D., Sep 15 2019, In : Quality of Life Research. 28, 9, p. 2513-2523 11 p.

Research output: Contribution to journalArticle

1 Scopus citations

End-of-life measures in Huntington disease: HDQLIFE Meaning and Purpose, Concern with Death and Dying, and End of Life Planning

Carlozzi, N. E., Boileau, N. R., Paulsen, J. S., Perlmutter, J. S., Lai, J. S., Hahn, E. A., McCormack, M. K., Nance, M. A., Cella, D., Barton, S. K. & Downing, N. R., Oct 1 2019, In : Journal of Neurology. 266, 10, p. 2406-2422 17 p.

Research output: Contribution to journalArticle

Investigation of a multimedia, computer-based approach to improve knowledge, attitudes, self-efficacy, and receptivity to cancer clinical trials among newly diagnosed patients with diverse health literacy skills

Polite, B. N., Cipriano-Steffens, T. M., Liao, C., Miller, E. L., Arndt, N. L. & Hahn, E. A., Jun 15 2019, In : Cancer. 125, 12, p. 2066-2075 10 p.

Research output: Contribution to journalArticle

1 Scopus citations

Pragmatic randomised clinical trial of proton versus photon therapy for patients with non-metastatic breast cancer: The Radiotherapy Comparative Effectiveness (RadComp) Consortium trial protocol

Bekelman, J. E., Lu, H., Pugh, S., Baker, K., Berg, C. D., De Gonzalez, A. B., Braunstein, L. Z., Bosch, W., Chauhan, C., Ellenberg, S., Fang, L. C., Freedman, G. M., Hahn, E. A., Haffty, B. G., Khan, A. J., Jimenez, R. B., Kesslering, C., Ky, B., Lee, C., Lu, H. M. & 12 others, Mishra, M. V., Mullins, C. D., Mutter, R. W., Nagda, S., Pankuch, M., Powell, S. N., Prior, F. W., Schupak, K., Taghian, A. G., Wilkinson, J. B., Macdonald, S. M. & Cahlon, O., Oct 1 2019, In : BMJ open. 9, 10, e025556.

Research output: Contribution to journalArticle

Open Access
4 Scopus citations

Reliability and Validity Data to Support the Clinical Utility of the Traumatic Brain Injury Caregiver Quality of Life (TBI-CareQOL)

Carlozzi, N. E., Boileau, N. R., Kallen, M. A., Nakase-Richardson, R., Hahn, E. A., Tulsky, D. S., Miner, J. A., Hanks, R. A., Massengale, J. P., Lange, R. T., Brickell, T. A., French, L. M., Ianni, P. A. & Sander, A. M., Jan 1 2019, (Accepted/In press) In : Rehabilitation Psychology.

Research output: Contribution to journalArticle

2 Scopus citations

Sociocultural Factors Influencing Caregiver Appraisals Following Traumatic Brain Injury

Sander, A. M., Hanks, R. A., Ianni, P. A., Boileau, N. R., Kratz, A. L., Hahn, E. A., Tulsky, D. S. & Carlozzi, N. E., Apr 2019, In : Archives of physical medicine and rehabilitation. 100, 4, p. S58-S64

Research output: Contribution to journalArticle

2 Scopus citations

The Development of a New Computer Adaptive Test to Evaluate Feelings of Being Trapped in Caregivers of Individuals With Traumatic Brain Injury: TBI-CareQOL Feeling Trapped Item Bank

Carlozzi, N. E., Kallen, M. A., Hanks, R., Kratz, A. L., Hahn, E. A., Brickell, T. A., Lange, R. T., French, L. M., Ianni, P. A., Miner, J. A. & Sander, A. M., Apr 2019, In : Archives of physical medicine and rehabilitation. 100, 4, p. S43-S51

Research output: Contribution to journalArticle

6 Scopus citations

The Development of a New Computer-Adaptive Test to Evaluate Strain in Caregivers of Individuals With TBI: TBI-CareQOL Caregiver Strain

Carlozzi, N. E., Kallen, M. A., Ianni, P. A., Hahn, E. A., French, L. M., Lange, R. T., Brickell, T. A., Hanks, R. & Sander, A. M., Apr 2019, In : Archives of physical medicine and rehabilitation. 100, 4, p. S13-S21

Research output: Contribution to journalArticle

3 Scopus citations

The Development of Two New Computer Adaptive Tests To Evaluate Feelings of Loss in Caregivers of Individuals With Traumatic Brain Injury: TBI-CareQOL Feelings of Loss-Self and Feelings of Loss-Person With Traumatic Brain Injury

Carlozzi, N. E., Kallen, M. A., Ianni, P. A., Sander, A. M., Hahn, E. A., Lange, R. T., Brickell, T. A., French, L. M., Miner, J. A. & Hanks, R., Apr 2019, In : Archives of physical medicine and rehabilitation. 100, 4, p. S31-S42

Research output: Contribution to journalArticle

4 Scopus citations

The TBI-CareQOL Measurement System: Development and Preliminary Validation of Health-Related Quality of Life Measures for Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury

Carlozzi, N. E., Kallen, M. A., Hanks, R., Hahn, E. A., Brickell, T. A., Lange, R. T., French, L. M., Kratz, A. L., Tulsky, D. S., Cella, D., Miner, J. A., Ianni, P. A. & Sander, A. M., Apr 2019, In : Archives of physical medicine and rehabilitation. 100, 4, p. S1-S12

Research output: Contribution to journalArticle

16 Scopus citations

Understanding Health-Related Quality of Life of Caregivers of Civilians and Service Members/Veterans With Traumatic Brain Injury: Establishing the Reliability and Validity of PROMIS Social Health Measures

Carlozzi, N. E., Ianni, P. A., Lange, R. T., Brickell, T. A., Kallen, M. A., Hahn, E. A., French, L. M., Cella, D., Miner, J. A. & Tulsky, D. S., Apr 2019, In : Archives of physical medicine and rehabilitation. 100, 4, p. S110-S118

Research output: Contribution to journalArticle

4 Scopus citations
2018

Addressing Lupus Health Disparities: The MONARCAS Community and Academic Collaborative Program

Mancera-Cuevas, K., Canessa, P., Chmiel, J. S., Hahn, E. A., Chung, A. H., Erickson, D. L. & Ramsey-Goldman, R., Jan 1 2018, In : Health Equity. 2, 1, p. 145-151 7 p.

Research output: Contribution to journalArticle

Open Access
1 Scopus citations

A new measure for end of life planning, preparation, and preferences in Huntington disease: HDQLIFE end of life planning

Carlozzi, N. E., Hahn, E. A., Frank, S. A., Perlmutter, J. S., Downing, N. D., McCormack, M. K., Barton, S., Nance, M. A., Schilling, S. G., Carlozzi, N., Dayalu, P., Schilling, S., Austin, A., Canter, M., Goodnight, S., Miner, J., Migliore, N., Paulsen, J., Downing, N., DeSoriano, I. & 31 others, Shadrick, C., Miller, A., Quaid, K., Wesson, M., Ross, C., Churchill, G., Ong, M. J., Perlman, S., Clemente, B., Fisher, A., Obialisi, G., Rosco, M., McCormack, M., Marin, H., Dicke, A., Perlmutter, J. S., Barton, S., Smith, S., Nance, M., Ede, P., Rao, S., Ahmed, A., Lengen, M., Mourany, L., Reece, C., Geschwind, M., Winer, J., Cella, D., Gershon, R., Hahn, E. & Hdqlife Site Investigators And Coordinators, Jan 1 2018, In : Journal of Neurology. 265, 1, p. 98-107 10 p.

Research output: Contribution to journalArticle

2 Scopus citations

Effect of a home-based exercise intervention of wearable technology and telephone coaching on walking performance in peripheral artery disease: The honor randomized clinical trial

McDermott, M. M., Spring, B., Berger, J. S., Treat-Jacobson, D., Conte, M. S., Creager, M. A., Criqui, M. H., Ferrucci, L., Gornik, H. L., Guralnik, J. M., Hahn, E. A., Henke, P., Kibbe, M. R., Kohlman-Trighoff, D., Li, L., Lloyd-Jones, D., McCarthy, W., Polonsky, T. S., Skelly, C., Tian, L. & 3 others, Zhao, L., Zhang, D. & Rejeski, W. J., Apr 24 2018, In : JAMA - Journal of the American Medical Association. 319, 16, p. 1665-1676 12 p.

Research output: Contribution to journalArticle

34 Scopus citations

Factors Associated With End-of-Life Planning in Huntington Disease

Downing, N. R., Goodnight, S., Chae, S., Perlmutter, J. S., McCormack, M., Hahn, E., Barton, S. K. & Carlozzi, N., Mar 1 2018, In : American Journal of Hospice and Palliative Medicine. 35, 3, p. 440-447 8 p.

Research output: Contribution to journalArticle

1 Scopus citations

Health care barriers and quality of life in central centrifugal cicatricial alopecia patients

Akintilo, L., Hahn, E. A., Yu, J. M. & Patterson, S. S. L., Dec 2018, In : Cutis. 102, 6, p. 427-432 6 p.

Research output: Contribution to journalArticle

Implementation of the PROMIS-29 in routine care for people with diabetes challenges and opportunities

Scholle, S. H., Morton, S., Homco, J., Rodriguez, K., Anderson, D., Hahn, E., Kendrick, D., Bardach, D. & Hart, E., Jan 1 2018, In : Journal of Ambulatory Care Management. 41, 4, p. 274-287 14 p.

Research output: Contribution to journalArticle

2 Scopus citations

Patient-reported outcome measures in Huntington disease: Quality of life in neurological disorders (Neuro-QoL) social functioning measures

Carlozzi, N. E., Hahn, E. A., Goodnight, S. M., Kratz, A. L., Paulsen, J. S., Stout, J. C., Frank, S., Miner, J. A., Cella, D., Gershon, R. C., Schilling, S. G. & Ready, R. E., Apr 2018, In : Psychological assessment. 30, 4, p. 450-458 9 p.

Research output: Contribution to journalArticle

2 Scopus citations

Refining and supplementing candidate measures of psychological well-being for the NIH PROMIS®: qualitative results from a mixed cancer sample

Salsman, J. M., Park, C. L., Hahn, E. A., Snyder, M. A., George, L. S., Steger, M. F., Merluzzi, T. & Cella, D., Sep 1 2018, In : Quality of Life Research. 27, 9, p. 2471-2476 6 p.

Research output: Contribution to journalArticle

2 Scopus citations

Understanding the need for assistance with survey completion in people with Huntington disease

Hahn, E. A., Downing, N. R., Stout, J. C., Paulsen, J. S., Ready, B., Goodnight, S., Lai, J. S., Miner, J. A. & Carlozzi, N. E., Mar 1 2018, In : Quality of Life Research. 27, 3, p. 801-810 10 p.

Research output: Contribution to journalArticle

2017

Patient-reported outcomes in Huntington's disease: Quality of life in neurological disorders (Neuro-QoL) and Huntington's disease health-related quality of life (HDQLIFE) physical function measures

Carlozzi, N. E., Ready, R. E., Frank, S., Cella, D., Hahn, E. A., Goodnight, S. M., Schilling, S. G., Boileau, N. R. & Dayalu, P., Jul 2017, In : Movement Disorders. 32, 7, p. 1096-1102 7 p.

Research output: Contribution to journalArticle

5 Scopus citations

Responsiveness of 8 Patient-Reported Outcomes Measurement Information System (PROMIS) measures in a large, community-based cancer study cohort

Jensen, R. E., Moinpour, C. M., Potosky, A. L., Lobo, T., Hahn, E. A., Hays, R. D., Cella, D., Smith, A. W., Wu, X. C., Keegan, T. H. M., Paddock, L. E., Stroup, A. M. & Eton, D. T., Jan 1 2017, In : Cancer. 123, 2, p. 327-335 9 p.

Research output: Contribution to journalArticle

24 Scopus citations

The challenge of measuring intra-individual change in fatigue during cancer treatment

Moinpour, C. M., Donaldson, G. W., Davis, K. M., Potosky, A. L., Jensen, R. E., Gralow, J. R., Back, A. L., Hwang, J. J., Yoon, J., Bernard, D. L., Loeffler, D. R., Rothrock, N. E., Hays, R. D., Reeve, B. B., Smith, A. W., Hahn, E. A. & Cella, D., Feb 1 2017, In : Quality of Life Research. 26, 2, p. 259-271 13 p.

Research output: Contribution to journalArticle

United States population-based estimates of patient-reported outcomes measurement information system symptom and functional status reference values for individuals with cancer

Jensen, R. E., Potosky, A. L., Moinpour, C. M., Lobo, T., Cella, D., Hahn, E. A., Thissen, D., Smith, A. W., Ahn, J., Luta, G. & Reeve, B. B., Jun 10 2017, In : Journal of Clinical Oncology. 35, 17, p. 1913-1920 8 p.

Research output: Contribution to journalArticle

44 Scopus citations
2016

Caring for our wounded warriors: A qualitative examination of health-related quality of life in caregivers of individuals with military-related traumatic brain injury

Carlozzi, N. E., Brickell, T. A., French, L. M., Sander, A., Kratz, A. L., Tulsky, D. S., Chiaravalloti, N. D., Hahn, E. A., Kallen, M., Austin, A. M., Miner, J. A. & Lange, R. T., 2016, In : Journal of rehabilitation research and development. 53, 6, p. 669-680 12 p.

Research output: Contribution to journalArticle

20 Scopus citations

Development of a new multimedia instrument to measure cancer-specific quality of life in Portuguese-speaking patients with varying literacy skills

Paiva, C. E., Siquelli, F. A. F., Zaia, G. R., de Andrade, D. A. P., Borges, M. A., Jácome, A. A., Giroldo, G. A. S. N., Santos, H. A., Hahn, E. A., Uemura, G. & Paiva, B. S. R., Dec 1 2016, In : SpringerPlus. 5, 1, 972.

Research output: Contribution to journalArticle

3 Scopus citations

HDQLIFE: development and assessment of health-related quality of life in Huntington disease (HD)

Carlozzi, N. E., Schilling, S. G., Lai, J. S., Paulsen, J. S., Hahn, E. A., Perlmutter, J. S., Ross, C. A., Downing, N. R., Kratz, A. L., McCormack, M. K., Nance, M. A., Quaid, K. A., Stout, J. C., Gershon, R. C., Ready, R. E., Miner, J. A., Barton, S. K., Perlman, S. L., Rao, S. M., Frank, S. & 6 others, Shoulson, I., Marin, H., Geschwind, M. D., Dayalu, P., Goodnight, S. M. & Cella, D., Oct 1 2016, In : Quality of Life Research. 25, 10, p. 2441-2455 15 p.

Research output: Contribution to journalArticle

23 Scopus citations

Measuring Access to Information and Technology: Environmental Factors Affecting Persons With Neurologic Disorders

Hahn, E. A., Garcia, S. F., Lai, J. S., Miskovic, A., Jerousek, S., Semik, P., Wong, A. & Heinemann, A. W., Jan 1 2016, In : Archives of physical medicine and rehabilitation. 97, 8, p. 1284-1294 11 p.

Research output: Contribution to journalArticle

2 Scopus citations

New measures to capture end of life concerns in Huntington disease: Meaning and Purpose and Concern with Death and Dying from HDQLIFE (a patient-reported outcomes measurement system)

Carlozzi, N. E., Downing, N. R., McCormack, M. K., Schilling, S. G., Perlmutter, J. S., Hahn, E. A., Lai, J-S., Frank, S., Quaid, K. A., Paulsen, J. S., Cella, D., Goodnight, S. M., Miner, J. A. & Nance, M. A., Oct 1 2016, In : Quality of Life Research. 25, 10, p. 2403-2415 13 p.

Research output: Contribution to journalArticle

18 Scopus citations

Sexual Satisfaction and the Importance of Sexual Health to Quality of Life Throughout the Life Course of U.S. Adults

Flynn, K. E., Lin, L., Bruner, D. W., Cyranowski, J. M., Hahn, E. A., Jeffery, D. D., Reese, J. B., Reeve, B. B., Shelby, R. A. & Weinfurt, K. P., Nov 1 2016, In : Journal of Sexual Medicine. 13, 11, p. 1642-1650 9 p.

Research output: Contribution to journalArticle

66 Scopus citations

The PROMIS satisfaction with social participation measures demonstrated responsiveness in diverse clinical populations

Hahn, E. A., Beaumont, J. L., Pilkonis, P. A., Garcia, S. F., Magasi, S., Dewalt, D. A. & Cella, D., May 1 2016, In : Journal of Clinical Epidemiology. 73, p. 135-141 7 p.

Research output: Contribution to journalArticle

34 Scopus citations

Using the ICF’s environmental factors framework to develop an item bank measuring built and natural environmental features affecting persons with disabilities

Heinemann, A. W., Lai, J-S., Wong, A., Dashner, J., Magasi, S., Hahn, E. A., Carlozzi, N. E., Tulsky, D. S., Jerousek, S., Semik, P., Miskovic, A. & Gray, D. B., Nov 1 2016, In : Quality of Life Research. 25, 11, p. 2775-2786 12 p.

Research output: Contribution to journalArticle

9 Scopus citations
2015

Development and Initial Validation of the PROMIS® Sexual Function and Satisfaction Measures Version 2.0

Weinfurt, K. P., Lin, L., Bruner, D. W., Cyranowski, J. M., Dombeck, C. B., Hahn, E. A., Jeffery, D. D., Luecht, R. M., Magasi, S., Porter, L. S., Reese, J. B., Reeve, B. B., Shelby, R. A., Smith, A. W., Willse, J. T. & Flynn, K. E., Sep 1 2015, In : Journal of Sexual Medicine. 12, 9, p. 1961-1974 14 p.

Research output: Contribution to journalArticle

43 Scopus citations
6 Scopus citations
13 Scopus citations

Environmental barriers and supports to everyday participation: A qualitative insider perspective from people with disabilities

Hammel, J., Magasi, S., Heinemann, A. W., Gray, D. B., Stark, S., Kisala, P., Carlozzi, N. E., Tulsky, D., Garcia, S. F. & Hahn, E. A., Apr 1 2015, In : Archives of physical medicine and rehabilitation. 96, 4, p. 578-588 11 p.

Research output: Contribution to journalArticle

108 Scopus citations

Environmental factors item development for persons with stroke, traumatic brain injury, and spinal cord injury

Heinemann, A. W., Magasi, S., Hammel, J., Carlozzi, N. E., Garcia, S. F., Hahn, E. A., Lai, J. S., Tulsky, D., Gray, D. B., Hollingsworth, H. & Jerousek, S., Apr 1 2015, In : Archives of physical medicine and rehabilitation. 96, 4, p. 589-595 7 p.

Research output: Contribution to journalArticle

38 Scopus citations

Health Literacy and Patient-Reported Outcomes: A Cross-Sectional Study of Underserved English-and Spanish-Speaking Patients with Type 2 Diabetes

Hahn, E. A., Burns, J. L., Jacobs, E. A., Ganschow, P. S., Garcia, S. F., Rutsohn, J. P. & Baker, D. W., Oct 9 2015, In : Journal of Health Communication. 20, p. 4-15 12 p.

Research output: Contribution to journalArticle

20 Scopus citations

Health-related quality of life in caregivers of individuals with traumatic brain injury: Development of a conceptual model

Carlozzi, N. E., Kratz, A. L., Sander, A. M., Chiaravalloti, N. D., Brickell, T. A., Lange, R. T., Hahn, E. A., Austin, A., Miner, J. A. & Tulsky, D. S., Jan 1 2015, In : Archives of physical medicine and rehabilitation. 96, 1, p. 105-113 9 p.

Research output: Contribution to journalArticle

31 Scopus citations
15 Scopus citations

In response to "scope of shared decision making in patients with psychologic complaints"

Reschke, D. J., Seeskin, Z. H., Hahn, E. A. & Pang, P. S., Jun 1 2015, In : American Journal of Emergency Medicine. 33, 6, 1 p.

Research output: Contribution to journalLetter

Patient preferences regarding medical decision making in the emergency care setting: A pilot-study

Reschke, D. J., Seeskin, Z. H., Hahn, E. A. & Pang, P. S., May 1 2015, In : American Journal of Emergency Medicine. 33, 5, p. 719-721 3 p.

Research output: Contribution to journalLetter

1 Scopus citations