Grants per year
Personal profile
Research Interests
Jin-Shei Lai, Ph.D., OTR/L., is a registered occupational therapist and a trained psychometrician. She has been a member of the Lurie Comprehensive Cancer Center, the Children’s Oncology Group (COG), Proton Collaborative Group and the Pediatric Brain Tumor Consortium (PBTC). Dr. Lai has significant research experiences in outcome measurement, quality of life, symptom management and late effect due to the illness and/or its treatment in chronic illness for both pediatric and adult populations. She is the lead developer of the pediatric Functional Assessment of Chronic Illness scales, including Childhood Brain Tumor Survivor, Fatigue, Anorexia and Cachexia, and Cognition. Dr. Lai is recognized as an expert in both outcomes measurement and Item Response Theory (IRT). In particular, she has been working on developing and validating item banks related to health-related quality of life for people with chronic illness since 2000, including domains of fatigue, physical function, pain, emotional distress, psychosocial impacts from cancer experiences, cognition and social function. She has been integral in the development of item banks using IRT to measure perceived cognitive function and fatigue for both children and adults with and without chronic conditions.
Expertise related to UN Sustainable Development Goals
In 2015, UN member states agreed to 17 global Sustainable Development Goals (SDGs) to end poverty, protect the planet and ensure prosperity for all. This person’s work contributes towards the following SDG(s):
Education/Academic qualification
Educational Psychology, PhD, University of Illinois at Chicago
… → 1996
Research interests keywords
- Brain and Nervous System
- Outcome Measures
- Patient-Centered Care
- Patient-Reported Outcomes
- Physical activity
- Psychometrics
- Quality of Life
- Rehabilitation/Therapy
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Collaborations and top research areas from the last five years
Recent external collaboration on country/territory level. Dive into details by clicking on the dots or
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Sarcopenia Physical Function Clinical Outcome Assessments for Regulatory Use
Cella, D. (PD/PI), Greene, G. J. (Co-Investigator), Lai, J.-S. (Co-Investigator) & Shaunfield, S. (Co-Investigator)
12/18/24 → 11/30/25
Project: Research project
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Development of a Full Qualification Package for the PROMISnq Short Form v2.0 – Physical Function – Multiple Sclerosis 15a (DDT COA #000123)
Kaiser, K. (PD/PI), Kaiser, K. (PD/PI), Lai, J.-S. (Co-Investigator), Lai, J.-S. (Co-Investigator), Shaunfield, S. (Co-Investigator), Shaunfield, S. (Co-Investigator), Tang, X. (Co-Investigator) & Tang, X. (Co-Investigator)
Critical Path Institute, Food and Drug Administration
2/1/24 → 1/31/26
Project: Research project
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Year 2 Option - Make Ready the NIH Baby Toolbox for End Users:
Gershon, R. (PD/PI), Blackwell, C. K. (Co-Investigator), Dworak, E. M. (Co-Investigator), Kaat, A. J. (Co-Investigator), LaForte, E. M. (Co-Investigator), Lai, J.-S. (Co-Investigator), Mansolf, M. A. (Co-Investigator), Novack, M. A. (Co-Investigator), Nowinski, C. J. (Co-Investigator), Pila, S. (Co-Investigator), Sivan, A. B. (Co-Investigator), Wakschlag, L. S. (Co-Investigator), Waxman, S. R. (Co-Investigator) & Yao, L. (Co-Investigator)
National Institute of Child Health and Human Development
9/28/23 → 8/31/25
Project: Research project
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Make Ready the NIH Baby Toolbox for End Users:
Gershon, R. (PD/PI), Gershon, R. (PD/PI), Blackwell, C. K. (Co-Investigator), Blackwell, C. K. (Co-Investigator), Dworak, E. M. (Co-Investigator), Dworak, E. M. (Co-Investigator), Kaat, A. J. (Co-Investigator), Kaat, A. J. (Co-Investigator), LaForte, E. M. (Co-Investigator), LaForte, E. M. (Co-Investigator), Lai, J.-S. (Co-Investigator), Lai, J.-S. (Co-Investigator), Mansolf, M. A. (Co-Investigator), Mansolf, M. A. (Co-Investigator), Novack, M. A. (Co-Investigator), Novack, M. A. (Co-Investigator), Nowinski, C. J. (Co-Investigator), Nowinski, C. J. (Co-Investigator), Pila, S. (Co-Investigator), Pila, S. (Co-Investigator), Sivan, A. B. (Co-Investigator), Sivan, A. B. (Co-Investigator), Wakschlag, L. S. (Co-Investigator), Wakschlag, L. S. (Co-Investigator), Waxman, S. R. (Co-Investigator), Waxman, S. R. (Co-Investigator), Yao, L. (Co-Investigator) & Yao, L. (Co-Investigator)
National Institute of Child Health and Human Development
9/28/23 → 8/31/25
Project: Research project
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Combining developmental and sleep health measures for autism spectrum disorder screening: an ECHO study
for the ECHO Cohort Consortium, Jan 2025, In: Pediatric research. 97, 1, p. 411-421 11 p., e2022059393.Research output: Contribution to journal › Article › peer-review
Open Access1 Scopus citations -
Stigma underlies the mental health burden of pediatric atopic dermatitis: A cohort study
Phan, S., Hajek, A., Rangel, S. M., Ren, Z., Cella, D., Lai, J. S. & Paller, A. S., May 2025, In: Journal of the American Academy of Dermatology. 92, 5, p. 1088-1091 4 p.Research output: Contribution to journal › Article › peer-review
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Assessing the interchangeability of linked scores in multivariable statistical analyses
Mansolf, M., Blackwell, C. K., Cella, D. & Lai, J. S., Apr 2024, In: Quality of Life Research. 33, 4, p. 1121-1131 11 p.Research output: Contribution to journal › Article › peer-review
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Development of the PROMIS pediatric stigma and extension to the PROMIS pediatric stigma: skin item banks
Lai, J. S., Nowinski, C., Rangel, S. M., Batra, S. T., Mueller, K., Chamlin, S., Ustsinovich, V., Cella, D., Mansolf, M. & Paller, A. S., Mar 2024, In: Quality of Life Research. 33, 3, p. 865-873 9 p.Research output: Contribution to journal › Article › peer-review
3 Scopus citations -
Disentangling Safety Culture’s Role in Reducing Cesarean Overuse: Creating a Revised Labor Culture Survey
White Vangompel, E., Singh, L., Lai, J. S., Carlock, F., Brown, J. & Low, L. K., Sep 1 2024, In: Women's Health Reports. 5, 1, p. 594-601 8 p.Research output: Contribution to journal › Article › peer-review
Open Access
Datasets
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Supplementary Material for: Preparation and Rationale for a Patient-Reported Clinical Outcome Assessment Set of Fluid Overload for Drug Development in Nephrotic Syndrome
Salmon, E. (Contributor), Carlozzi, N. E. (Contributor), Lai, J.-S. (Contributor), Spino, C. (Contributor), Wang, Y. (Contributor), Capellari, E. (Contributor), Scherr, R. (Contributor), Sifre, K. (Contributor), Sullivan, S. (Contributor), Hurt, C. (Contributor), Creguer, T. (Contributor), Helm, K. (Contributor), Lafayette, R. A. (Contributor), Nachman, P. H. (Contributor), Selewski, D. T. (Contributor) & Peipert, J. D. (Contributor), Karger Publishers, 2024
DOI: 10.6084/m9.figshare.26469643.v1, https://karger.figshare.com/articles/dataset/Supplementary_Material_for_Preparation_and_Rationale_for_a_Patient-Reported_Clinical_Outcome_Assessment_Set_of_Fluid_Overload_for_Drug_Development_in_Nephrotic_Syndrome/26469643/1
Dataset
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Evaluation of PROMIS Cognitive Function Scores and Correlates in a Clinical Sample of Older Adults
Edelen, M. O. (Creator), Harrison, J. M. (Creator), Rodriguez, A. (Creator), Weir, R. (Creator), Lai, J.-S. (Creator), Langer, M. M. (Creator) & Hanmer, J. (Creator), SAGE Journals, 2022
DOI: 10.25384/sage.c.6147328, https://sage.figshare.com/collections/Evaluation_of_PROMIS_Cognitive_Function_Scores_and_Correlates_in_a_Clinical_Sample_of_Older_Adults/6147328
Dataset