Jin-Shei Lai

  • 8500 Citations
1996 …2024

Research output per year

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Personal profile

Research Interests

Jin-Shei Lai, Ph.D., OTR/L., is a registered occupational therapist and a trained psychometrician. She has been a member of the Lurie Comprehensive Cancer Center, the Children’s Oncology Group (COG), Proton Collaborative Group and the Pediatric Brain Tumor Consortium (PBTC). Dr. Lai has significant research experiences in outcome measurement, quality of life, symptom management and late effect due to the illness and/or its treatment in chronic illness for both pediatric and adult populations. She is the lead developer of the pediatric Functional Assessment of Chronic Illness scales, including Childhood Brain Tumor Survivor, Fatigue, Anorexia and Cachexia, and Cognition. Dr. Lai is recognized as an expert in both outcomes measurement and Item Response Theory (IRT). In particular, she has been working on developing and validating item banks related to health-related quality of life for people with chronic illness since 2000, including domains of fatigue, physical function, pain, emotional distress, psychosocial impacts from cancer experiences, cognition and social function. She has been integral in the development of item banks using IRT to measure perceived cognitive function and fatigue for both children and adults with and without chronic conditions.

Education/Academic qualification

PhD, University of Illinois at Chicago

… → 1996

Research interests

  • Brain and Nervous System
  • Outcome Measures
  • Patient-Centered Care
  • Patient-Reported Outcomes
  • Physical activity
  • Psychometrics
  • Quality of Life
  • Rehabilitation/Therapy

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  • Research Output

  • 1 Scopus citations

    Measurement properties of the Patient-Reported Outcomes Measurement Information System Itch Questionnaire item banks in adults with atopic dermatitis

    Silverberg, J. I., Lai, J. S., Vakharia, P. P., Patel, K., Singam, V., Chopra, R., Sacotte, R., Patel, N., Rastogi, S., Kantor, R., Hsu, D. Y. & Cella, D., Jan 1 2020, (Accepted/In press) In : Journal of the American Academy of Dermatology.

    Research output: Contribution to journalArticle

  • Understanding Domains That Influence Perceived Stigma in Individuals With Huntington Disease

    Boileau, N. R., Paulsen, J. S., Ready, R. E., Hahn, E. A., Lai, J. S. & Carlozzi, N. E., Jan 1 2020, (Accepted/In press) In : Rehabilitation Psychology.

    Research output: Contribution to journalArticle

  • A Pilot Study of a Screening Tool for Pediatric Minimal Hepatic Encephalopathy

    Ohnemus, D., Neighbors, K., Sorensen, L. G., Lai, J. S. & Alonso, E. M., Dec 1 2019, In : Journal of pediatric gastroenterology and nutrition. 69, 6, p. 655-661 7 p.

    Research output: Contribution to journalArticle

  • Development, Validation, and Interpretation of the PROMIS Itch Questionnaire: A Patient-Reported Outcome Measure for the Quality of Life Impact of Itch

    Silverberg, J. I., Lai, J. S., Kantor, R. W., Dalal, P., Hickey, C., Shaunfield, S., Kaiser, K., Correia, H. & Cella, D., Jan 1 2019, (Accepted/In press) In : Journal of Investigative Dermatology.

    Research output: Contribution to journalArticle

  • 2 Scopus citations