Jin-Shei Lai

  • 7713 Citations
19962020
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Personal profile

Research Interests

Jin-Shei Lai, Ph.D., OTR/L., is a registered occupational therapist and a trained psychometrician. She has been a member of the Lurie Comprehensive Cancer Center, the Children’s Oncology Group (COG), Proton Collaborative Group and the Pediatric Brain Tumor Consortium (PBTC). Dr. Lai has significant research experiences in outcome measurement, quality of life, symptom management and late effect due to the illness and/or its treatment in chronic illness for both pediatric and adult populations. She is the lead developer of the pediatric Functional Assessment of Chronic Illness scales, including Childhood Brain Tumor Survivor, Fatigue, Anorexia and Cachexia, and Cognition. Dr. Lai is recognized as an expert in both outcomes measurement and Item Response Theory (IRT). In particular, she has been working on developing and validating item banks related to health-related quality of life for people with chronic illness since 2000, including domains of fatigue, physical function, pain, emotional distress, psychosocial impacts from cancer experiences, cognition and social function. She has been integral in the development of item banks using IRT to measure perceived cognitive function and fatigue for both children and adults with and without chronic conditions.

Education/Academic qualification

PhD, University of Illinois - Chicago

… → 1996

Research interests

  • Brain and Nervous System
  • Outcome Measures
  • Patient-Centered Care
  • Patient-Reported Outcomes
  • Physical activity
  • Psychometrics
  • Quality of Life
  • Rehabilitation/Therapy

Fingerprint Dive into the research topics where Jin-Shei Lai is active. These topic labels come from the works of this person. Together they form a unique fingerprint.

  • 12 Similar Profiles
Quality of Life Medicine & Life Sciences
Fatigue Medicine & Life Sciences
Information Systems Medicine & Life Sciences
Pediatrics Medicine & Life Sciences
Psychometrics Medicine & Life Sciences
Neoplasms Medicine & Life Sciences
Huntington Disease Medicine & Life Sciences
Nervous System Diseases Medicine & Life Sciences

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Grants 2009 2020

Information Systems
Asthma
Research
Biostatistics
Atopic Dermatitis
Atopic Dermatitis
Information Systems
Research
Biostatistics
Psychometrics
Information Systems
Biostatistics
Atopic Dermatitis
Psychometrics
Population

Research Output 1996 2019

Development of the PROMIS-based Research Assessment and Clinical Tool-Fatigue (ReACT-F)

Dickinson, K. A., Kelly, D. L., Lai, J-S. & Saligan, L. N., Jan 1 2019, (Accepted/In press) In : Supportive Care in Cancer.

Research output: Contribution to journalArticle

Fatigue
Research
Neoplasms
Self Report
Statistical Factor Analysis

End-of-life measures in Huntington disease: HDQLIFE Meaning and Purpose, Concern with Death and Dying, and End of Life Planning

Carlozzi, N. E., Boileau, N. R., Paulsen, J. S., Perlmutter, J. S., Lai, J-S., Hahn, E. A., McCormack, M. K., Nance, M. A., Cella, D., Barton, S. K. & Downing, N. R., Jan 1 2019, In : Journal of Neurology.

Research output: Contribution to journalArticle

Huntington Disease
Reproducibility of Results
Neurodegenerative Diseases
Research
Plexiform Neurofibroma
Neurofibromatosis 1
Age Groups
Pain
Parents
1 Citation (Scopus)
Plexiform Neurofibroma
Neurofibromatosis 1
Nervous System Diseases
Information Systems
Quality of Life

Positive Affect and Well-Being in Huntington's Disease Moderates the Association between Functional Impairment and HRQOL Outcomes

Ready, R. E., Boileau, N. R., Barton, S. K., Lai, J-S., McCormack, M. K., Cella, D., Fritz, N. E., Paulsen, J. S. & Carlozzi, N. E., Jan 1 2019, In : Journal of Huntington's Disease. 8, 2, p. 221-232 12 p.

Research output: Contribution to journalArticle

Huntington Disease
Quality of Life
Executive Function
Anger
Upper Extremity