Jin-Shei Lai

  • 7293 Citations
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Personal profile

Research Interests

Jin-Shei Lai, Ph.D., OTR/L., is a registered occupational therapist and a trained psychometrician. She has been a member of the Lurie Comprehensive Cancer Center, the Children’s Oncology Group (COG), Proton Collaborative Group and the Pediatric Brain Tumor Consortium (PBTC). Dr. Lai has significant research experiences in outcome measurement, quality of life, symptom management and late effect due to the illness and/or its treatment in chronic illness for both pediatric and adult populations. She is the lead developer of the pediatric Functional Assessment of Chronic Illness scales, including Childhood Brain Tumor Survivor, Fatigue, Anorexia and Cachexia, and Cognition. Dr. Lai is recognized as an expert in both outcomes measurement and Item Response Theory (IRT). In particular, she has been working on developing and validating item banks related to health-related quality of life for people with chronic illness since 2000, including domains of fatigue, physical function, pain, emotional distress, psychosocial impacts from cancer experiences, cognition and social function. She has been integral in the development of item banks using IRT to measure perceived cognitive function and fatigue for both children and adults with and without chronic conditions.

Education/Academic qualification

PhD, University of Illinois - Chicago

… → 1996


  • Brain and Nervous System
  • Outcome Measures
  • Patient-Centered Care
  • Patient-Reported Outcomes
  • Physical activity
  • Psychometrics
  • Quality of Life
  • Rehabilitation/Therapy

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Quality of Life Medicine & Life Sciences
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Psychometrics Medicine & Life Sciences
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Statistical Factor Analysis Medicine & Life Sciences

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Grants 2009 2019

Information Systems
Atopic Dermatitis
Atopic Dermatitis
Information Systems
Information Systems
Atopic Dermatitis

Research Output 1996 2019

Development of the PROMIS-based Research Assessment and Clinical Tool-Fatigue (ReACT-F)

Dickinson, K. A., Kelly, D. L., Lai, J-S. & Saligan, L. N., Jan 1 2019, (Accepted/In press) In : Supportive Care in Cancer.

Research output: Contribution to journalArticle

Self Report
Statistical Factor Analysis

Using the Patient-Reported Outcomes Measurement Information System (PROMIS) to measure symptom burden reported by patients with brain tumors

Lai, J-S., Kupst, M. J., Beaumont, J. L., Manley, P. E., Chang, J. H. C., Hartsell, W. F., Kwok, Y., Fisher, A. P. & Goldman, S., Mar 1 2019, In : Pediatric Blood and Cancer. 66, 3, e27526.

Research output: Contribution to journalArticle

Information Systems
Brain Neoplasms
Upper Extremity
2 Citations (Scopus)

A Comprehensive Conceptual Model of the Experience of Chronic Itch in Adults

Silverberg, J. I., Kantor, R. W., Dalal, P., Hickey, C., Shaunfield, S. L., Tegel, K. K., Lai, J-S. & Cella, D., Oct 1 2018, In : American Journal of Clinical Dermatology. 19, 5, p. 759-769 11 p.

Research output: Contribution to journalArticle

Quality of Life
Social Stigma
Affective Symptoms
Self Report
Health Status
1 Citation (Scopus)

Agreement between clinician-rated versus patient-reported outcomes in Huntington disease

Carlozzi, N. E., Boileau, N. R., Perlmutter, J. S., Chou, K. L., Stout, J. C., Paulsen, J. S., McCormack, M. K., Cella, D., Nance, M. A., Lai, J-S. & Dayalu, P., Jun 1 2018, In : Journal of Neurology. 265, 6, p. 1443-1453 11 p.

Research output: Contribution to journalArticle

Huntington Disease
Self Report
Behavioral Research
Analysis of Variance