Grants per year
Personal profile
Research Interests
Jin-Shei Lai, Ph.D., OTR/L., is a registered occupational therapist and a trained psychometrician. She has been a member of the Lurie Comprehensive Cancer Center, the Children’s Oncology Group (COG), Proton Collaborative Group and the Pediatric Brain Tumor Consortium (PBTC). Dr. Lai has significant research experiences in outcome measurement, quality of life, symptom management and late effect due to the illness and/or its treatment in chronic illness for both pediatric and adult populations. She is the lead developer of the pediatric Functional Assessment of Chronic Illness scales, including Childhood Brain Tumor Survivor, Fatigue, Anorexia and Cachexia, and Cognition. Dr. Lai is recognized as an expert in both outcomes measurement and Item Response Theory (IRT). In particular, she has been working on developing and validating item banks related to health-related quality of life for people with chronic illness since 2000, including domains of fatigue, physical function, pain, emotional distress, psychosocial impacts from cancer experiences, cognition and social function. She has been integral in the development of item banks using IRT to measure perceived cognitive function and fatigue for both children and adults with and without chronic conditions.
Expertise related to UN Sustainable Development Goals
In 2015, UN member states agreed to 17 global Sustainable Development Goals (SDGs) to end poverty, protect the planet and ensure prosperity for all. This person’s work contributes towards the following SDG(s):
Education/Academic qualification
Educational Psychology, PhD, University of Illinois at Chicago
… → 1996
Research interests keywords
- Brain and Nervous System
- Outcome Measures
- Patient-Centered Care
- Patient-Reported Outcomes
- Physical activity
- Psychometrics
- Quality of Life
- Rehabilitation/Therapy
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Collaborations and top research areas from the last five years
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Development of a Full Qualification Package for the PROMISnq Short Form v2.0 – Physical Function – Multiple Sclerosis 15a (DDT COA #000123)
Kaiser, K. (PD/PI), Lai, J.-S. (Co-Investigator), Shaunfield, S. (Co-Investigator) & Tang, X. (Co-Investigator)
Critical Path Institute, Food and Drug Administration
2/1/24 → 1/31/25
Project: Research project
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Capturing the complexities of informal caregiver networks: New measures to improve outcomes for informal care partners of people living with Alzheimer’s disease and related dementias (AD/ADRD)
Lai, J.-S. (PD/PI)
University of Michigan, National Institute on Aging
9/1/23 → 8/31/26
Project: Research project
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The ECHO Measurement Core: A Framework and Resourc
Cella, D. (PD/PI), Gershon, R. (Co-PD/PI), Blackwell, C. K. (Co-Investigator), Funk, W. E. (Co-Investigator), Ho, E. H. (Co-Investigator), Hook, J. N. (Co-Investigator), LaForte, E. M. (Co-Investigator), Lai, J.-S. (Co-Investigator), Mansolf, M. A. (Co-Investigator), McDade, T. (Co-Investigator), Sherlock, P. R. (Co-Investigator), Sivan, A. B. (Co-Investigator), Tang, X. (Co-Investigator), Wakschlag, L. S. (Co-Investigator) & Yao, L. (Co-Investigator)
Office of the Director, National Institutes of Health
9/1/23 → 5/31/30
Project: Research project
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Northwestern University Clinical Outcome Assessment Team (NUCOAT)
Cella, D. (PD/PI), Cella, D. (PD/PI), Cella, D. (PD/PI), Flores, A. M. (Co-Investigator), Flores, A. M. (Co-Investigator), Flores, A. M. (Co-Investigator), Greene, G. J. (Co-Investigator), Greene, G. J. (Co-Investigator), Greene, G. J. (Co-Investigator), Lai, J.-S. (Co-Investigator), Lai, J.-S. (Co-Investigator), Lai, J.-S. (Co-Investigator), Liggett, A. (Co-Investigator), Liggett, A. (Co-Investigator), Liggett, A. (Co-Investigator), Nowinski, C. J. (Co-Investigator), Nowinski, C. J. (Co-Investigator), Nowinski, C. J. (Co-Investigator), Peipert, D. (Co-Investigator), Peipert, D. (Co-Investigator), Peipert, D. (Co-Investigator), Phillips, S. M. (Co-Investigator), Phillips, S. M. (Co-Investigator), Phillips, S. M. (Co-Investigator), Shaunfield, S. (Co-Investigator), Shaunfield, S. (Co-Investigator) & Shaunfield, S. (Co-Investigator)
9/1/22 → 8/31/25
Project: Research project
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Preparing a clinical outcomes assessment set for nephrotic syndrome [Prepare-NS]
Peipert, D. (PD/PI), Peipert, D. (PD/PI), Cella, D. (Co-Investigator), Cella, D. (Co-Investigator), Lai, J.-S. (Co-Investigator), Lai, J.-S. (Co-Investigator) & Wadhwani, S. (Co-Investigator)
University of Michigan, Food and Drug Administration
5/1/21 → 4/30/26
Project: Research project
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Assessing the interchangeability of linked scores in multivariable statistical analyses
Mansolf, M., Blackwell, C. K., Cella, D. & Lai, J. S., Apr 2024, In: Quality of Life Research. 33, 4, p. 1121-1131 11 p.Research output: Contribution to journal › Article › peer-review
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Development of the PROMIS pediatric stigma and extension to the PROMIS pediatric stigma: skin item banks
Lai, J. S., Nowinski, C., Rangel, S. M., Batra, S. T., Mueller, K., Chamlin, S., Ustsinovich, V., Cella, D., Mansolf, M. & Paller, A. S., Mar 2024, In: Quality of Life Research. 33, 3, p. 865-873 9 p.Research output: Contribution to journal › Article › peer-review
1 Scopus citations -
Green Space and Internalizing or Externalizing Symptoms among Children
Towe-Goodman, N., McArthur, K. L., Willoughby, M., Swingler, M. M., Wychgram, C., Just, A. C., Kloog, I., Bennett, D. H., Berry, D., Hazlehurst, M. F., James, P., Jimenez, M. P., Lai, J. S., Leve, L. D., Gatzke-Kopp, L., Schweitzer, J. B., Bekelman, T. A., Calub, C., Carnell, S. & Deoni, S. & 8 others, , Apr 10 2024, In: JAMA network open. 7, 4, p. E245742Research output: Contribution to journal › Article › peer-review
Open Access2 Scopus citations -
Health system implementation of the PROMIS Cognitive Function Screener in the Medicare Annual Wellness Visit: framing as abilities versus concerns
Harrison, J. M., Ernecoff, N. C., Lai, J. S., Hanmer, J., Weir, R., Rodriguez, A., Langer, M. M. & Edelen, M. O., Dec 2024, In: Journal of patient-reported outcomes. 8, 1, 43.Research output: Contribution to journal › Article › peer-review
Open Access -
Host factors are associated with vaginal microbiome structure in pregnancy in the ECHO Cohort Consortium
McKee, K., Bassis, C. M., Golob, J., Palazzolo, B., Sen, A., Comstock, S. S., Rosas-Salazar, C., Stanford, J. B., O’Connor, T., Gern, J. E., Paneth, N., Dunlop, A. L., Smith, P. B., Newby, L. K., Adair, L., Jacobson, L. P., Catellier, D., McGrath, M., Douglas, C. & Duggal, P. & 271 others, , Dec 2024, In: Scientific reports. 14, 1, 11798.Research output: Contribution to journal › Article › peer-review
Open Access
Datasets
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Evaluation of PROMIS Cognitive Function Scores and Correlates in a Clinical Sample of Older Adults
Edelen, M. O. (Creator), Harrison, J. M. (Creator), Rodriguez, A. (Creator), Weir, R. (Creator), Lai, J.-S. (Creator), Langer, M. M. (Creator) & Hanmer, J. (Creator), SAGE Journals, 2022
DOI: 10.25384/sage.c.6147328, https://sage.figshare.com/collections/Evaluation_of_PROMIS_Cognitive_Function_Scores_and_Correlates_in_a_Clinical_Sample_of_Older_Adults/6147328
Dataset