Grants per year
Personal profile
Research Interests
Jin-Shei Lai, Ph.D., OTR/L., is a registered occupational therapist and a trained psychometrician. She has been a member of the Lurie Comprehensive Cancer Center, the Children’s Oncology Group (COG), Proton Collaborative Group and the Pediatric Brain Tumor Consortium (PBTC). Dr. Lai has significant research experiences in outcome measurement, quality of life, symptom management and late effect due to the illness and/or its treatment in chronic illness for both pediatric and adult populations. She is the lead developer of the pediatric Functional Assessment of Chronic Illness scales, including Childhood Brain Tumor Survivor, Fatigue, Anorexia and Cachexia, and Cognition. Dr. Lai is recognized as an expert in both outcomes measurement and Item Response Theory (IRT). In particular, she has been working on developing and validating item banks related to health-related quality of life for people with chronic illness since 2000, including domains of fatigue, physical function, pain, emotional distress, psychosocial impacts from cancer experiences, cognition and social function. She has been integral in the development of item banks using IRT to measure perceived cognitive function and fatigue for both children and adults with and without chronic conditions.
Education/Academic qualification
PhD, University of Illinois at Chicago
… → 1996
Research interests
- Brain and Nervous System
- Outcome Measures
- Patient-Centered Care
- Patient-Reported Outcomes
- Physical activity
- Psychometrics
- Quality of Life
- Rehabilitation/Therapy
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Network
Grants
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Qualification Plan Preparation to Support DDT COA #000123 PROMIS Physical Function Short Form for Individuals with Multiple Sclerosis: Development of a Qualification Plan for the PROMIS Short Form v2.1--Physical Function-Multiple Sclerosis 15a (DDT COA #0
Cella, D., Tegel, K. K., Lai, J. & Shaunfield, S. L.
Critical Path Institute, Food and Drug Administration
8/1/20 → 7/31/21
Project: Research project
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Using Information Technology to Improve Outcomes for Children Living with Cancer
Bass, M., Cella, D., Garcia, S. F., Lai, J., Peipert, J. D., Yount, S. & Jensen, S. E.
9/20/19 → 8/31/24
Project: Research project
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NIH Infant and Toddler Toolbox
Bass, M., Blackwell, C. K., Cella, D., Flynn, R., Gershon, R., Kaat, A. J., Kallen, M. A., Lai, J., Krogh-Jespersen, S., Nowinski, C. J., Shaunfield, S. L., Wakschlag, L. S., Waxman, S. R., LaForte, E. M. & Sivan, A. B.
National Institute of Child Health and Human Development
9/20/19 → 1/15/21
Project: Research project
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Northwestern University Clinical Outcome Assessment Team (NUCOAT)
Cella, D., Flores, A. M., Gershon, R., Greene, G. J., Griffith, J. W., Lai, J., Nowinski, C. J., Pandolfino, J. E., Peipert, J. D., Phillips, S. M., Shaunfield, S. L. & Taft, T. N.
9/10/19 → 8/31/24
Project: Research project
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ECHO PRO Research Resource: A Developmentally-based Measurement Science Framework for Assessing Environmental Exposure and Child Health
Bass, M., Blackwell, C. K., Cella, D., Fox, R. S., Funk, W. E., Gershon, R., Graham, A. K., Hook, J. N., Jensen, S. E., Kaat, A. J., Kallen, M. A., Lai, J., Krogh-Jespersen, S., Nowinski, C. J., Roberts, M. Y., Wakschlag, L. S., LaForte, E. M., Sivan, A. B. & Sherlock, P. R.
Office of the Director, National Institutes of Health
9/1/19 → 8/31/23
Project: Research project
Research Output
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Characteristics and impacts of itch in children with inflammatory skin disorders
Fang, M. M., Nowinski, C. J., Lai, J-S., Shaunfield, S. L., Silverberg, J. I., Rangel, S. M., Cella, D. & Paller, A. S., 2020, (Accepted/In press) In: British Journal of Dermatology.Research output: Contribution to journal › Article › peer-review
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Development, Validation, and Interpretation of the PROMIS Itch Questionnaire: A Patient-Reported Outcome Measure for the Quality of Life Impact of Itch
Silverberg, J. I., Lai, J. S., Kantor, R. W., Dalal, P., Hickey, C., Shaunfield, S., Kaiser, K., Correia, H. & Cella, D., May 2020, In: Journal of Investigative Dermatology. 140, 5, p. 986-994.e6Research output: Contribution to journal › Article › peer-review
8 Scopus citations -
Development of a validated short-form of the Childhood Atopic Dermatitis Impact Scale, the CADIS-SF15
Gabes, M., Chamlin, S. L., Lai, J. S., Cella, D., Mancini, A. J. & Apfelbacher, C. J., Aug 1 2020, In: Journal of the European Academy of Dermatology and Venereology. 34, 8, p. 1773-1778 6 p.Research output: Contribution to journal › Article › peer-review
Open Access -
Evaluation of responsiveness and estimation of smallest detectable change and minimal important change scores for the Childhood Atopic Dermatitis Impact Scale
Gabes, M., Chamlin, S. L., Lai, J. S., Cella, D., Mancini, A. J. & Apfelbacher, C. J., Feb 1 2020, In: British Journal of Dermatology. 182, 2, p. 348-354 7 p.Research output: Contribution to journal › Article › peer-review
3 Scopus citations -
Measurement properties of the Patient-Reported Outcomes Information System (PROMIS®) Itch Questionnaire: itch severity assessments in adults with atopic dermatitis*
Silverberg, J. I., Lai, J. S., Patel, K. R., Singam, V., Vakharia, P. P., Chopra, R., Sacotte, R., Kantor, R., Hsu, D. Y. & Cella, D., Nov 1 2020, In: British Journal of Dermatology. 183, 5, p. 891-898 8 p.Research output: Contribution to journal › Article › peer-review
2 Scopus citations