Grants per year
Personal profile
Research Interests
I have a strong interest in medical ethics, especially ethical issues in pediatrics, end-of-life care, research on human subjects, transplantation, children with differences of sex development (DSD) and gender identify nonconformity (GIN), medical and surgical innovation, transplantation and conscientious objection to requested care by health care professionals. My main clinical interests are in pediatric palliative and hospice care, multidisciplinary care of children with DSD/GIN and parent support for difficult decisions under conditions of uncertainty. More recently I have developed interests in the ethics of expensive, innovative treatment for rare diseases and in ethical obligations of health care-related companies to provide care to those without access to it.
Decision making for critically ill children; ethics in the care of children with DSD/GIN; the ethics and economics of medical innovation; ethics and economics of access to expensive medical care
Pediatric palliative care
Certifications and Licenses
| Hospice & Palliative Medicine | |
| Pediatrics |
Training Experience
| 1976 | Internship, Tufts/New England Medical Center |
| 1977 | Residency, The Boston Floating Hospital/Tufts University Medical Center |
| 1979 | Fellowship, University of Pennsylvania |
| 1979 | Residency, Children's Hospital of Philadelphia |
Expertise related to UN Sustainable Development Goals
In 2015, UN member states agreed to 17 global Sustainable Development Goals (SDGs) to end poverty, protect the planet and ensure prosperity for all. This person’s work contributes towards the following SDG(s):
Education/Academic qualification
MD, Medicine, Tufts University School of Medicine
… → 1974
Research interests keywords
- Bioethics
- Palliative Care and Hospice
- Pediatrics
- Social Science
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Collaborations and top research areas from the last five years
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Grants
- 7 Finished
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The Impact of Early Medical Treatment in Transgender Youth
Garofalo, R. (PD/PI), Chen, D. (Co-Investigator), Finlayson, C. A. (Co-Investigator), Frader, J. E. (Co-Investigator), Hidalgo, M. A. (Co-Investigator) & Simons, L. K. (Co-Investigator)
Children's Hospital of LA, National Institute of Child Health and Human Development
8/1/15 → 6/30/20
Project: Research project
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The Impact of Early Medical Treatment in Transgender Youth
Garofalo, R. (PD/PI), Chen, D. (Co-Investigator), Finlayson, C. A. (Co-Investigator), Frader, J. E. (Co-Investigator), Hidalgo, M. A. (Co-Investigator), Leibowitz, S. F. (Co-Investigator) & Simons, L. K. (Co-Investigator)
Children's Hospital of LA, National Institute of Child Health and Human Development
8/1/15 → 6/30/21
Project: Research project
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The Impact of Early Medical Treatment in Transgender Youth
Garofalo, R. (PD/PI), Chen, D. (Co-Investigator), Finlayson, C. A. (Co-Investigator), Frader, J. E. (Co-Investigator), Hidalgo, M. A. (Co-Investigator) & Simons, L. K. (Co-Investigator)
Children's Hospital of LA, National Institute of Child Health and Human Development
8/1/15 → 6/30/20
Project: Research project
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Cancer Care in the PICU: A Study of Social Worker and Chaplain Roles
Michelson, K. N. (PD/PI) & Frader, J. E. (Co-Investigator)
7/1/14 → 6/30/17
Project: Research project
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Improving Communication in the Pediatric Intensive Care Unit for Patients Facing Life-Changing Decisions
Derrington, S. F. (PD/PI), Duerst, R. E. (PD/PI), Frader, J. E. (PD/PI), Michelson, K. N. (PD/PI), Reichek, J. L. (PD/PI), Rowell, E. (PD/PI) & Smith, C. M. (PD/PI)
Patient-Centered Outcomes Research Institute
11/1/13 → 4/30/17
Project: Research project
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Associations of Patient and Parent Characteristics with Parental Decision Regret in the PICU: A Secondary Analysis of the 2015-2017 Navigate Randomized Comparative Trial
Ashworth, R. C., Malone, J. R., Franklin, D., Sorce, L. R., Clayman, M. L., Frader, J., White, D. B. & Michelson, K. N., Sep 1 2024, In: Pediatric Critical Care Medicine. 25, 9, p. 795-803 9 p.Research output: Contribution to journal › Article › peer-review
1 Scopus citations -
Challenges of Families of Patients Hospitalized in the PICU: A Preplanned Secondary Analysis from the Navigate Dataset∗
Tager, J. B., Hinojosa, J. T., Liabraaten, B. M., Balistreri, K. A., Aniciete, D., Charleston, E., Frader, J. E., White, D. B., Clayman, M. L., Sorce, L. R., Davies, W. H., Rothschild, C. B., Michelson, K. N., White, D., Brown, M., Fragen, P., Ciolino, J., Rychlik, K., Persell, S. & Victorson, D. & 23 others, , Feb 1 2024, In: Pediatric Critical Care Medicine. 25, 2, p. 128-138 11 p.Research output: Contribution to journal › Article › peer-review
3 Scopus citations -
Bridge or Destination: Ethical Complexity, Emotional Unrest
Frader, J., Paquette, E., Michelson, K. & Morgan, E., 2023, In: American Journal of Bioethics. 23, 6, p. 44-46 3 p.Research output: Contribution to journal › Comment/debate › peer-review
1 Scopus citations -
Refusals of the Determination of Death by Neurologic Criteria: A Mixed Methods Study of Physician Perspectives on Refusals Cases∗
Paquette, E. D., Ross, L. F., Chavez, J. & Frader, J. E., Aug 1 2023, In: Pediatric Critical Care Medicine. 24, 8, p. 628-635 8 p.Research output: Contribution to journal › Article › peer-review
4 Scopus citations -
Parental Views of Social Worker and Chaplain Involvement in Care and Decision Making for Critically Ill Children with Cancer
Michelson, K. N., Arenson, M., Charleston, E., Clayman, M. L., Brazg, T., Rychlik, K., Rosenberg, A. R. & Frader, J., Sep 2022, In: Children. 9, 9, 1287.Research output: Contribution to journal › Article › peer-review
Open Access2 Scopus citations