Joel E Frader

  • 3168 Citations
1978 …2020

Research output per year

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Personal profile

Research Interests

I have a strong interest in medical ethics, especially ethical issues in pediatrics, end-of-life care, research on human subjects, transplantation, children with differences of sex development (DSD) and gender identify nonconformity (GIN), medical and surgical innovation, transplantation and conscientious objection to requested care by health care professionals. My main clinical interests are in pediatric palliative and hospice care, multidisciplinary care of children with DSD/GIN and parent support for difficult decisions under conditions of uncertainty. More recently I have developed interests in the ethics of expensive, innovative treatment for rare diseases and in ethical obligations of health care-related companies to provide care to those without access to it.

Decision making for critically ill children; ethics in the care of children with DSD/GIN; the ethics and economics of medical innovation; ethics and economics of access to expensive medical care

Pediatric palliative care

Certifications and Licenses

Hospice & Palliative Medicine

Training Experience

1976Internship, Tufts/New England Medical Center
1977Residency, The Boston Floating Hospital/Tufts University Medical Center
1979Fellowship, University of Pennsylvania
1979Residency, Children's Hospital of Philadelphia

Education/Academic qualification

MD, Tufts University School of Medicine

… → 1974

Research interests

  • Bioethics
  • Palliative Care and Hospice
  • Pediatrics
  • Social Science

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Research Output

Beyond the Apnea Test: An Argument to Broaden the Requirement for Consent to the Entire Brain Death Evaluation

Paquette, E., Frader, J. E., Shah, S., C. Tasker, R. & Truog, R., Jun 2 2020, In : American Journal of Bioethics. 20, 6, p. 17-19 3 p.

Research output: Contribution to journalComment/debate

2 Scopus citations

Plus ça change: Renée Fox and the Sociology of Organ Replacement Therapy

Frader, J. E. & Bosk, C. L., Mar 1 2020, In : Hastings Center Report. 50, 2, p. 6-7 2 p.

Research output: Contribution to journalComment/debate

  • Ethical considerations of GnRHa treatment and consent process

    Harris, RM. & Frader, J., 2019, Pubertal Suppression in Transgender Youth. Finlayson, C. (ed.). St. Louis, MO: Elsevier, p. 87-93

    Research output: Chapter in Book/Report/Conference proceedingChapter

    Futility in Rehabilitation

    Spill, G. R., Vente, T., Frader, J. E., Smith, S., Giacino, J., Zafonte, R., Coppard, B., Jensen, G. & Mukherjee, D., Jan 1 2019, In : PM and R.

    Research output: Contribution to journalArticle

    Open Access
    1 Scopus citations

    The Case of Seth: To Treat or Not to Treat

    Harris, R. M. & Frader, J. E., Jul 3 2019, In : American Journal of Bioethics. 19, 7, p. 69-71 3 p.

    Research output: Contribution to journalComment/debate