Grants per year
Personal profile
Research Interests
I have a strong interest in medical ethics, especially ethical issues in pediatrics, end-of-life care, research on human subjects, transplantation, children with differences of sex development (DSD) and gender identify nonconformity (GIN), medical and surgical innovation, transplantation and conscientious objection to requested care by health care professionals. My main clinical interests are in pediatric palliative and hospice care, multidisciplinary care of children with DSD/GIN and parent support for difficult decisions under conditions of uncertainty. More recently I have developed interests in the ethics of expensive, innovative treatment for rare diseases and in ethical obligations of health care-related companies to provide care to those without access to it.
Decision making for critically ill children; ethics in the care of children with DSD/GIN; the ethics and economics of medical innovation; ethics and economics of access to expensive medical care
Pediatric palliative care
Certifications and Licenses
| Hospice & Palliative Medicine | |
| Pediatrics |
Training Experience
| 1976 | Internship, Tufts/New England Medical Center |
| 1977 | Residency, The Boston Floating Hospital/Tufts University Medical Center |
| 1979 | Fellowship, University of Pennsylvania |
| 1979 | Residency, Children's Hospital of Philadelphia |
Education/Academic qualification
MD, Tufts University School of Medicine
… → 1974
Research interests
- Bioethics
- Palliative Care and Hospice
- Pediatrics
- Social Science
Fingerprint Dive into the research topics where Joel E Frader is active. These topic labels come from the works of this person. Together they form a unique fingerprint.
- 10 Similar Profiles
Network
Recent external collaboration on country level. Dive into details by clicking on the dots.
Grants
The Impact of Early Medical Treatment in Transgender Youth
Chen, D., Chen, D., Finlayson, C. A., Finlayson, C. A., Frader, J. E., Frader, J. E., Garofalo, R., Hidalgo, M. A., Hidalgo, M. A., Simons, L. K. & Simons, L. K.
Children's Hospital of LA, National Institute of Child Health and Human Development
8/1/15 → 6/30/20
Project: Research project
The Impact of Early Medical Treatment in Transgender Youth
Chen, D., Finlayson, C. A., Frader, J. E., Garofalo, R., Hidalgo, M. A., Leibowitz, S. F. & Simons, L. K.
Children's Hospital of LA, National Institute of Child Health and Human Development
8/1/15 → 6/30/20
Project: Research project
The Impact of Early Medical Treatment in Transgender Youth
Chen, D., Chen, D., Finlayson, C. A., Finlayson, C. A., Frader, J. E., Frader, J. E., Garofalo, R., Hidalgo, M. A., Hidalgo, M. A., Simons, L. K. & Simons, L. K.
Children's Hospital of LA, National Institute of Child Health and Human Development
8/1/15 → 6/30/20
Project: Research project
Cancer Care in the PICU: A Study of Social Worker and Chaplain Roles
Frader, J. E. & Michelson, K. N.
7/1/14 → 6/30/17
Project: Research project
Research Output
Ethical considerations of GnRHa treatment and consent process
Harris, RM. & Frader, J., 2019, Pubertal Suppression in Transgender Youth. Finlayson, C. (ed.). St. Louis, MO: Elsevier, p. 87-93Research output: Chapter in Book/Report/Conference proceeding › Chapter
Futility in Rehabilitation
Spill, G. R., Vente, T., Frader, J. E., Smith, S., Giacino, J., Zafonte, R., Coppard, B., Jensen, G. & Mukherjee, D., Jan 1 2019, In : PM and R.Research output: Contribution to journal › Article
Open Access
The Case of Seth: To Treat or Not to Treat
Harris, R. M. & Frader, J. E., Jul 3 2019, In : American Journal of Bioethics. 19, 7, p. 69-71 3 p.Research output: Contribution to journal › Comment/debate
A Descriptive Study of Decision-Making Conversations during Pediatric Intensive Care Unit Family Conferences
Smith, M. A., Clayman, M. L., Frader, J., Arenson, M., Haber-Barker, N., Ryan, C., Emanuel, L. & Michelson, K., Sep 2018, In : Journal of palliative medicine. 21, 9, p. 1290-1299 10 p.Research output: Contribution to journal › Article
3
Scopus
citations
Alfie Evans case: How we refer to palliative care
Frader, J. E., Jan 1 2018, In : BMJ (Online). 361, k1895.Research output: Contribution to journal › Letter