Joel E Frader

  • 3018 Citations
1978 …2020
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Personal profile

Research Interests

Decision making for critically ill children; ethics in the care of children with DSD/GIN; the ethics and economics of medical innovation; ethics and economics of access to expensive medical care

I have a strong interest in medical ethics, especially ethical issues in pediatrics, end-of-life care, research on human subjects, transplantation, children with differences of sex development (DSD) and gender identify nonconformity (GIN), medical and surgical innovation, transplantation and conscientious objection to requested care by health care professionals. My main clinical interests are in pediatric palliative and hospice care, multidisciplinary care of children with DSD/GIN and parent support for difficult decisions under conditions of uncertainty. More recently I have developed interests in the ethics of expensive, innovative treatment for rare diseases and in ethical obligations of health care-related companies to provide care to those without access to it.

Pediatric palliative care

Certifications and Licenses

Hospice & Palliative Medicine
Pediatrics

Training Experience

1976Internship, Tufts/New England Medical Center
1977Residency, The Boston Floating Hospital/Tufts University Medical Center
1979Fellowship, University of Pennsylvania
1979Residency, Children's Hospital of Philadelphia

Education/Academic qualification

MD, Tufts University School of Medicine

… → 1974

Keywords

  • Bioethics
  • Palliative Care and Hospice
  • Pediatrics
  • Social Science

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Grants 2012 2020

Research Output 1978 2019

Ethical considerations of GnRHa treatment and consent process

Harris, RM. & Frader, J., 2019, Pubertal Suppression in Transgender Youth. Finlayson, C. (ed.). St. Louis, MO: Elsevier, p. 87-93

Research output: Chapter in Book/Report/Conference proceedingChapter

Futility in Rehabilitation

Spill, G. R., Vente, T., Frader, J. E., Smith, S., Giacino, J., Zafonte, R., Coppard, B., Jensen, G. & Mukherjee, D., Jan 1 2019, In : PM and R.

Research output: Contribution to journalArticle

Open Access
Medical Futility
Rehabilitation
1 Citation (Scopus)

A Descriptive Study of Decision-Making Conversations during Pediatric Intensive Care Unit Family Conferences

Smith, M. A., Clayman, M. L., Frader, J. E., Arenson, M., Haber-Barker, N., Ryan, C., Emanuel, L. L. & Michelson, K. N., Sep 1 2018, In : Journal of palliative medicine. 21, 9, p. 1290-1299 10 p.

Research output: Contribution to journalArticle

Pediatric Intensive Care Units
Decision Making
Tertiary Healthcare
Uncertainty
Observational Studies

Alfie Evans case: How we refer to palliative care

Frader, J. E., Jan 1 2018, In : BMJ (Online). 361, k1895.

Research output: Contribution to journalLetter

Palliative Care

Charlie Gard: how did things go wrong?

Waldman, E. & Frader, J., Jun 2018, In : Current Pediatrics Reports. 6, 2, p. 173-177 5 p.

Research output: Contribution to journalArticle