• 1152 Citations
1997 …2023
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Personal profile

Research Interests

I am interested in ethical issues associated with conducting large-scale genetic research including consenting, data sharing, privacy, return of results, recontact and education of research participants.

Education/Academic qualification

MS, Sarah Lawrence College

… → 1987


  • Bioethics
  • Biomedical Communications
  • Ethics of Research with Human Subjects
  • Genetic Testing/Counseling

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Grants 2007 2023

Medical History Taking
Point-of-Care Systems
Medical Records
Electronic Health Records
National Human Genome Research Institute (U.S.)
Genome-Wide Association Study
Practice Guidelines

Research Output 1997 2019

Enrichment sampling for a multi-site patient survey using electronic health records and census data

Mercaldo, N. D., Brothers, K. B., Carrell, D. S., Clayton, E. W., Connolly, J. J., Holm, I. A., Horowitz, C. R., Jarvik, G. P., Kitchner, T. E., Li, R., McCarty, C. A., McCormick, J. B., McManus, V. D., Myers, M. F., Pankratz, J. J., Shrubsole, M. J., Smith, M. E., Stallings, S. C., Williams, J. L. & Schildcrout, J. S., Mar 1 2019, In : Journal of the American Medical Informatics Association : JAMIA. 26, 3, p. 219-227 9 p.

Research output: Contribution to journalArticle

Electronic Health Records
Hispanic Americans
African Americans

Developing a conceptual, reproducible, rubric-based approach to consent and result disclosure for genetic testing by clinicians with minimal genetics background

Ormond, K. E., Hallquist, M. L. G., Buchanan, A. H., Dondanville, D., Cho, M. K., Smith, M. E., Roche, M., Brothers, K. B., Coughlin, C. R., Hercher, L., Hudgins, L., Jamal, S., Levy, H. P., Raskin, M., Stosic, M., Uhlmann, W., Wain, K. E., Currey, E. & Faucett, W. A., Jul 6 2018, (Accepted/In press) In : Genetics in Medicine. p. 1-9 9 p.

Research output: Contribution to journalArticle

Genetic Testing
Genetic Background
Focus Groups
8 Citations (Scopus)

Ethical considerations related to return of results from genomic medicine projects: The eMERGE network (phase III) experience

Fossey, R., Kochan, D., Winkler, E., Pacyna, J. E., Olson, J., Thibodeau, S., Connolly, J. J., Harr, M., Behr, M. A., Prows, C. A., Cobb, B., Myers, M. F., Leslie, N. D., Namjou-Khales, B., Rasouly, H. M., Wynn, J., Fedotov, A., Chung, W. K., Gharavi, A., Williams, J. L. & 13 othersPais, L., Holm, I., Aufox, S. A., Smith, M. E., Scrol, A., Leppig, K., Jarvik, G. P., Wiesner, G. L., Li, R., Stroud, M., Smoller, J. W., Sharp, R. R. & Kullo, I. J., Mar 1 2018, In : Journal of Personalized Medicine. 8, 1, 2.

Research output: Contribution to journalArticle

Electronic Health Records
Research Ethics Committees
Informed Consent
Electronic Health Records
Health Personnel

Parents’ attitudes toward consent and data sharing in biobanks: A multisite experimental survey

Antommaria, A. H. M., Brothers, K. B., Myers, J. A., Feygin, Y. B., Aufox, S. A., Brilliant, M. H., Conway, P., Fullerton, S. M., Garrison, N. A., Horowitz, C. R., Jarvik, G. P., Li, R., Ludman, E. J., McCarty, C. A., McCormick, J. B., Mercaldo, N. D., Myers, M. F., Sanderson, S. C., Shrubsole, M. J., Schildcrout, J. S. & 4 othersWilliams, J. L., Smith, M. E., Clayton, E. W. & Holm, I. A., Jul 3 2018, In : AJOB Empirical Bioethics. 9, 3, p. 128-142 15 p.

Research output: Contribution to journalArticle

Information Dissemination