Grants per year
Personal profile
Research Interests
I am interested in ethical issues associated with conducting large-scale genetic research including consenting, data sharing, privacy, return of results, recontact and education of research participants.
Education/Academic qualification
MS, Sarah Lawrence College
… → 1987
Keywords
- Bioethics
- Biomedical Communications
- Ethics of Research with Human Subjects
- Genetic Testing/Counseling
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- 11 Similar Profiles
Electronic Health Records
Medicine & Life Sciences
Genomics
Medicine & Life Sciences
Information Dissemination
Medicine & Life Sciences
Genome-Wide Association Study
Medicine & Life Sciences
Pharmacogenetics
Medicine & Life Sciences
Research
Medicine & Life Sciences
Genetic Research
Medicine & Life Sciences
Research Ethics Committees
Medicine & Life Sciences
Network
Recent external collaboration on country level. Dive into details by clicking on the dots.
Grants 2007 2023
Infrastructure: Illinois Precision Medicine Consortium (IPMC)
Ackermann, R. T., Chisholm, R. L., Cristofanilli, M., Greenland, P., Kho, A. N., Ho, J., Simon, M. A., Smith, M. E. & Wehbe, F.
Office of the Director, National Institutes of Health
6/1/18 → 5/31/23
Project: Research project
Precision Medicine
Health Personnel
Organizations
Research
Biomedical Technology
Launching a blood and spinal fluid based biomarker program for SCAs
1/1/18 → 6/30/20
Project: Research project
Spinocerebellar Ataxias
Biomarkers
Natural History
Clinical Trials
Consent Forms
Project 1: African American Cardiovascular pharmacogenetic CONsorTium (ACCOuNT): discovery and translation
Kho, A. N., O'Leary, K. J., Perera, M., Rasmussen-Torvik, L. J. & Smith, M. E.
National Institute on Minority Health and Health Disparities
8/19/16 → 5/31/21
Project: Research project
Pharmacogenetics
African Americans
Precision Medicine
clopidogrel
Medicine
Project 2: African American Cardiovascular pharmacogenetic CONsorTium (ACCOuNT): discovery and translation
Kho, A. N., O'Leary, K. J., Perera, M., Rasmussen-Torvik, L. J. & Smith, M. E.
National Institute on Minority Health and Health Disparities
8/19/16 → 5/31/21
Project: Research project
Pharmacogenetics
African Americans
Precision Medicine
clopidogrel
Medicine
Genomic Medicine at Northwestern: Discovery and Implementation
Aufox, S. A., Chisholm, R. L., George Jr, A. L., Hayes, M. G., Kho, A. N., McNally, E. M., Rasmussen-Torvik, L. J., Roy-Puckelwartz, M. J., Smith, M. E. & Starren, J. B.
National Human Genome Research Institute
9/1/15 → 3/31/20
Project: Research project
Electronic Health Records
Medicine
National Human Genome Research Institute (U.S.)
Genome-Wide Association Study
Practice Guidelines
Research Output 1997 2019
An ancillary genomics system to support the return of pharmacogenomic results
Rasmussen, L. V., Smith, M. E., Almaraz, F., Persell, S. D., Rasmussen-Torvik, L. J., Pacheco, J. A., Chisholm, R. L., Christensen, C., Herr, T. M., Wehbe, F. & Starren, J. B., Feb 19 2019, In : Journal of the American Medical Informatics Association. 26, 4, p. 306-310 5 p.Research output: Contribution to journal › Article
Clinical Decision Support Systems
Electronic Health Records
Pharmacogenetics
Genomics
Information Storage and Retrieval
Characterizing Design Patterns of EHR-Driven Phenotype Extraction Algorithms
Zhong, Y., Rasmussen, L., Deng, Y., Pacheco, J., Smith, M. E., Starren, J. B., Wei, W. Q., Speltz, P., Denny, J., Walton, N., Hripcsak, G., Chute, C. G. & Luo, Y., Jan 21 2019, Proceedings - 2018 IEEE International Conference on Bioinformatics and Biomedicine, BIBM 2018. Schmidt, H., Griol, D., Wang, H., Baumbach, J., Zheng, H., Callejas, Z., Hu, X., Dickerson, J. & Zhang, L. (eds.). Institute of Electrical and Electronics Engineers Inc., p. 1143-1146 4 p. 8621240. (Proceedings - 2018 IEEE International Conference on Bioinformatics and Biomedicine, BIBM 2018).Research output: Chapter in Book/Report/Conference proceeding › Conference contribution
Phenotype
Electronic Health Records
Proxy
Macros
Learning systems
1
Citation
(Scopus)
Developing a conceptual, reproducible, rubric-based approach to consent and result disclosure for genetic testing by clinicians with minimal genetics background
Ormond, K. E., Hallquist, M. L. G., Buchanan, A. H., Dondanville, D., Cho, M. K., Smith, M. E., Roche, M., Brothers, K. B., Coughlin, C. R., Hercher, L., Hudgins, L., Jamal, S., Levy, H. P., Raskin, M., Stosic, M., Uhlmann, W., Wain, K. E., Currey, E. & Faucett, W. A., Mar 1 2019, In : Genetics in Medicine. 21, 3, p. 727-735 9 p.Research output: Contribution to journal › Article
Disclosure
Genetic Testing
Communication
Genetic Background
Focus Groups
1
Citation
(Scopus)
Enrichment sampling for a multi-site patient survey using electronic health records and census data
Mercaldo, N. D., Brothers, K. B., Carrell, D. S., Clayton, E. W., Connolly, J. J., Holm, I. A., Horowitz, C. R., Jarvik, G. P., Kitchner, T. E., Li, R., McCarty, C. A., McCormick, J. B., McManus, V. D., Myers, M. F., Pankratz, J. J., Shrubsole, M. J., Smith, M. E., Stallings, S. C., Williams, J. L. & Schildcrout, J. S., Jan 1 2019, In : Journal of the American Medical Informatics Association. 26, 3, p. 219-227 9 p.Research output: Contribution to journal › Article
Electronic Health Records
Censuses
Hispanic Americans
African Americans
Young Adult
9
Citations
(Scopus)
Ethical considerations related to return of results from genomic medicine projects: The eMERGE network (phase III) experience
Fossey, R., Kochan, D., Winkler, E., Pacyna, J. E., Olson, J., Thibodeau, S., Connolly, J. J., Harr, M., Behr, M. A., Prows, C. A., Cobb, B., Myers, M. F., Leslie, N. D., Namjou-Khales, B., Rasouly, H. M., Wynn, J., Fedotov, A., Chung, W. K., Gharavi, A., Williams, J. L. & 13 others, Mar 1 2018, In : Journal of Personalized Medicine. 8, 1, 2.Research output: Contribution to journal › Article
Electronic Health Records
Research Ethics Committees
Genomics
Medicine
Informed Consent