Personal profile

Research Interests

I am interested in ethical issues associated with conducting large-scale genetic research including consenting, data sharing, privacy, return of results, recontact and education of research participants.

Education / Academic qualification

MS, Sarah Lawrence College

… → 1987

Keywords

  • Biomedical Communications
  • Ethics of Research with Human Subjects
  • Genetic Testing/Counseling
  • Bioethics

Fingerprint Fingerprint is based on mining the text of the persons scientific documents to create an index of weighted terms, which defines the key subjects of each individual researcher.

  • 7 Similar Profiles
Electronic Health Records Medicine & Life Sciences
Genomics Medicine & Life Sciences
Information Dissemination Medicine & Life Sciences
Genome-Wide Association Study Medicine & Life Sciences
Pharmacogenetics Medicine & Life Sciences
Research Medicine & Life Sciences
Genetic Research Medicine & Life Sciences
National Human Genome Research Institute (U.S.) Medicine & Life Sciences

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Research Output 1997 2018

Electronic Health Records
Genomics
Uncertainty
Health Personnel
Interviews
2 Citations

Concordance between Research Sequencing and Clinical Pharmacogenetic Genotyping in the eMERGE-PGx Study

Rasmussen-Torvik, L. J. , Almoguera, B. , Doheny, K. F. , Freimuth, R. R. , Gordon, A. S. , Hakonarson, H. , Hawkins, J. B. , Husami, A. , Ivacic, L. C. , Kullo, I. J. , Linderman, M. D. , Manolio, T. A. , Obeng, A. O. , Pellegrino, R. , Prows, C. A. , Ritchie, M. D. , Smith, M. E. , Stallings, S. C. , Wolf, W. A. , Zhang, K. & 1 others Scott, S. A. Jul 1 2017 In : Journal of Molecular Diagnostics. 19, 4, p. 561-566 6 p.

Research output: Contribution to journalArticle

Pharmacogenetics
Research
Genotype
Alleles
2 Citations

Genome-wide study of resistant hypertension identified from electronic health records

Dumitrescu, L. , Ritchie, M. D. , Denny, J. C. , Rouby, N. M. E. , McDonough, C. W. , Bradford, Y. , Ramirez, A. H. , Bielinski, S. J. , Basford, M. A. , Chai, H. S. , Peissig, P. , Carrell, D. , Pathak, J. , Rasmussen, L. V. , Wang, X. , Pacheco, J. A. , Kho, A. N. , Hayes, M. G. , Matsumoto, M. , Smith, M. E. & 15 others Li, R., Cooper-DeHoff, R. M., Kullo, I. J., Chute, C. G., Chisholm, R. L., Jarvik, G. P., Larson, E. B., Carey, D., McCarty, C. A., Williams, M. S., Roden, D. M., Bottinger, E., Johnson, J. A., De Andrade, M. & Crawford, D. C. Feb 1 2017 In : PLoS ONE. 12, 2, e0171745

Research output: Contribution to journalArticle

Electronic Health Records
hypertension
electronics
Genes
Blood pressure

Healthcare provider education to support integration of pharmacogenomics in practice: The eMERGE Network experience

Rohrer Vitek, C. R., Abul-Husn, N. S., Connolly, J. J., Hartzler, A. L., Kitchner, T., Peterson, J. F., Rasmussen, L. V., Smith, M. E., Stallings, S., Williams, M. S., Wolf, W. A. & Prows, C. A. Jul 1 2017 In : Pharmacogenomics. 18, 10, p. 1013-1025 13 p.

Research output: Contribution to journalReview article

Pharmacogenetics
Health Personnel
Education
Electronic Health Records
Genomics
6 Citations

Public Attitudes toward Consent and Data Sharing in Biobank Research: A Large Multi-site Experimental Survey in the US

Sanderson, S. C. , Brothers, K. B. , Mercaldo, N. D. , Clayton, E. W. , Antommaria, A. H. M. , Aufox, S. A. , Brilliant, M. H. , Campos, D. , Carrell, D. S. , Connolly, J. , Conway, P. , Fullerton, S. M. , Garrison, N. A. , Horowitz, C. R. , Jarvik, G. P. , Kaufman, D. , Kitchner, T. E. , Li, R. , Ludman, E. J. , McCarty, C. A. & 9 others McCormick, J. B., McManus, V. D., Myers, M. F., Scrol, A., Williams, J. L., Shrubsole, M. J., Schildcrout, J. S., Smith, M. E. & Holm, I. A. Mar 2 2017 In : American Journal of Human Genetics. 100, 3, p. 414-427 14 p.

Research output: Contribution to journalArticle

Information Dissemination
Research
Electronic Health Records
Privacy
Genomics