Grants per year
Personal profile
Research Interests
I am interested in ethical issues associated with conducting large-scale genetic research including consenting, data sharing, privacy, return of results, recontact and education of research participants.
Education/Academic qualification
MS, Sarah Lawrence College
… → 1987
Keywords
- Bioethics
- Biomedical Communications
- Ethics of Research with Human Subjects
- Genetic Testing/Counseling
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Electronic Health Records
Medicine & Life Sciences
Genomics
Medicine & Life Sciences
Information Dissemination
Medicine & Life Sciences
Genome-Wide Association Study
Medicine & Life Sciences
Research
Medicine & Life Sciences
Pharmacogenetics
Medicine & Life Sciences
Genetic Research
Medicine & Life Sciences
Research Ethics Committees
Medicine & Life Sciences
Network
Recent external collaboration on country level. Dive into details by clicking on the dots.
Grants 2007 2023
VGER, the Vanderbilt Genome-Electronic Records Project
Vanderbilt University, National Human Genome Research Institute
6/1/18 → 5/31/19
Project: Research project
Medical History Taking
Genome
Point-of-Care Systems
Workflow
Medical Records
Infrastructure: Illinois Precision Medicine Consortium (IPMC)
Ackermann, R. T., Chisholm, R. L., Cristofanilli, M., Greenland, P., Kho, A. N., Ho, J., Simon, M. A., Smith, M. E. & Wehbe, F.
Office of the Director, National Institutes of Health
6/1/18 → 5/31/23
Project: Research project
Precision Medicine
Health Personnel
Organizations
Research
Biomedical Technology
Project 1: African American Cardiovascular pharmacogenetic CONsorTium (ACCOuNT): discovery and translation
Kho, A. N., O'Leary, K. J., Perera, M., Rasmussen-Torvik, L. J. & Smith, M. E.
National Institute on Minority Health and Health Disparities
8/19/16 → 5/31/21
Project: Research project
Pharmacogenetics
African Americans
Precision Medicine
clopidogrel
Medicine
Project 2: African American Cardiovascular pharmacogenetic CONsorTium (ACCOuNT): discovery and translation
Kho, A. N., O'Leary, K. J., Perera, M., Rasmussen-Torvik, L. J. & Smith, M. E.
National Institute on Minority Health and Health Disparities
8/19/16 → 5/31/21
Project: Research project
Pharmacogenetics
African Americans
Precision Medicine
clopidogrel
Medicine
Genomic Medicine at Northwestern: Discovery and Implementation
Aufox, S. A., Chisholm, R. L., George Jr, A. L., Hayes, M. G., Kho, A. N., McNally, E. M., Rasmussen-Torvik, L. J., Roy-Puckelwartz, M. J., Smith, M. E. & Starren, J. B.
National Human Genome Research Institute
9/1/15 → 5/31/19
Project: Research project
Electronic Health Records
Medicine
National Human Genome Research Institute (U.S.)
Genome-Wide Association Study
Practice Guidelines
Research Output 1997 2019
Enrichment sampling for a multi-site patient survey using electronic health records and census data
Mercaldo, N. D., Brothers, K. B., Carrell, D. S., Clayton, E. W., Connolly, J. J., Holm, I. A., Horowitz, C. R., Jarvik, G. P., Kitchner, T. E., Li, R., McCarty, C. A., McCormick, J. B., McManus, V. D., Myers, M. F., Pankratz, J. J., Shrubsole, M. J., Smith, M. E., Stallings, S. C., Williams, J. L. & Schildcrout, J. S., Mar 1 2019, In : Journal of the American Medical Informatics Association : JAMIA. 26, 3, p. 219-227 9 p.Research output: Contribution to journal › Article
Electronic Health Records
Censuses
Hispanic Americans
African Americans
Population
Developing a conceptual, reproducible, rubric-based approach to consent and result disclosure for genetic testing by clinicians with minimal genetics background
Ormond, K. E., Hallquist, M. L. G., Buchanan, A. H., Dondanville, D., Cho, M. K., Smith, M. E., Roche, M., Brothers, K. B., Coughlin, C. R., Hercher, L., Hudgins, L., Jamal, S., Levy, H. P., Raskin, M., Stosic, M., Uhlmann, W., Wain, K. E., Currey, E. & Faucett, W. A., Jul 6 2018, (Accepted/In press) In : Genetics in Medicine. p. 1-9 9 p.Research output: Contribution to journal › Article
Disclosure
Genetic Testing
Communication
Genetic Background
Focus Groups
8
Citations
(Scopus)
Ethical considerations related to return of results from genomic medicine projects: The eMERGE network (phase III) experience
Fossey, R., Kochan, D., Winkler, E., Pacyna, J. E., Olson, J., Thibodeau, S., Connolly, J. J., Harr, M., Behr, M. A., Prows, C. A., Cobb, B., Myers, M. F., Leslie, N. D., Namjou-Khales, B., Rasouly, H. M., Wynn, J., Fedotov, A., Chung, W. K., Gharavi, A., Williams, J. L. & 13 others, Mar 1 2018, In : Journal of Personalized Medicine. 8, 1, 2.Research output: Contribution to journal › Article
Electronic Health Records
Research Ethics Committees
Genomics
Medicine
Informed Consent
Great expectations: patient perspectives and anticipated utility of non-diagnostic genomic-sequencing results
Hylind, R., Smith, M. E., Rasmussen-Torvik, L. J. & Aufox, S. A., Jan 1 2018, In : Journal of Community Genetics. 9, 1, p. 19-26 8 p.Research output: Contribution to journal › Article
Electronic Health Records
Genomics
Uncertainty
Health Personnel
Interviews
Parents’ attitudes toward consent and data sharing in biobanks: A multisite experimental survey
Antommaria, A. H. M., Brothers, K. B., Myers, J. A., Feygin, Y. B., Aufox, S. A., Brilliant, M. H., Conway, P., Fullerton, S. M., Garrison, N. A., Horowitz, C. R., Jarvik, G. P., Li, R., Ludman, E. J., McCarty, C. A., McCormick, J. B., Mercaldo, N. D., Myers, M. F., Sanderson, S. C., Shrubsole, M. J., Schildcrout, J. S. & 4 others, Jul 3 2018, In : AJOB Empirical Bioethics. 9, 3, p. 128-142 15 p.Research output: Contribution to journal › Article
Information Dissemination
parents
Parents
Privacy
scenario