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Maureen E Smith

  • 1101 Citations
1997 …2023
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Personal profile

Research Interests

I am interested in ethical issues associated with conducting large-scale genetic research including consenting, data sharing, privacy, return of results, recontact and education of research participants.

Education/Academic qualification

MS, Sarah Lawrence College

… → 1987

Keywords

  • Bioethics
  • Biomedical Communications
  • Ethics of Research with Human Subjects
  • Genetic Testing/Counseling

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  • 11 Similar Profiles
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Pharmacogenetics Medicine & Life Sciences
Genetic Research Medicine & Life Sciences
Research Ethics Committees Medicine & Life Sciences

Network Recent external collaboration on country level. Dive into details by clicking on the dots.

Grants 2007 2023

VGER, the Vanderbilt Genome-Electronic Records Project

Smith, M. E. & Wehbe, F.

Vanderbilt University, National Human Genome Research Institute

6/1/18 → 5/31/19

Project: Research project

Medical History Taking
Genome
Point-of-Care Systems
Workflow
Medical Records

Infrastructure: Illinois Precision Medicine Consortium (IPMC)

Ackermann, R. T., Chisholm, R. L., Cristofanilli, M., Greenland, P., Kho, A. N., Ho, J., Simon, M. A., Smith, M. E. & Wehbe, F.

Office of the Director, National Institutes of Health

6/1/18 → 5/31/23

Project: Research project

Precision Medicine
Health Personnel
Organizations
Research
Biomedical Technology

Launching a blood and spinal fluid based biomarker program for SCAs

Opal, P. & Smith, M. E.

National Ataxia Foundation

1/1/18 → 12/31/18

Project: Research project

Spinocerebellar Ataxias
Biomarkers
Natural History
Clinical Trials
Consent Forms

Project 1: African American Cardiovascular pharmacogenetic CONsorTium (ACCOuNT): discovery and translation

Kho, A. N., O'Leary, K. J., Perera, M., Rasmussen-Torvik, L. J. & Smith, M. E.

National Institute on Minority Health and Health Disparities

8/19/16 → 5/31/21

Project: Research project

Pharmacogenetics
African Americans
Precision Medicine
clopidogrel
Medicine

Project 2: African American Cardiovascular pharmacogenetic CONsorTium (ACCOuNT): discovery and translation

Kho, A. N., O'Leary, K. J., Perera, M., Rasmussen-Torvik, L. J. & Smith, M. E.

National Institute on Minority Health and Health Disparities

8/19/16 → 5/31/21

Project: Research project

Pharmacogenetics
African Americans
Precision Medicine
clopidogrel
Medicine

Research Output 1997 2018

Developing a conceptual, reproducible, rubric-based approach to consent and result disclosure for genetic testing by clinicians with minimal genetics background

Ormond, K. E., Hallquist, M. L. G., Buchanan, A. H., Dondanville, D., Cho, M. K., Smith, M. E., Roche, M., Brothers, K. B., Coughlin, C. R., Hercher, L., Hudgins, L., Jamal, S., Levy, H. P., Raskin, M., Stosic, M., Uhlmann, W., Wain, K. E., Currey, E. & Faucett, W. A., Jul 6 2018, (Accepted/In press) In : Genetics in Medicine. p. 1-9 9 p.

Research output: Contribution to journal › Article

Disclosure
Genetic Testing
Communication
Genetic Background
Focus Groups
6 Citations

Ethical considerations related to return of results from genomic medicine projects: The eMERGE network (phase III) experience

Fossey, R., Kochan, D., Winkler, E., Pacyna, J. E., Olson, J., Thibodeau, S., Connolly, J. J., Harr, M., Behr, M. A., Prows, C. A., Cobb, B., Myers, M. F., Leslie, N. D., Namjou-Khales, B., Rasouly, H. M., Wynn, J., Fedotov, A., Chung, W. K., Gharavi, A., Williams, J. L. & 13 othersPais, L., Holm, I., Aufox, S. A., Smith, M. E., Scrol, A., Leppig, K., Jarvik, G. P., Wiesner, G. L., Li, R., Stroud, M., Smoller, J. W., Sharp, R. R. & Kullo, I. J., Mar 1 2018, In : Journal of Personalized Medicine. 8, 1, 2.

Research output: Contribution to journal › Article

Electronic Health Records
Research Ethics Committees
Genomics
Medicine
Informed Consent

Great expectations: patient perspectives and anticipated utility of non-diagnostic genomic-sequencing results

Hylind, R., Smith, M. E., Rasmussen-Torvik, L. J. & Aufox, S. A., Jan 1 2018, In : Journal of Community Genetics. 9, 1, p. 19-26 8 p.

Research output: Contribution to journal › Article

Electronic Health Records
Genomics
Uncertainty
Health Personnel
Interviews

Parents’ attitudes toward consent and data sharing in biobanks: A multisite experimental survey

Antommaria, A. H. M., Brothers, K. B., Myers, J. A., Feygin, Y. B., Aufox, S. A., Brilliant, M. H., Conway, P., Fullerton, S. M., Garrison, N. A., Horowitz, C. R., Jarvik, G. P., Li, R., Ludman, E. J., McCarty, C. A., McCormick, J. B., Mercaldo, N. D., Myers, M. F., Sanderson, S. C., Shrubsole, M. J., Schildcrout, J. S. & 4 othersWilliams, J. L., Smith, M. E., Clayton, E. W. & Holm, I. A., Jul 3 2018, In : AJOB Empirical Bioethics. 9, 3, p. 128-142 15 p.

Research output: Contribution to journal › Article

Information Dissemination
parents
Parents
Privacy
scenario
4 Citations

Concordance between Research Sequencing and Clinical Pharmacogenetic Genotyping in the eMERGE-PGx Study

Rasmussen-Torvik, L. J., Almoguera, B., Doheny, K. F., Freimuth, R. R., Gordon, A. S., Hakonarson, H., Hawkins, J. B., Husami, A., Ivacic, L. C., Kullo, I. J., Linderman, M. D., Manolio, T. A., Obeng, A. O., Pellegrino, R., Prows, C. A., Ritchie, M. D., Smith, M. E., Stallings, S. C., Wolf, W. A., Zhang, K. & 1 othersScott, S. A., Jul 1 2017, In : Journal of Molecular Diagnostics. 19, 4, p. 561-566 6 p.

Research output: Contribution to journal › Article

Pharmacogenetics
Research
Genotype
Alleles