Grants per year
Personal profile
Research Interests
I am interested in ethical issues associated with conducting large-scale genetic research including consenting, data sharing, privacy, return of results, recontact and education of research participants.
Education/Academic qualification
MS, Sarah Lawrence College
… → 1987
Research interests
- Bioethics
- Biomedical Communications
- Ethics of Research with Human Subjects
- Genetic Testing/Counseling
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Dive into the research topics where Maureen E Smith is active. These topic labels come from the works of this person. Together they form a unique fingerprint.
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Network
Recent external collaboration on country/territory level. Dive into details by clicking on the dots or
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Northwestern Genomic Risk Assessment and Management Program
Chisholm, R. L., McNally, E. M., Rasmussen-Torvik, L. J., Gordon, A. S., Kho, A. N., Luo, Y., Perera, M., Roy-Puckelwartz, M. J., Scherr, C. E. L., Scholtens, D. M., Smith, M. E., Starren, J. B., Walunas, T. L., Wehbe, F., Aufox, S. A. & Hoell, C.
National Human Genome Research Institute
7/1/20 → 4/30/25
Project: Research project
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Genetic Analysis of Scleroderma Patients
Roy-Puckelwartz, M. J., Smith, M. E. & Varga, J.
5/22/19 → 5/21/23
Project: Research project
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Infrastructure: Illinois Precision Medicine Consortium (IPMC)
Greenland, P., Ackermann, R. T., Chisholm, R. L., Cristofanilli, M., Ho, J., Kho, A. N., Simon, M. A., Smith, M. E. & Wehbe, F.
Office of the Director, National Institutes of Health
6/1/18 → 5/31/23
Project: Research project
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VGER, the Vanderbilt Genome-Electronic Records Project
Smith, M. E. & Wehbe, F.
Vanderbilt University, National Human Genome Research Institute
6/1/18 → 3/31/20
Project: Research project
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Launching a blood and spinal fluid based biomarker program for SCAs
1/1/18 → 12/31/20
Project: Research project
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Communicating With Diverse Patients About Participating in a Biobank: A Randomized Multisite Study Comparing Electronic and Face-to-Face Informed Consent Processes
Simon, C. M., Wang, K., Shinkunas, L. A., Stein, D. T., Meissner, P., Smith, M., Pentz, R. & Klein, D. W., Feb 2022, In: Journal of Empirical Research on Human Research Ethics. 17, 1-2, p. 144-166 23 p.Research output: Contribution to journal › Article › peer-review
1 Scopus citations -
Do research participants share genomic screening results with family members?
Wynn, J., Milo Rasouly, H., Vasquez-Loarte, T., Saami, A. M., Weiss, R., Ziniel, S. I., Appelbaum, P. S., Wright Clayton, E., Christensen, K. D., Fasel, D., Green, R. C., Hain, H. S., Harr, M., Hoell, C., Kullo, I. J., Leppig, K. A., Myers, M. F., Pacyna, J. E., Perez, E. F., Prows, C. A., & 10 others, Apr 2022, In: Journal of Genetic Counseling. 31, 2, p. 447-458 12 p.Research output: Contribution to journal › Article › peer-review
2 Scopus citations -
Integrating clinical genetics in cardiology: Current practices and recommendations for education
Scherr, C. L., Kalke, K., Ramesh, S., Fakhari, H., Dellefave-Castillo, L. M., Smith, M. E., Kalny, C., McNally, E. M. & Rasmussen-Torvik, L. J., May 2022, In: Genetics in Medicine. 24, 5, p. 1054-1061 8 p.Research output: Contribution to journal › Article › peer-review
Open Access -
Practitioners’ Confidence and Desires for Education in Cardiovascular and Sudden Cardiac Death Genetics
Lopez Santibanez Jacome, L., Dellefave-Castillo, L. M., Wicklund, C. A., Scherr, C. L., Duquette, D., Webster, G., Smith, M. E., Kalke, K., Gordon, A. S., De Berg, K., McNally, E. M. & Rasmussen-Torvik, L. J., Apr 5 2022, In: Journal of the American Heart Association. 11, 7, e023763.Research output: Contribution to journal › Article › peer-review
Open Access -
The reckoning: The return of genomic results to 1444 participants across the eMERGE3 Network
Leppig, K. A., Kulchak Rahm, A., Appelbaum, P., Aufox, S., Bland, S. T., Buchanan, A., Christensen, K. D., Chung, W. K., Clayton, E. W., Crosslin, D., Denny, J., DeVange, S., Gordon, A., Green, R. C., Hakonarson, H., Harr, M. H., Henrikson, N., Hoell, C., Holm, I. A., Kullo, I. J., & 25 others, May 2022, In: Genetics in Medicine. 24, 5, p. 1130-1138 9 p.Research output: Contribution to journal › Article › peer-review
1 Scopus citations