• 1383 Citations
1997 …2023
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Personal profile

Research Interests

I am interested in ethical issues associated with conducting large-scale genetic research including consenting, data sharing, privacy, return of results, recontact and education of research participants.

Education/Academic qualification

MS, Sarah Lawrence College

… → 1987

Research interests

  • Bioethics
  • Biomedical Communications
  • Ethics of Research with Human Subjects
  • Genetic Testing/Counseling

Fingerprint Dive into the research topics where Maureen E Smith is active. These topic labels come from the works of this person. Together they form a unique fingerprint.

  • 13 Similar Profiles
Electronic Health Records Medicine & Life Sciences
Genomics Medicine & Life Sciences
Information Dissemination Medicine & Life Sciences
Genome-Wide Association Study Medicine & Life Sciences
Pharmacogenetics Medicine & Life Sciences
Research Medicine & Life Sciences
Genetic Research Medicine & Life Sciences
Clinical Decision Support Systems Medicine & Life Sciences

Network Recent external collaboration on country level. Dive into details by clicking on the dots.

Grants 2007 2023

Spinocerebellar Ataxias
Natural History
Clinical Trials
Consent Forms
Electronic Health Records
National Human Genome Research Institute (U.S.)
Genome-Wide Association Study
Practice Guidelines

Research Output 1997 2019

2 Citations (Scopus)

An ancillary genomics system to support the return of pharmacogenomic results

Rasmussen, L. V., Smith, M. E., Almaraz, F., Persell, S. D., Rasmussen-Torvik, L. J., Pacheco, J. A., Chisholm, R. L., Christensen, C., Herr, T. M., Wehbe, F. & Starren, J. B., Feb 19 2019, In : Journal of the American Medical Informatics Association. 26, 4, p. 306-310 5 p.

Research output: Contribution to journalArticle

Clinical Decision Support Systems
Electronic Health Records
Information Storage and Retrieval

Characterizing Design Patterns of EHR-Driven Phenotype Extraction Algorithms

Zhong, Y., Rasmussen, L., Deng, Y., Pacheco, J., Smith, M. E., Starren, J. B., Wei, W. Q., Speltz, P., Denny, J., Walton, N., Hripcsak, G., Chute, C. G. & Luo, Y., Jan 21 2019, Proceedings - 2018 IEEE International Conference on Bioinformatics and Biomedicine, BIBM 2018. Schmidt, H., Griol, D., Wang, H., Baumbach, J., Zheng, H., Callejas, Z., Hu, X., Dickerson, J. & Zhang, L. (eds.). Institute of Electrical and Electronics Engineers Inc., p. 1143-1146 4 p. 8621240. (Proceedings - 2018 IEEE International Conference on Bioinformatics and Biomedicine, BIBM 2018).

Research output: Chapter in Book/Report/Conference proceedingConference contribution

Electronic Health Records
Learning systems
3 Citations (Scopus)

Developing a conceptual, reproducible, rubric-based approach to consent and result disclosure for genetic testing by clinicians with minimal genetics background

Ormond, K. E., Hallquist, M. L. G., Buchanan, A. H., Dondanville, D., Cho, M. K., Smith, M., Roche, M., Brothers, K. B., Coughlin, C. R., Hercher, L., Hudgins, L., Jamal, S., Levy, H. P., Raskin, M., Stosic, M., Uhlmann, W., Wain, K. E., Currey, E. & Faucett, W. A., Mar 1 2019, In : Genetics in Medicine. 21, 3, p. 727-735 9 p.

Research output: Contribution to journalArticle

Genetic Testing
Genetic Background
Focus Groups
1 Citation (Scopus)

Enrichment sampling for a multi-site patient survey using electronic health records and census data

Mercaldo, N. D., Brothers, K. B., Carrell, D. S., Clayton, E. W., Connolly, J. J., Holm, I. A., Horowitz, C. R., Jarvik, G. P., Kitchner, T. E., Li, R., McCarty, C. A., McCormick, J. B., McManus, V. D., Myers, M. F., Pankratz, J. J., Shrubsole, M. J., Smith, M. E., Stallings, S. C., Williams, J. L. & Schildcrout, J. S., Jan 1 2019, In : Journal of the American Medical Informatics Association. 26, 3, p. 219-227 9 p.

Research output: Contribution to journalArticle

Electronic Health Records
Hispanic Americans
African Americans
Young Adult
2 Citations (Scopus)

Harmonizing Clinical Sequencing and Interpretation for the eMERGE III Network

the eMERGE Consortium, Sep 5 2019, In : American Journal of Human Genetics. 105, 3, p. 588-605 18 p.

Research output: Contribution to journalArticle

Genetic Testing
Clinical Decision Support Systems
Precision Medicine
Gene Targeting
Information Dissemination