Robert H Listernick

Personal profile

Research Interests

I am a general academic pediatrician in the Department of Pediatrics.

I study the natural history and treatment of optic pathway tumors in children who have neurofibromatosis-1. My clinic is a site of the Department of Defense Neurofibromatosis Clinical Trials Consortium which conducts clinical trials on individuals with NF-1, NF-2 and schwannomatosis. I am very involved in the education program of the Department of Pediatrics

My main clinical focuses are: 1) The care and management of children with Neurofibromatosis-1 2) Consultative pediatrics for difficult diagnostic problems 3) The management of hospitalized children

Certifications and Licenses

Pediatrics

Training Experience

1982	Residency, Northwestern University, McGaw Medical Center (Children’s Memorial Hospital)

Education/Academic qualification

MD, University of Pennsylvania

… → 1979

Research interests

Neurofibromatosis

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4 Similar Profiles

Neurofibromatosis 1 Medicine & Life Sciences

Optic Nerve Glioma Medicine & Life Sciences

Plexiform Neurofibroma Medicine & Life Sciences

Neoplasms Medicine & Life Sciences

Neurofibromatoses Medicine & Life Sciences

Differential Diagnosis Medicine & Life Sciences

Preschool Children Medicine & Life Sciences

Glioma Medicine & Life Sciences

Network Recent external collaboration on country level. Dive into details by clicking on the dots.

Grants 2014 2020

1 Active
2 Finished

Developing Evidence-Based Criteria for Initiating Treatment for NF1-OPG

Listernick, R. H. & Pillay Smiley, N.

Children's Tumor Foundation

9/1/15 → 8/31/20

Project: Research project

A Study of INFUSE Bone Graft (recombinant human Bone Morphogenetic Protein-2/absorbable collagen sponge) in the treatment of Tibial Pseudarthrosis in Neurofibromatosis 1 (NF1)

Goldman, S., Janicki, J. A., King, E., Listernick, R. H. & Sarwark, J. F.

University of Alabama at Birmingham, Department of Defense

5/15/16 → 5/14/18

Project: Research project

Development of Patient Reported Outcomes System for Children and Young Adults with pNF Using Mixed Method Approach

Charrow, J. & Listernick, R. H.

Northwestern University, Johns Hopkins University

2/1/14 → 1/31/16

Project: Research project

Research Output 1983 2019

3124 Citations
63 Article
12 Letter
8 Comment/debate
6 Review article
3 More
- 2 Chapter
- 1 Editorial

Correction to: Expanding the clinical phenotype of individuals with a 3-bp in-frame deletion of the NF1 gene (c.2970_2972del): an update of genotype–phenotype correlation (Genetics in Medicine, (2018), 10.1038/s41436-018-0269-0)

Koczkowska, M., Callens, T., Gomes, A., Sharp, A., Chen, Y., Hicks, A. D., Aylsworth, A. S., Azizi, A. A., Basel, D. G., Bellus, G., Bird, L. M., Blazo, M. A., Burke, L. W., Cannon, A., Collins, F., DeFilippo, C., Denayer, E., Digilio, M. C., Dills, S. K., Dosa, L. & 50 others, Greenwood, R. S., Griffis, C., Gupta, P., Hachen, R. K., Hernández-Chico, C., Janssens, S., Jones, K. J., Jordan, J. T., Kannu, P., Korf, B. R., Lewis, A. M., Listernick, R. H., Lonardo, F., Mahoney, M. J., Ojeda, M. M., McDonald, M. T., McDougall, C., Mendelsohn, N., Miller, D. T., Mori, M., Oostenbrink, R., Perreault, S., Pierpont, M. E., Piscopo, C., Pond, D. A., Randolph, L. M., Rauen, K. A., Rednam, S., Rutledge, S. L., Saletti, V., Schaefer, G. B., Schorry, E. K., Scott, D. A., Shugar, A., Siqveland, E., Starr, L. J., Syed, A., Trapane, P. L., Ullrich, N. J., Wakefield, E. G., Walsh, L. E., Wangler, M. F., Zackai, E., Claes, K. B. M., Wimmer, K., van Minkelen, R., De Luca, A., Martin, Y., Legius, E. & Messiaen, L. M., Mar 1 2019, In : Genetics in Medicine. 21, 3, p. 764-765 2 p.

Research output: Contribution to journal › Comment/debate

Gene Deletion

Medicine

Phenotype

2 Citations (Scopus)

Expanding the clinical phenotype of individuals with a 3-bp in-frame deletion of the NF1 gene (c.2970_2972del): an update of genotype–phenotype correlation

Koczkowska, M., Callens, T., Gomes, A., Sharp, A., Chen, Y., Hicks, A. D., Aylsworth, A. S., Azizi, A. A., Basel, D. G., Bellus, G., Bird, L. M., Blazo, M. A., Burke, L. W., Cannon, A., Collins, F., DeFilippo, C., Denayer, E., Digilio, M. C., Dills, S. K., Dosa, L. & 50 others, Greenwood, R. S., Griffis, C., Gupta, P., Hachen, R. K., Hernández-Chico, C., Janssens, S., Jones, K. J., Jordan, J. T., Kannu, P., Korf, B. R., Lewis, A. M., Listernick, R. H., Lonardo, F., Mahoney, M. J., Ojeda, M. M., McDonald, M. T., McDougall, C., Mendelsohn, N., Miller, D. T., Mori, M., Oostenbrink, R., Perreault, S., Pierpont, M. E., Piscopo, C., Pond, D. A., Randolph, L. M., Rauen, K. A., Rednam, S., Rutledge, S. L., Saletti, V., Schaefer, G. B., Schorry, E. K., Scott, D. A., Shugar, A., Siqveland, E., Starr, L. J., Syed, A., Trapane, P. L., Ullrich, N. J., Wakefield, E. G., Walsh, L. E., Wangler, M. F., Zackai, E., Claes, K. B. M., Wimmer, K., van Minkelen, R., De Luca, A., Martin, Y., Legius, E. & Messiaen, L. M., Apr 1 2019, In : Genetics in Medicine. 21, 4, p. 867-876 10 p.

Research output: Contribution to journal › Article

Neurofibromatosis 1 Genes

Neurofibromatosis 1

Phenotype

Neurofibroma

Skin

1 Citation (Scopus)

Patient Reported Outcomes Measurement Information System and Quality of Life in Neurological Disorders Measurement System to Evaluate Quality of Life for Children and Adolescents with Neurofibromatosis Type 1 Associated Plexiform Neurofibroma

Lai, J-S., Jensen, S. E., Charrow, J. & Listernick, R. H., Mar 1 2019, In : Journal of Pediatrics. 206, p. 190-196 7 p.

Research output: Contribution to journal › Article

Plexiform Neurofibroma

Neurofibromatosis 1

Nervous System Diseases

Information Systems

Quality of Life

2016 Children's Tumor Foundation conference on neurofibromatosis type 1, neurofibromatosis type 2, and schwannomatosis

Fisher, M. J., Belzberg, A. J., de Blank, P., De Raedt, T., Elefteriou, F., Ferner, R. E., Giovannini, M., Harris, G. J., Kalamarides, M., Karajannis, M. A., Kim, A. R., Lázaro, C., Le, L. Q., Li, W., Listernick, R. H., Martin, S., Morrison, H., Pasmant, E., Ratner, N., Schorry, E. & 7 others, Ullrich, N. J., Viskochil, D., Weiss, B., Widemann, B. C., Zhu, Y., Bakker, A. & Serra, E., May 1 2018, In : American Journal of Medical Genetics, Part A. 176, 5, p. 1258-1269 12 p.

Research output: Contribution to journal › Article

Neurofibromatosis 2

Neurofibromatosis 1

Neurofibromatoses

Neurilemmoma

Plexiform Neurofibroma

Lifespan Development: Symptoms Experienced by Individuals with Neurofibromatosis Type 1 Associated Plexiform Neurofibromas from Childhood into Adulthood

Jensen, S. E., Patel, Z. S., Listernick, R. H., Charrow, J. & Lai, J-S., Jan 1 2018, (Accepted/In press) In : Journal of Clinical Psychology in Medical Settings. 26, 3, p. 259-270 12 p.

Research output: Contribution to journal › Article

Plexiform Neurofibroma

Neurofibromatosis 1

Age Groups

Pain

Parents