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Sara Lynn Shaunfield

  • 155 Citations
20112020

Research output per year

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Personal profile

Research Interests

Dr. Sara Shaunfield received a PhD in Communication from the University of Kentucky. After which, she joined the Department of Medical Social Sciences in the Feinberg School of Medicine at Northwestern University in 2015. Dr. Shaunfield serves as Lead Qualitative Scientist and core member of the Northwestern University Center on Outcomes Research and Education (NUCORE) where she oversees and conducts qualitative scale development and content validation studies of illness-specific patient-reported outcome measures, symptom indices, patient preference questionnaires, and measures of health-realted quality of life.

Dr. Shaunfield's research focuses on patient and family caregiver outcomes and quality of life, including patient-reported outcome measure development and validation. She is especially interested in explorations of the influence of interpersonal communication on informal family caregiver burden and health outcomes within the contexts of chronic, palliative, and end-of-life care. Dr. Shaunfield has over 11 years experience using qualitative research methods. Her work has been funded by the National Institutes of Health, Critical Path Institute, National Heart Lung and Blood Institute, and Agency for Healthcare Research and Quality.

Education/Academic qualification

PhD, University of Kentucky

… → 2015

MS, University of North Texas

… → 2011

Research interests

  • Aging
  • Alzheimer's Disease
  • Eldercare
  • Geriatrics
  • Health Communications
  • Oncology
  • Outcome Measures
  • Palliative Care and Hospice
  • Patient-Centered Care
  • Qualitative Research Methods
  • Quality of Life

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Grants

NIH Infant and Toddler Toolbox

Bass, M., Blackwell, C. K., Cella, D., Flynn, R., Gershon, R., Kaat, A. J., Kallen, M. A., Lai, J., Krogh-Jespersen, S., Nowinski, C. J., Shaunfield, S. L., Wakschlag, L. S., Waxman, S. R. & LaForte, E. M.

National Institute of Child Health and Human Development

9/20/19 → 9/19/20

Project: Research project

    • Northwestern University Clinical Outcome Assessment Team (NUCOAT)

    Cella, D., Flores, A. M., Gershon, R., Greene, G. J., Griffith, J. W., Lai, J., Nowinski, C. J., Pandolfino, J. E., Peipert, J. D., Phillips, S. M., Shaunfield, S. L. & Taft, T. N.

    Food and Drug Administration

    9/10/19 → 8/31/24

    Project: Research project

    • Development of a context of use and PROMIS Physical Function outcome assessment for patients with sarcopenia

    Butt, Z., Cella, D., Jensen, S. E. & Shaunfield, S. L.

    Food and Drug Administration

    9/1/19 → 8/31/20

    Project: Research project

    • Final Qualification Package for DDT COA #000079: PROMIS Physical Function in Oncology

    Cella, D., Kallen, M. A., Peipert, J. D. & Shaunfield, S. L.

    Food and Drug Administration

    9/1/19 → 8/31/20

    Project: Research project

    • Development of a Patient and Caregiver Reported Instrument of the Access to and Quality of Home Health Care for Children with Medical Complexity

    Kaat, A. J. & Shaunfield, S. L.

    Ann & Robert H. Lurie Children's Hospital of Chicago, Lucile Packard Foundation for Children's Health

    1/1/18 → 12/15/20

    Project: Research project

    • Research Output

    • 155 Citations
    • 27 Article
    • 4 Chapter

    Assessing preferences for rare disease treatment: Qualitative development of the paroxysmal nocturnal hemoglobinuria patient preference questionnaire (PNH-PPQ©)

    Kaiser, K., Yount, S. E., Martens, C. E., Webster, K. A., Shaunfield, S., Sparling, A., Peipert, J. D., Cella, D., Rottinghaus, S. T., Donato, B. M. K., Wells, R. & Tomazos, I., 2020, In : Patient Preference and Adherence. 14, p. 705-715 11 p.

    Research output: Contribution to journal › Article

    Open Access

    • Development, Validation, and Interpretation of the PROMIS Itch Questionnaire: A Patient-Reported Outcome Measure for the Quality of Life Impact of Itch

    Silverberg, J. I., Lai, J. S., Kantor, R. W., Dalal, P., Hickey, C., Shaunfield, S., Kaiser, K., Correia, H. & Cella, D., May 2020, In : Journal of Investigative Dermatology. 140, 5, p. 986-994.e6

    Research output: Contribution to journal › Article

    • 5 Scopus citations

    Does recall period matter? Comparing PROMIS® physical function with no recall, 24-hr recall, and 7-day recall

    Condon, D. M., Chapman, R., Shaunfield, S., Kallen, M. A., Beaumont, J. L., Eek, D., Mitra, D., Benjamin, K. L., McQuarrie, K., Liu, J., Shaw, J. W., Martin Nguyen, A., Keating, K. & Cella, D., Mar 1 2020, In : Quality of Life Research. 29, 3, p. 745-753 9 p.

    Research output: Contribution to journal › Article

    • Neuropathy experienced by colorectal cancer patients receiving oxaliplatin: A qualitative study to validate the Functional Assessment of Cancer Therapy/Gynecologic Oncology Group-Neurotoxicity scale

    Kaiser, K., Lyleroehr, M., Shaunfield, S., Lacson, L., Corona, M., Kircher, S., Nittve, M. & Cella, D., Feb 15 2020, In : World Journal of Gastrointestinal Oncology. 12, 2, p. 205-218 14 p.

    Research output: Contribution to journal › Article

    Open Access
    • 1 Scopus citations

    Further content validation of the 18-item NCCN/FACT Ovarian Symptom Index and its Disease Related Symptom-Physical (DRS-P) subscale for use in advanced ovarian cancer clinical trials

    Shaunfield, S., Jensen, S., Fisher, A. P., Webster, K., Shahabi, S., Ganguli, A. & Cella, D., Dec 19 2019, In : Health and Quality of Life Outcomes. 17, 1, 185.

    Research output: Contribution to journal › Article

    Open Access