• 235 Citations
19962019

Research output per year

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Personal profile

Research Interests

I am interested in understanding the informed consent process around genetic research and predictive genomic testing. Additionally, I am interested in how patients and physicians choose to use information from predictive testing to manage their health. Furthermore, I am interested in understanding what the general patient population understands about genomic testing, genetic/genomic research, and personalized genomic medicine as well as the best way this information can be communicated.

Education/Academic qualification

MS, Sarah Lawrence College

… → 1996

Research interests

  • Genetic Testing/Counseling
  • Genetics
  • Genetics: Medical
  • Genomics
  • Health Communications
  • Medical Decision Making

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Grants

  • Research Output

    Harmonizing Clinical Sequencing and Interpretation for the eMERGE III Network

    the eMERGE Consortium, Sep 5 2019, In : American journal of human genetics. 105, 3, p. 588-605 18 p.

    Research output: Contribution to journalArticle

  • 8 Scopus citations
  • 2 Scopus citations

    Ethical considerations related to return of results from genomic medicine projects: The eMERGE network (phase III) experience

    Fossey, R., Kochan, D., Winkler, E., Pacyna, J. E., Olson, J., Thibodeau, S., Connolly, J. J., Harr, M., Behr, M. A., Prows, C. A., Cobb, B., Myers, M. F., Leslie, N. D., Namjou-Khales, B., Rasouly, H. M., Wynn, J., Fedotov, A., Chung, W. K., Gharavi, A., Williams, J. L. & 13 others, Pais, L., Holm, I., Aufox, S., Smith, M. E., Scrol, A., Leppig, K., Jarvik, G. P., Wiesner, G. L., Li, R., Stroud, M., Smoller, J. W., Sharp, R. R. & Kullo, I. J., Mar 2018, In : Journal of Personalized Medicine. 8, 1, 2.

    Research output: Contribution to journalArticle

  • 16 Scopus citations
  • 4 Scopus citations

    Parents’ attitudes toward consent and data sharing in biobanks: A multisite experimental survey

    Antommaria, A. H. M., Brothers, K. B., Myers, J. A., Feygin, Y. B., Aufox, S. A., Brilliant, M. H., Conway, P., Fullerton, S. M., Garrison, N. A., Horowitz, C. R., Jarvik, G. P., Li, R., Ludman, E. J., McCarty, C. A., McCormick, J. B., Mercaldo, N. D., Myers, M. F., Sanderson, S. C., Shrubsole, M. J., Schildcrout, J. S. & 4 others, Williams, J. L., Smith, M. E., Clayton, E. W. & Holm, I. A., Jul 3 2018, In : AJOB Empirical Bioethics. 9, 3, p. 128-142 15 p.

    Research output: Contribution to journalArticle

  • 2 Scopus citations