Grants per year
Personal profile
Research Interests
I am interested in understanding the informed consent process around genetic research and predictive genomic testing. Additionally, I am interested in how patients and physicians choose to use information from predictive testing to manage their health. Furthermore, I am interested in understanding what the general patient population understands about genomic testing, genetic/genomic research, and personalized genomic medicine as well as the best way this information can be communicated.
Education/Academic qualification
MS, Sarah Lawrence College
… → 1996
Research interests
- Genetic Testing/Counseling
- Genetics
- Genetics: Medical
- Genomics
- Health Communications
- Medical Decision Making
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Grants
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Northwestern Genomic Risk Assessment and Management Program
Aufox, S. A., Chisholm, R. L., Hoell, C., Kho, A. N., Luo, Y., McNally, E. M., Perera, M., Rasmussen-Torvik, L. J., Roy-Puckelwartz, M. J., Scherr, C. E. L., Scholtens, D. M., Smith, M. E., Starren, J. B., Walunas, T. L., Wehbe, F. & Gordon, A. S.
National Human Genome Research Institute
7/1/20 → 4/30/25
Project: Research project
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Health Care Provider responses to receiving unsolicited genomic results
Children's Hospital Boston, National Human Genome Research Institute
7/1/18 → 4/30/21
Project: Research project
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Genomic Medicine at Northwestern: Discovery and Implementation
Aufox, S. A., Chisholm, R. L., George Jr, A. L., Hayes, M. G., Kho, A. N., McNally, E. M., Rasmussen-Torvik, L. J., Roy-Puckelwartz, M. J., Smith, M. E. & Starren, J. B.
National Human Genome Research Institute
9/1/15 → 6/30/20
Project: Research project
Research Output
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Comprehension and personal value of negative non-diagnostic genetic panel testing
Hoell, C., Aufox, S., Nashawaty, N., Myers, M. F. & Smith, M. E., 2020, (Accepted/In press) In: Journal of Genetic Counseling.Research output: Contribution to journal › Article › peer-review
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Participant choices for return of genomic results in the eMERGE Network
Hoell, C., Wynn, J., Rasmussen, L. V., Marsolo, K., Aufox, S. A., Chung, W. K., Connolly, J. J., Freimuth, R. R., Kochan, D., Hakonarson, H., Harr, M., Holm, I. A., Kullo, I. J., Lammers, P. E., Leppig, K. A., Leslie, N. D., Myers, M. F., Sharp, R. R., Smith, M. E. & Prows, C. A., Nov 1 2020, In: Genetics in Medicine. 22, 11, p. 1821-1829 9 p.Research output: Contribution to journal › Article › peer-review
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Returning negative results from large-scale genomic screening: Experiences from the eMERGE III network
Finn, K. S., Lynch, J., Aufox, S., Bland, S., Chung, W., Halverson, C., Hebbring, S., Hoell, C., Holm, I., Jarvik, G., Kullo, I., Leppig, K., Myers, M., Prows, C., Rasouly, H. M., Singh, R., Weisner, G., Williams, J., Wynn, J., Smith, M. & 1 others, , Feb 2021, In: American Journal of Medical Genetics, Part A. 185, 2, p. 508-516 9 p.Research output: Contribution to journal › Article › peer-review
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Returning results in the genomic era: Initial experiences of the emerge network
Wiesner, G. L., Rahm, A. K., Appelbaum, P., Aufox, S., Bland, S. T., Blout, C. L., Christensen, K. D., Chung, W. K., Clayton, E. W., Green, R. C., Harr, M. H., Henrikson, N., Hoell, C., Holm, I. A., Jarvik, G. P., Kullo, I. J., Lammers, P. E., Larson, E. B., Lindor, N. M., Marasa, M. & 12 others, , May 2020, In: Journal of Personalized Medicine. 10, 2, 30.Research output: Contribution to journal › Article › peer-review
Open Access4 Scopus citations -
Understanding the return of genomic sequencing results process: Content review of participant summary letters in the eMERGE research network
Lynch, J. A., Sharp, R. R., Aufox, S. A., Bland, S. T., Blout, C., Bowen, D. J., Buchanan, A. H., Halverson, C., Harr, M., Hebbring, S. J., Henrikson, N., Hoell, C., Holm, I. A., Jarvik, G., Kullo, I. J., Kochan, D. C., Larson, E. B., Lazzeri, A., Leppig, K. A., Madden, J. & 15 others, , May 2020, In: Journal of Personalized Medicine. 10, 2, 38.Research output: Contribution to journal › Article › peer-review
Open Access2 Scopus citations