A Coproduced Symptom Monitoring Dashboard to Increase Shared Decision-Making in Rheumatoid Arthritis

Novel approaches are emerging to assess patient reported outcomes (PRO) to support clinical treatment decision-making. In rheumatoid arthritis (RA), these efforts aim at implementing the Treat to Target (T2T) recommendations. Yet, the approach to most successfully achieve patient-driven treatment decision-making in T2T is unknown. The health “coproduction” model involves patients, families, and clinicians to design, create, develop, deliver, assess and improve the relationships and actions that contribute to health. An innovative implementation of health coproduction involves health-technology enabled dashboards that bring together PRO reports over time with an opportunity to specify patients’ short and long term health goals. Coproduction dashboards give patients, caregivers, and clinicians a common record of how patient’s health changes over time, providing opportunities to reflect on how patients would like to respond to those changes and discuss treatment options. The goal of this project is to develop and evaluate a patient and clinician coproduced dashboard to implement in a patient-centered T2T approach. Our team is uniquely positioned to develop and implement this solution given our expertise in the content and approach, as well as the availability of our institution’s Northwestern Medicine Patient Reported Outcomes (NMPRO) system, which facilitates PROs for patients at Northwestern Medicine via the MyChart application, then pushes the survey results directly to the patients’ health record in Epic. This technological capacity, along with extensive support from Northwestern Medicine’s Quality team, will allow us to build a health coproduction dashboard into Epic directly for use among RA patients and providers.