A Cross-Sectional Study Approach to Understanding Information Needs in Genomic Medicine

Project: Research project

Project Details

Description

The Human Genome Project, increased use of personalized medicine, and a strong focus toward a
translational approach to medicine have inspired a paradigm shift across multiple communities in
the academic medical research setting in terms of research efforts and techniques, by how
diagnosis and treatment options are considered and applied in the clinical environment, and how
patients are engaged and educated about the relationship of genes and disease. In in-depth
investigation in this area is warranted, given the quickly changing information landscape related to
genomic medicine. This work proposes to carry out a cross sectional study to understand
information needs in the academic medical environment through a survey-based needs assessment
and focus groups, comparison of findings across populations, development of a model for
supporting the identified needs, and broad dissemination of the research findings. The library is
particularly well-poised to carry out the proposed work; the primary mission of medical libraries is
to provide information resources and technology in support of educational, research, and patient
care objectives. Given the rapidly changing landscape of clinical medicine in the genomic age, it is
imperative that libraries understand the evolving information needs of the clinical community to
continue to successfully meet those requirements.
StatusFinished
Effective start/end date5/1/1411/30/16

Funding

  • Medical Library Association (Award Letter 4/8/14)

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