Adapting Meaning-Centered Psychotherapy for Persons with Huntington Disease

Project: Research project

Project Details

Description

SPECIFIC AIMS: I structure my aims according to the best practices of the NIH Stage Model36,37 (Fig 1):
Aim 1: To adapt MCP for persons with HD (MCP-HD) by conducting focus groups among key HD stakeholders (i.e., patients, clinicians, and caregivers).
Adaptation 1a (A1a): The MCP manual will require changes to the sessions' content and experiential exercises to meet the cognitive, language, and emotional needs of persons with HD.
Adaptation 1b (A1b): Integration of advance care planning will be perceived as credible and acceptable.
Aim 2: To evaluate the feasibility and acceptability of MCP-HD among 11 persons with premanifest and early-stage manifest HD by implementing a single-arm feasibility study.
Hypothesis 2a (H2a): The intervention will be feasible to recruit and retain participants, with >= 80% completing at least five sessions with high intervention fidelity.
Hypothesis 2b (H2b): The intervention will be acceptable with >= 80% of participants rating that they “completely agree” or “agree” that the intervention is appropriate, feasible, and acceptable.38
StatusActive
Effective start/end date10/1/219/30/22

Funding

  • Huntington's Disease Society of America (Agmt 11/22/2021)

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