Answer ALS: Return of ALS Results (RoAR)

Project: Research project

Project Details


The Answer ALS Return of Results (RoAR) Study is a 1.5 year project designed to 1) provide genetic results to persons who have enrolled in AnswerALS and 2) study patient-reported outcomes after undergoing genetic testing. Participants will have the option to receive return of results of ALS genes (C9orf72, SOD1, FUS, TARDBP, TBK1) and/or a panel of genes designated as medically actionable by the American College of Medical Genetics (ACMG). The Answer ALS RoAR Study is a service to participants in AnswerALS who wish to receive genetic testing.
Effective start/end date1/1/206/1/20


  • Ohio State University (Agmt 8/20/2020 // 20024219375)
  • Johns Hopkins University (Agmt 8/20/2020 // 20024219375)


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