Answer ALS: Return of ALS Results (RoAR)

The Answer ALS Return of Results (RoAR) Study is a 1.5 year project designed to 1) provide genetic results to persons who have enrolled in AnswerALS and 2) study patient-reported outcomes after undergoing genetic testing. Participants will have the option to receive return of results of ALS genes (C9orf72, SOD1, FUS, TARDBP, TBK1) and/or a panel of genes designated as medically actionable by the American College of Medical Genetics (ACMG). The Answer ALS RoAR Study is a service to participants in AnswerALS who wish to receive genetic testing.