ARTFL LEFFTDS Longitudinal Frontotemporal Lobar Degeneration (ALLFTD)

Project: Research project

Project Details

Description

ALLFTD is a comprehensive study targeting most varieties of FTLD. The overall goal of ALLFTD is to prepare for treatment trials in FTLD by focusing on several major activities:
1. Assemble a large group of well-characterized familial and sporadic FTLD patients evaluated at expert FTLD centers who can potentially be available for treatment trials
2 Collect comprehensive cognitive and behavioral data, in addition to imaging, blood and cerebrospinal fluid, with the following goals:
a. Identify the best clinical and biomarker measures for following patients with FTLD in treatment trials
b. Identify clinical measurements and biomarkers indicating that a person at high risk of FTLD due to a genetic mutation will begin to have symptoms in a predictable amount of time
3. Share clinical data, images and biological samples from participants affected by FTLD with the scientific community to address additional scientific questions about FTLD
StatusActive
Effective start/end date9/15/196/30/24

Funding

  • Mayo Clinic (NOR-263134-01/PO #67509301// 5U19AG063911-02)
  • National Institute on Aging (NOR-263134-01/PO #67509301// 5U19AG063911-02)

Fingerprint

Explore the research topics touched on by this project. These labels are generated based on the underlying awards/grants. Together they form a unique fingerprint.