Enabling adaptation and use of a collaborative, registry-supported care and learning system to inform management of chronic diseases

Project: Research project

Project Details


The overarching objective of the RWJF award is to design, build, test, and evaluate the health information
technology (HIT) systems and care processes required to implement the feed-forward coproduction
components of a registry-supported care and learning system beginning with cystic fibrosis (CF).
Key components include: 1) feed-forward patient data and clinical data for use at point of care; 2)
development of “dashboards” that can be used by patients and by clinicians to guide care decisions and
tracking of treatments and outcomes; and, 3) feeding the patient reported and clinical data into the CFF
Effective start/end date11/1/156/15/18


  • Dartmouth College (R812//72313)
  • Robert Wood Johnson Foundation (R812//72313)


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