ENROLL-HD: A Prospective Registry Study in a Global Huntington's Disease Cohort, a global multi-site observational clinical study

Project: Research project

Project Details

Description

Enroll-HD is a longitudinal, observational, multinational study that will integrate two existing Huntington's Disease (HD) registries, REGISTRY in Europe and COHORT in North America and Australia, while also expanding to include sites in Latin America and Asia. With no end date and annual assessments, the goal of Enroll-HD is to build a large and rich database of longitudinal clinical information and biospecimens. This database will serve as a basis for future studies aimed at developing tools and biomarkers for progression and prognosis, identifying clinically relevant phenotypic characteristics, and establishing clearly defined endpoints for interventional studies.
StatusFinished
Effective start/end date4/23/153/31/19

Funding

  • CHDI Foundation, Inc. (Agmt Signed 4/27/15)

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