The purpose of the EBCRC is to facilitate collaborative research on Epidermolysis Bullosa that will lead to improvements in EB patient outcomes. The EBCRC is currently overseen by Anna L. Bruckner, MD, Associate Professor of Dermatology and Pediatrics at the School of Medicine, University of Colorado Denver (“UCD”). A new database hosted by UCD and designed to support longitudinal studies of patient outcomes is currently under construction.
|Effective start/end date||8/18/15 → 6/30/16|
- Epidermolysis Bullosa Medical Research Foundation (AGMT-8/5/15)