The role of this site is to screen the HCM/LQTS populations to identify patients meeting inclusion and exclusion criteria, to invite them to participate, and to obtain signed informed consent. The sites will send consent form and contact information to the central coordinating site (Yale). The sites will send relevant information from the patients’ medical records as requested. Should events occur in follow-up, the central site (Yale) will contact the enrolling site and then enrolling site will send any records regarding the event as requested.
|Effective start/end date||2/1/16 → 1/31/21|
- Yale University (Yale 2.23.2017//R01HL125918)
- National Heart, Lung, and Blood Institute (Yale 2.23.2017//R01HL125918)