FTLD Clinical Research Consortium

Project: Research project

Project Details

Description

For Project 2, each site will evaluate 7 symptomatic familial FTLD patients and 7 asymptomatic or minimally symptomatic family members at risk for familial FTLD, longitudinally with a similar baseline visit to the sporadic FTLD patients in Project 1, with the addition of a MRI scan, as well as a follow-up visit using the same clinical measures, but no blood draw or MRI scan.
In years 2 through 5, reimbursement will be based on enrollment, with sites reimbursed for each completed visit, as described above, after data is uploaded to the study database. The Administrative Core will monitor overall study enrollment, and will communicate with sites to assure attainment of the annual FTLD CRC enrollment goal. The same number of subjects will be initially allocated to each site, but if the site PI believes (s)he may not achieve the enrollment target, the enrollment slots may be allocated to another site.
StatusFinished
Effective start/end date10/1/147/31/19

Funding

  • University of California, San Francisco (8568sc//5U54NS092089-05)
  • National Institute of Neurological Disorders and Stroke (8568sc//5U54NS092089-05)

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