Over 90,000 individuals in the United States await kidney transplantation. Only about 12,000 will receive a deceased donor transplant each year, and recent efforts to increase deceased donation have been largely unsuccessful. As a result, most candidates on the waiting list have a higher chance of dying than of being offered a deceased donor kidney. Live donor kidney transplantation (LDKT) eliminates the wait and offers superior survival, but accounts for fewer than 6,000 additional transplants per year despite a huge potential pool of millions of adults living in the US. Worse, LDKT rates are lowest among Hispanic and African American candidates who account for over 30% of the waitlist. Across all ethnicities/races, known barriers to identifying a live donor include lack of education, reluctance to discuss one's illness, and hesitance to ask others to donate. We have developed the Live Donor Champion program to address these barriers. The evidence-based transplant center intervention is a 6-month training program that combines education, advocacy, and instrumental support by pairing candidates with a live donor champion (LDC): a friend, family member, or community member trained to spread awareness of End Stage Renal Disease (ESRD), LDKT, and the candidate's story throughout their social network. The objectives of this project are to pilot-test and optimize strategies for the implementation of the Live Donor Champion program for patients with ESRD in the clinical transplant center setting. Our hypothesis is that a multifaceted strategy would enable us to implement LDC in a way that it meets the needs and demands of professionals and patients, without disrupting daily clinical operations at a U.S. transplant center. Aim 1: To conduct a process and implementation evaluation of the LDC program in two geographically diverse U.S. transplant centers in order to develop a replication guide. Aim 2: To identify characteristics that facilitate or impeded the dissemination and implementation of the LDC program at the local transplant center level.
|Effective start/end date||9/1/17 → 8/31/21|
- Johns Hopkins University (2003709195//5R39OT31103-02)
- Health Resources and Services Administration (2003709195//5R39OT31103-02)
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