Natural History Pilot Project

Project: Research project

Description

The purpose of this research is to build a database of information about ALS based on information that will be collected during standard of care visits. The database is called NeuroBANK and, once completed, will serve to improve clinical trials (studies) on ALS, link genetic mutations with observations doctors see in the clinic, and identify possible risk factors for ALS and motor neuron diseases
StatusActive
Effective start/end date1/1/206/30/20

Funding

  • ALS Association (20-SI-543)

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Natural History
Databases
Motor Neuron Disease
Standard of Care
Clinical Trials
Mutation
Research
Clinical Studies