Optimizing Long-Term Care and Future Planning for Adults with Intellectual/Developmental Disabilities

Project: Research project

Description

Partnering with a social services agency and focusing on IDD adults 18-64 years, an age at which many LTC decisions are initiated, our specific aims are the following:
1. Develop a predictive model identifying adults with IDD at greatest risk for institutional placement through a retrospective cohort of Medicaid and Medicare-eligible enrollees with IDD in 5 large states.
2. Identify LTC planning activities among racially-diverse aging caregivers living with adults with IDD through a community-based cross-sectional survey in one city.
3. Identify strategies to promote LTC planning through focus groups of racially-diverse aging family caregivers who are positive and negative outliers of LTC planning.
4. Develop and test a LTC planning tool to help adults with IDD and family caregivers understand projected health needs and plan ways to remain in their own homes when crises occur.
StatusActive
Effective start/end date7/1/176/30/22

Funding

  • Feinstein Institute for Medical Research (540754-NW//)
  • Patrick and Catherine Weldon Donaghue Medical Research Foundation (540754-NW//)

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intellectual
disability
caregiver
planning
predictive model
mobile social services
health
community
Group