PLS Natural History Study

Project: Research project

Project Details


The sites will enroll participants and collect information from them at three visits: a baseline visit
and two follow-up visits at 6 months and 12 months after baseline. The sites will be paid based
on the specific tasks completed for each participant.

Additionally, the sites will arrange for the collection of urine by providing participants with urine
collection and shipping materials. The eventual collection and shipment of the participants’ urine
samples will be coordinated by the CUCC. Sites will also facilitate the scheduling of interviews
and questionnaires if needed (e.g. if the participant is difficult to get ahold of). For any of the
tasks completed, the sites are paid according to the rates for these tasks. The sites will also
participate in monthly conference calls outlined in the study protocol..
Effective start/end date7/15/21 → 7/14/22


  • Columbia University (29(PG010893-01)//SPASPF CU19-3055)
  • Spastic Paraplegia Foundation, Inc. (29(PG010893-01)//SPASPF CU19-3055)


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