PROMIS-Deaf Profile: Inclusion of Deaf Patients in Disability and Outcomes Research

Project: Research project

Project Details

Description

A central goal of this subcontract is to develop and validate patient-reported outcome (PRO) instruments for use with deaf and hard of hearing patients who use American Sign Language (ASL) and English. This will require the psychometric analysis of adapted PRO items to assess the reliability and validity of the items in this new population.

The psychometric methods will be modeled on those set forth in the NIH Patient Reported Outcomes Measurement Information System (PROMIS) and NIH Toolbox projects, including the assessment of unidimensionality (using both confirmatory and exploratory approaches), as well as the application of item response theory (IRT).

Northwestern University will provide guidance on the cross-cultural adaptation methods for PROMIS items, oversee the integration and maintenance of video-based ASL items in PROMIS system, and ensure that modern psychometric theory approaches are applied to validate adult quality of life-DHH instrument and PROMIS items in ASL.
StatusFinished
Effective start/end date9/1/168/31/19

Funding

  • Gallaudet University (0000025075//7R01DC014463-02)
  • National Institute on Deafness and Other Communication Disorders (0000025075//7R01DC014463-02)

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