Strength and Muscle Related Outcomes for Nutrition and Lung Function in CF (STRONG-CF)

This study is being done because many people with CF struggle with sufficient nutrition. This can be quite stressful for people with CF and their families and caregivers. We do not know much about what it means to be “nourished” versus “malnourished” and would like to learn more about several nutritional measures and their effects on individuals with CF. There are currently two main ways of measuring nutrition in the CF population: body mass index (BMI) and laboratory values. This study plans to look at more ways to measure nutrition: Body composition (percentage of body weight due to fat, muscle, and bone) and sarcopenia (loss of bone and muscle mass). We will measure these items using dual energy X-ray absorptiometry (DXA). This study hopes to provide researchers with more detailed information about nutrition and body composition within the CF population and a baseline to use these measurements for future research