Understanding and Supporting Public Information Needs about VCA Donation

Project: Research project

Project Details

Description

Major Task 1: Prepare Regulatory Documents Subtask 1: Prepare local human subjects research documents Coordinate Military 2nd level IRB review (ORP/HRPO) Submit amendments, adverse events and protocol deviations as needed Coordinate for annual IRB report for continuing review Milestone Achieved: IRB approval at Johns Hopkins and NU, and HRPO Major Task 2: Coordinate and Train Study Staff in Qualitative Research Subtask1: Hiring and Training of Study Staff Advertise and interview for project related staff Qualitative research training for study staff Milestone Achieved: Research staff hired and trained in qualitative research Specific Aim 1: To assess the availability and quality of information about VCA donation delivered through state and federally sponsored online registries, DoD/VA entities, and public awareness materials. Major Task 3: Content Analysis of Available VCA Donation Education Subtask 1: Develop rules for coding educational content text and images Subtask 2: Perform a comprehensive search of all VCA education materials currently provided by organ procurement organizations (n =58), national advocacy organizations, and each state’s Department of Motor Vehicles (n =50) Subtask 3: Code the content (text and images) Milestone Achieved: content analysis of existing educational materials complete Milestone Achieved: report findings from content analysis Major Task 4: Focus Groups with Members of the Public Subtask 1: Recruit and consent, 60 members of the public for 6 focus groups Subtask 2: Conduct 3 focus groups in Baltimore/Chicago (total n =6) Milestone Achieved: 1st focus group participants consented and scheduled Milestone Achieved: 3 focus groups conducted at each site Major Task 5: Analyze Qualitative Data Subtask 1: Transcribe audio recordings from the focus groups Subtask 2: Qualitatively analyze focus groups transcriptions Milestone Achieved: Report findings from focus groups Specific Aim 2: To develop educational materials that increase public knowledge, understanding, perceptions of comfort, and willingness to donate. Major Task 6: Develop Educational Materials for VCA Subtask 1: Create educational materials Subtask 2: Develop social media strategy Subtask 3: Create media toolkit Milestone Achieved: educational materials, social media strategy, and media toolkit created Major Task 6: Conduct Delphi Panel Subtask 1: Coordinate and recruit expert, patient, and donor family member participants for the Delphi panel (n=15) Subtask 2: Schedule and host Delphi panel Subtask 3: Transcribe audio-recordings and score surveys from Delphi panel Subtask 4: Analyze results of Delphi panel Milestone Achieved: Report results from data analysis Milestone Achieved: Write manuscript detailing the results of the consensus reached through the Delphi method Major Task 7: Conduct Focus Groups about Developed VCA Education Subtask 1: Recruit, and consent, 60 members of the public for 6 focus groups Subtask 2: Conduct 3 focus groups in Baltimore/Chicago (total n =6) Milestone Achieved: 1st focus group participants consented and scheduled Milestone Achieved: 3 focus groups conducted at each site Major Task 8: Conduct Further Usability Testing via Donate Life America Subtask 1: Work with Donate Life America on launching the social media strategy Subtask 2: Perform sentiment analysis of public reaction to the VCA education disseminated through social media Subtask 3: Create Facebook groups for members of the public and those with experience in VCA donation and educatio
StatusActive
Effective start/end date9/30/189/29/22

Funding

  • U.S. Army Medical Research and Materiel Command (W81XWH1810780)

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