A Community-Partnered Approach to Inform a Culturally Relevant Health Promotion Intervention for Stroke

Amy R. Eisenstein*, Sarah Song, Maryann Mason, Namratha R. Kandula, Christopher Richards, Neelum T. Aggarwal, Shyam K. Prabhakaran

*Corresponding author for this work

Research output: Contribution to journalArticle

Abstract

Background. The purpose of this study was to generate information from multiethnic, high-risk communities to inform the creation of culturally relevant health promotion intervention for increasing early hospital arrival after stroke. Methods. The study employed a qualitative design, using focus groups with African American, Caucasian, and Hispanic adults in two Chicago community areas. The study relied heavily on stakeholder input in creating the focus group guide, recruiting participants, and interpreting the analysis. Results. Six focus groups gained information from 51 participants, including insights and perspective on participants’ stroke experience and knowledge as well as on facilitators and barriers to calling 9-1-1. Qualitative analysis uncovered themes relating to risk factors, symptoms, knowledge of stroke mechanisms, experience of acute stroke, help seeking, stroke education, recovery, treatment, and emotions. Communities were closely aligned in their knowledge of stroke, but had differing ideas around stroke education and dissemination of education. Discussion. This study identified nuances in real-world barriers to receiving acute stroke services in minority and disadvantaged communities in Chicago neighborhoods. Our findings indicated significant amount of variation by race/ethnicity and, in particular, a lack of similarities based on race/ethnic groups in different communities. These findings underscore the importance of working with communities to fully understand the community-level dynamics that occur.

Original languageEnglish (US)
Pages (from-to)697-705
Number of pages9
JournalHealth Education and Behavior
Volume45
Issue number5
DOIs
StatePublished - Oct 1 2018

Fingerprint

Health Promotion
Stroke
Focus Groups
Education
Vulnerable Populations
Hispanic Americans
Ethnic Groups
African Americans
Emotions

Keywords

  • community health
  • community health promotion
  • focus groups
  • qualitative methods
  • stroke

ASJC Scopus subject areas

  • Arts and Humanities (miscellaneous)
  • Public Health, Environmental and Occupational Health

Cite this

Eisenstein, Amy R. ; Song, Sarah ; Mason, Maryann ; Kandula, Namratha R. ; Richards, Christopher ; Aggarwal, Neelum T. ; Prabhakaran, Shyam K. / A Community-Partnered Approach to Inform a Culturally Relevant Health Promotion Intervention for Stroke. In: Health Education and Behavior. 2018 ; Vol. 45, No. 5. pp. 697-705.
@article{2282fd8236694bc79a65ba384568e125,
title = "A Community-Partnered Approach to Inform a Culturally Relevant Health Promotion Intervention for Stroke",
abstract = "Background. The purpose of this study was to generate information from multiethnic, high-risk communities to inform the creation of culturally relevant health promotion intervention for increasing early hospital arrival after stroke. Methods. The study employed a qualitative design, using focus groups with African American, Caucasian, and Hispanic adults in two Chicago community areas. The study relied heavily on stakeholder input in creating the focus group guide, recruiting participants, and interpreting the analysis. Results. Six focus groups gained information from 51 participants, including insights and perspective on participants’ stroke experience and knowledge as well as on facilitators and barriers to calling 9-1-1. Qualitative analysis uncovered themes relating to risk factors, symptoms, knowledge of stroke mechanisms, experience of acute stroke, help seeking, stroke education, recovery, treatment, and emotions. Communities were closely aligned in their knowledge of stroke, but had differing ideas around stroke education and dissemination of education. Discussion. This study identified nuances in real-world barriers to receiving acute stroke services in minority and disadvantaged communities in Chicago neighborhoods. Our findings indicated significant amount of variation by race/ethnicity and, in particular, a lack of similarities based on race/ethnic groups in different communities. These findings underscore the importance of working with communities to fully understand the community-level dynamics that occur.",
keywords = "community health, community health promotion, focus groups, qualitative methods, stroke",
author = "Eisenstein, {Amy R.} and Sarah Song and Maryann Mason and Kandula, {Namratha R.} and Christopher Richards and Aggarwal, {Neelum T.} and Prabhakaran, {Shyam K.}",
year = "2018",
month = "10",
day = "1",
doi = "10.1177/1090198117752787",
language = "English (US)",
volume = "45",
pages = "697--705",
journal = "Health Education and Behavior",
issn = "1090-1981",
publisher = "SAGE Publications Inc.",
number = "5",

}

A Community-Partnered Approach to Inform a Culturally Relevant Health Promotion Intervention for Stroke. / Eisenstein, Amy R.; Song, Sarah; Mason, Maryann; Kandula, Namratha R.; Richards, Christopher; Aggarwal, Neelum T.; Prabhakaran, Shyam K.

In: Health Education and Behavior, Vol. 45, No. 5, 01.10.2018, p. 697-705.

Research output: Contribution to journalArticle

TY - JOUR

T1 - A Community-Partnered Approach to Inform a Culturally Relevant Health Promotion Intervention for Stroke

AU - Eisenstein, Amy R.

AU - Song, Sarah

AU - Mason, Maryann

AU - Kandula, Namratha R.

AU - Richards, Christopher

AU - Aggarwal, Neelum T.

AU - Prabhakaran, Shyam K.

PY - 2018/10/1

Y1 - 2018/10/1

N2 - Background. The purpose of this study was to generate information from multiethnic, high-risk communities to inform the creation of culturally relevant health promotion intervention for increasing early hospital arrival after stroke. Methods. The study employed a qualitative design, using focus groups with African American, Caucasian, and Hispanic adults in two Chicago community areas. The study relied heavily on stakeholder input in creating the focus group guide, recruiting participants, and interpreting the analysis. Results. Six focus groups gained information from 51 participants, including insights and perspective on participants’ stroke experience and knowledge as well as on facilitators and barriers to calling 9-1-1. Qualitative analysis uncovered themes relating to risk factors, symptoms, knowledge of stroke mechanisms, experience of acute stroke, help seeking, stroke education, recovery, treatment, and emotions. Communities were closely aligned in their knowledge of stroke, but had differing ideas around stroke education and dissemination of education. Discussion. This study identified nuances in real-world barriers to receiving acute stroke services in minority and disadvantaged communities in Chicago neighborhoods. Our findings indicated significant amount of variation by race/ethnicity and, in particular, a lack of similarities based on race/ethnic groups in different communities. These findings underscore the importance of working with communities to fully understand the community-level dynamics that occur.

AB - Background. The purpose of this study was to generate information from multiethnic, high-risk communities to inform the creation of culturally relevant health promotion intervention for increasing early hospital arrival after stroke. Methods. The study employed a qualitative design, using focus groups with African American, Caucasian, and Hispanic adults in two Chicago community areas. The study relied heavily on stakeholder input in creating the focus group guide, recruiting participants, and interpreting the analysis. Results. Six focus groups gained information from 51 participants, including insights and perspective on participants’ stroke experience and knowledge as well as on facilitators and barriers to calling 9-1-1. Qualitative analysis uncovered themes relating to risk factors, symptoms, knowledge of stroke mechanisms, experience of acute stroke, help seeking, stroke education, recovery, treatment, and emotions. Communities were closely aligned in their knowledge of stroke, but had differing ideas around stroke education and dissemination of education. Discussion. This study identified nuances in real-world barriers to receiving acute stroke services in minority and disadvantaged communities in Chicago neighborhoods. Our findings indicated significant amount of variation by race/ethnicity and, in particular, a lack of similarities based on race/ethnic groups in different communities. These findings underscore the importance of working with communities to fully understand the community-level dynamics that occur.

KW - community health

KW - community health promotion

KW - focus groups

KW - qualitative methods

KW - stroke

UR - http://www.scopus.com/inward/record.url?scp=85041931791&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85041931791&partnerID=8YFLogxK

U2 - 10.1177/1090198117752787

DO - 10.1177/1090198117752787

M3 - Article

VL - 45

SP - 697

EP - 705

JO - Health Education and Behavior

JF - Health Education and Behavior

SN - 1090-1981

IS - 5

ER -