TY - JOUR
T1 - A reporting checklist for HealthMeasures’ patient-reported outcomes
T2 - ASCQ-Me, Neuro-QoL, NIH Toolbox, and PROMIS
AU - on behalf of the HealthMeasures Team
AU - Hanmer, Janel
AU - Jensen, Roxanne E.
AU - Rothrock, Nan
N1 - Funding Information:
Thank you to the HealthMeasures team and PROMIS Health Organization Standards Committee for their thoughtful review and discussion in developing this checklist. The article was prepared as part of one author?s (RJ) official duties as an employee of the US Federal Government. The findings and conclusions in this report are those of the authors and do not necessarily represent the official position of the [NIH].
Publisher Copyright:
© 2020, The Author(s).
PY - 2020/12/1
Y1 - 2020/12/1
N2 - Background: ASCQ-Me®, Neuro-QoL™, NIH Toolbox®, and PROMIS®, which are health-related quality of life measures collectively known as HealthMeasures, have experienced rapid uptake in the scientific community with over 1700 peer-reviewed publications through 2018. Because of their proliferation across multiple research disciplines, there has been significant heterogeneity in the description and reporting of these measures. Here, we provide a publication checklist to promote standardization and comparability across different reports. This checklist can be used across all HealthMeasures systems. Checklist Development: Authors drafted a draft checklist, circulated among the HealthMeasures Steering Committee and PROMIS Health Organization until the members reached consensus. Checklist: The final checklist has 21 entries in 4 categories: measure details, administration, scoring, and reporting. Most entries (11) specify necessary measure-specific details including version number and administration language(s). Administration (4 entries) reminds authors to include details such as use of proxy respondents and the assessment platform. Scoring (3 entries) is necessary to ensure replication and cross-study comparisons. Reporting (3 entries) reminds authors to always report scores on the T-score metric. Conclusion: Consistent documentation is necessary to ensure transparent and reproducible methods and support the accumulation of evidence across studies. This checklist promotes standardization and completeness in documentation for ASCQ-Me, Neuro-QoL, PROMIS, and NIH Toolbox measures.
AB - Background: ASCQ-Me®, Neuro-QoL™, NIH Toolbox®, and PROMIS®, which are health-related quality of life measures collectively known as HealthMeasures, have experienced rapid uptake in the scientific community with over 1700 peer-reviewed publications through 2018. Because of their proliferation across multiple research disciplines, there has been significant heterogeneity in the description and reporting of these measures. Here, we provide a publication checklist to promote standardization and comparability across different reports. This checklist can be used across all HealthMeasures systems. Checklist Development: Authors drafted a draft checklist, circulated among the HealthMeasures Steering Committee and PROMIS Health Organization until the members reached consensus. Checklist: The final checklist has 21 entries in 4 categories: measure details, administration, scoring, and reporting. Most entries (11) specify necessary measure-specific details including version number and administration language(s). Administration (4 entries) reminds authors to include details such as use of proxy respondents and the assessment platform. Scoring (3 entries) is necessary to ensure replication and cross-study comparisons. Reporting (3 entries) reminds authors to always report scores on the T-score metric. Conclusion: Consistent documentation is necessary to ensure transparent and reproducible methods and support the accumulation of evidence across studies. This checklist promotes standardization and completeness in documentation for ASCQ-Me, Neuro-QoL, PROMIS, and NIH Toolbox measures.
KW - ASCQ-Me
KW - NIH Toolbox
KW - Neuro-QoL
KW - PROMIS
KW - Patient-reported outcomes
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U2 - 10.1186/s41687-020-0176-4
DO - 10.1186/s41687-020-0176-4
M3 - Comment/debate
C2 - 32215788
AN - SCOPUS:85082612722
VL - 4
JO - Journal of Patient-Reported Outcomes
JF - Journal of Patient-Reported Outcomes
SN - 2509-8020
IS - 1
M1 - 21
ER -