@article{459ebda40e7643e0a4a9e5d581e2fffc,
title = "A Research Agenda for Communication Scholars in the Precision Medicine Era",
abstract = "The 2015 announcement of the Precision Medicine Initiative (PMI) galvanized and energized efforts to reconsider medical practice through tailoring of prevention and treatment recommendations based on genetics, environment, and lifestyle. Numerous disciplines contributed white papers identifying challenges associated with PMI and calling for discipline-specific research that might provide solutions to such challenges. Throughout these white papers, the prominence of communication in achieving the PMI{\textquoteright}s goals is obviously apparent. In this article, we highlight opportunities for communication scholars{\textquoteright} contributions to the PMI based on challenges identified in white papers from other disciplines and work already conducted by research teams in the field of communication.",
author = "Scherr, {Courtney L.} and Marleah Dean and Clayton, {Margaret F.} and Hesse, {Bradford W.} and Kami Silk and Street, {Richard L.} and Janice Krieger",
note = "Funding Information: Within the clinical sequencing exploratory research (CSER) program funded by the National Human Genome Research Institute (NHGRI), the Baylor College of Medicine Advancing Sequencing Into Childhood Cancer Care (BASIC3) project focuses on investigating the clinical impact of integrating whole exome sequencing (WES) and tumor testing into pediatric oncology care (Clinical Sequencing Exploratory Research, ND). In this project, parents consented to enroll their child with high-risk solid tumors into the study, allowing researchers to conduct WES and molecular tumor testing on their child (Scollon et al., 2014). An oncologist and genetic counselor received results from WES and tumor testing and returned them to parents in a “disclosure appointment.” The research questions guiding this study focused on whether or not parents found the information valuable or meaningful, and if they could make decisions based on how the results were presented and described (Plon, 2015). Funding Information: This publication was supported by the University of Florida Clinical and Translational Science Institute, which is supported in part by the NIH National Center for Advancing Translational Sciences under award number UL1TR001427. The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Institutes of Health. Funding Information: A potentially more significant challenge than recruitment for the PMI is longitudinal participant retention (Ejiogu et al., 2011). The Breast Cancer and the Environment Program (BCERP), funded by the NIH to examine the connection between environmental and genetic factors that contribute to the development of breast cancer, speaks to the difficulties retaining research participants long-term (National Institute of Environmental Health Sciences, 2016). Participants in the BCERP Cincinnati cohort enrolled when they were 6 years old, today some are in college and some are beginning jobs. The question faced by the BCERP—and one that will be faced by the PMI—is how to keep participants interested and enrolled over several decades. The BCERP advocacy group and community organizations are primarily responsible for the objectively high retention rates and keeping families and girls interested through activities like gala events and giveaways and working within the communities. Publisher Copyright: Copyright {\textcopyright} Taylor & Francis Group, LLC.",
year = "2017",
month = oct,
day = "3",
doi = "10.1080/10810730.2017.1363324",
language = "English (US)",
volume = "22",
pages = "839--848",
journal = "Journal of Health Communication",
issn = "1081-0730",
publisher = "Taylor and Francis Ltd.",
number = "10",
}
