A Two-Phase Approach to Developing SNAP: an iPhone Application to Support Appointment Scheduling and Management for Women with a BRCA Mutation

Courtney Lynam Scherr*, Jessica L. Feuston, Dawn M. Nixon, Stephanie A. Cohen

*Corresponding author for this work

Research output: Contribution to journalArticle

5 Scopus citations

Abstract

Professional organizations provide surveillance guidelines for BRCA1 and BRCA2 (BRCA) carriers with intact breasts and/or ovaries to facilitate early cancer detection. However, literature indicates adherence to surveillance guidelines is inconsistent at best. Using the Messaging Model for Health Communication Campaigns framework, we undertook a two-phase formative research approach to develop an intervention to promote adherence to surveillance guidelines. Discussion groups identified preferred intervention format and function in phase I. Findings indicated carriers desired a phone application (app) to assist with surveillance management and appointment tracking. Thus, an iPhone app for carriers to track appointments based on published surveillance guidelines was developed. In phase II, we obtained feedback from BRCA carriers via a survey during a prototype demonstration at a regional conference. Participants in phase II wanted reminder capabilities and the ability to add and modify information fields. This feedback informed intervention modifications, resulting in the Scheduling Necessary Advised Procedures (SNAP) iPhone app currently being pilot tested by BRCA carriers throughout the USA.

Original languageEnglish (US)
Pages (from-to)439-445
Number of pages7
JournalJournal of Genetic Counseling
Volume27
Issue number2
DOIs
StatePublished - Apr 1 2018

Keywords

  • BRCA
  • Cancer surveillance
  • Communication intervention
  • Formative research
  • Hereditary breast and ovarian cancer
  • mhealth

ASJC Scopus subject areas

  • Genetics(clinical)

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