A View from the past into our collective future: the oncofertility consortium vision statement

Teresa K. Woodruff; Lauren Ataman-Millhouse; Kelly S. Acharya; Teresa Almeida-Santos; Antoinette Anazodo; Richard A. Anderson; Leslie Appiah; Joy Bader; Kerri Becktell; Robert E. Brannigan; Lesley Breech; Maria T. Bourlon; Žana Bumbuliene; Karen Burns; Lisa Campo-Engelstein; Jacira R. Campos; Grace M. Centola; Mauricio Barbour Chehin; Diane Chen; Michel De Vos; Francesca E. Duncan; Ahmed El-Damen; Douglas Fair; Yemi Famuyiwa; Patricia Y. Fechner; Paula Fontoura; Olivia Frias; Sabrina A. Gerkowicz; Jill Ginsberg; Clarisa R. Gracia; Kara Goldman; Veronica Gomez-Lobo; Brent Hazelrigg; Michael H. Hsieh; Luis R. Hoyos; Alfonso Hoyos-Martinez; Robert Jach; Jacek Jassem; Murid Javed; Yasmin Jayasinghe; Roohi Jeelani; Jacqueline S. Jeruss; Nalini Kaul-Mahajan; Jessica Keim-Malpass; Tyler G. Ketterl; Mohamed Khrouf; Dana Kimelman; Atsuko Kusuhara; William H. Kutteh; Monica M. Laronda; Jung Ryeol Lee; Vicky Lehmann; Joseph M. Letourneau; Lynda K. McGinnis; Eileen McMahon; Lillian R. Meacham; Monserrat Fabiola Velez Mijangos; Molly Moravek; Leena Nahata; George Moses Ogweno; Kyle E. Orwig; Mary Ellen Pavone; Fedro Alessandro Peccatori; Romina Ileana Pesce; Hanna Pulaski; Gwendolyn Quinn; Ramiro Quintana; Tomas Quintana; Bruno Ramalho de Carvalho; Rosalind Ramsey-Goldman; Joyce Reinecke; Fernando M. Reis; Julie Rios; Alice S. Rhoton-Vlasak; Kenny A. Rodriguez-Wallberg; Cassandra Roeca; Seth J. Rotz; Erin Rowell; Mahmoud Salama; Amanda J. Saraf; Anibal Scarella; Tara Schafer-Kalkhoff; Deb Schmidt; Suneeta Senapati; Divya Shah; Ariella Shikanov; Margarett Shnorhavorian; Jodi L. Skiles; James F. Smith; Kristin Smith; Fabio Sobral; Kyle Stimpert; H. Irene Su; Kouhei Sugimoto; Nao Suzuki; Mili Thakur; David Victorson; Luz Viale; Wendy Vitek; W. Hamish Wallace; Ellen A. Wartella; Lynn M. Westphal; Stacy Whiteside; Lea H. Wilcox; Christine Wyns; Shuo Xiao; Jing Xu; Mary Zelinski

doi:10.1007/s10815-020-01983-4

A View from the past into our collective future: the oncofertility consortium vision statement

Teresa K. Woodruff^*, Lauren Ataman-Millhouse, Kelly S. Acharya, Teresa Almeida-Santos, Antoinette Anazodo, Richard A. Anderson, Leslie Appiah, Joy Bader, Kerri Becktell, Robert E. Brannigan, Lesley Breech, Maria T. Bourlon, Žana Bumbuliene, Karen Burns, Lisa Campo-Engelstein, Jacira R. Campos, Grace M. Centola, Mauricio Barbour Chehin, Diane Chen, Michel De VosFrancesca E. Duncan, Ahmed El-Damen, Douglas Fair, Yemi Famuyiwa, Patricia Y. Fechner, Paula Fontoura, Olivia Frias, Sabrina A. Gerkowicz, Jill Ginsberg, Clarisa R. Gracia, Kara Goldman, Veronica Gomez-Lobo, Brent Hazelrigg, Michael H. Hsieh, Luis R. Hoyos, Alfonso Hoyos-Martinez, Robert Jach, Jacek Jassem, Murid Javed, Yasmin Jayasinghe, Roohi Jeelani, Jacqueline S. Jeruss, Nalini Kaul-Mahajan, Jessica Keim-Malpass, Tyler G. Ketterl, Mohamed Khrouf, Dana Kimelman, Atsuko Kusuhara, William H. Kutteh, Monica M. Laronda, Jung Ryeol Lee, Vicky Lehmann, Joseph M. Letourneau, Lynda K. McGinnis, Eileen McMahon, Lillian R. Meacham, Monserrat Fabiola Velez Mijangos, Molly Moravek, Leena Nahata, George Moses Ogweno, Kyle E. Orwig, Mary Ellen Pavone, Fedro Alessandro Peccatori, Romina Ileana Pesce, Hanna Pulaski, Gwendolyn Quinn, Ramiro Quintana, Tomas Quintana, Bruno Ramalho de Carvalho, Rosalind Ramsey-Goldman, Joyce Reinecke, Fernando M. Reis, Julie Rios, Alice S. Rhoton-Vlasak, Kenny A. Rodriguez-Wallberg, Cassandra Roeca, Seth J. Rotz, Erin Rowell, Mahmoud Salama, Amanda J. Saraf, Anibal Scarella, Tara Schafer-Kalkhoff, Deb Schmidt, Suneeta Senapati, Divya Shah, Ariella Shikanov, Margarett Shnorhavorian, Jodi L. Skiles, James F. Smith, Kristin Smith, Fabio Sobral, Kyle Stimpert, H. Irene Su, Kouhei Sugimoto, Nao Suzuki, Mili Thakur, David Victorson, Luz Viale, Wendy Vitek, W. Hamish Wallace, Ellen A. Wartella, Lynn M. Westphal, Stacy Whiteside, Lea H. Wilcox, Christine Wyns, Shuo Xiao, Jing Xu, Mary Zelinski

^*Corresponding author for this work

Research output: Contribution to journal › Comment/debate › peer-review

35 Scopus citations

Abstract

Purpose: Today, male and female adult and pediatric cancer patients, individuals transitioning between gender identities, and other individuals facing health extending but fertility limiting treatments can look forward to a fertile future. This is, in part, due to the work of members associated with the Oncofertility Consortium. Methods: The Oncofertility Consortium is an international, interdisciplinary initiative originally designed to explore the urgent unmet need associated with the reproductive future of cancer survivors. As the strategies for fertility management were invented, developed or applied, the individuals for who the program offered hope, similarly expanded. As a community of practice, Consortium participants share information in an open and rapid manner to addresses the complex health care and quality-of-life issues of cancer, transgender and other patients. To ensure that the organization remains contemporary to the needs of the community, the field designed a fully inclusive mechanism for strategic planning and here present the findings of this process. Results: This interprofessional network of medical specialists, scientists, and scholars in the law, medical ethics, religious studies and other disciplines associated with human interventions, explore the relationships between health, disease, survivorship, treatment, gender and reproductive longevity. Conclusion: The goals are to continually integrate the best science in the service of the needs of patients and build a community of care that is ready for the challenges of the field in the future.

Original language	English (US)
Pages (from-to)	3-15
Number of pages	13
Journal	Journal of Assisted Reproduction and Genetics
Volume	38
Issue number	1
DOIs	https://doi.org/10.1007/s10815-020-01983-4
State	Published - Jan 2021

Funding

Additionally, the OC can help pursue opportunities to advocate for funding at the NIH and offer guidance for particular requests for applications (RFAs). Whether this means providing a letter of support for an NIH grant proposal or helping to identify and disseminate relevant grant and funding opportunities, the OC is committed to the advancement of scientific research. Furthermore, we will utilize our network to identify potential collaborators to enhance the scientific merit of proposals and grant applications. We will disseminate these research findings in journals and via social media and other outlets to broaden reach and keep the field connected through sustained engagement and an interdisciplinary approach.

Keywords

Fertility preservation
Oncofertility
cancer

ASJC Scopus subject areas

Reproductive Medicine
Genetics
Obstetrics and Gynecology
Developmental Biology
Genetics(clinical)

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

Access to Document

10.1007/s10815-020-01983-4

Cite this

Woodruff, T. K., Ataman-Millhouse, L., Acharya, K. S., Almeida-Santos, T., Anazodo, A., Anderson, R. A., Appiah, L., Bader, J., Becktell, K., Brannigan, R. E., Breech, L., Bourlon, M. T., Bumbuliene, Ž., Burns, K., Campo-Engelstein, L., Campos, J. R., Centola, G. M., Chehin, M. B., Chen, D., ... Zelinski, M. (2021). A View from the past into our collective future: the oncofertility consortium vision statement. Journal of Assisted Reproduction and Genetics, 38(1), 3-15. https://doi.org/10.1007/s10815-020-01983-4

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title = "A View from the past into our collective future: the oncofertility consortium vision statement",

abstract = "Purpose: Today, male and female adult and pediatric cancer patients, individuals transitioning between gender identities, and other individuals facing health extending but fertility limiting treatments can look forward to a fertile future. This is, in part, due to the work of members associated with the Oncofertility Consortium. Methods: The Oncofertility Consortium is an international, interdisciplinary initiative originally designed to explore the urgent unmet need associated with the reproductive future of cancer survivors. As the strategies for fertility management were invented, developed or applied, the individuals for who the program offered hope, similarly expanded. As a community of practice, Consortium participants share information in an open and rapid manner to addresses the complex health care and quality-of-life issues of cancer, transgender and other patients. To ensure that the organization remains contemporary to the needs of the community, the field designed a fully inclusive mechanism for strategic planning and here present the findings of this process. Results: This interprofessional network of medical specialists, scientists, and scholars in the law, medical ethics, religious studies and other disciplines associated with human interventions, explore the relationships between health, disease, survivorship, treatment, gender and reproductive longevity. Conclusion: The goals are to continually integrate the best science in the service of the needs of patients and build a community of care that is ready for the challenges of the field in the future.",

keywords = "Fertility preservation, Oncofertility, cancer",

author = "Woodruff, {Teresa K.} and Lauren Ataman-Millhouse and Acharya, {Kelly S.} and Teresa Almeida-Santos and Antoinette Anazodo and Anderson, {Richard A.} and Leslie Appiah and Joy Bader and Kerri Becktell and Brannigan, {Robert E.} and Lesley Breech and Bourlon, {Maria T.} and {\v Z}ana Bumbuliene and Karen Burns and Lisa Campo-Engelstein and Campos, {Jacira R.} and Centola, {Grace M.} and Chehin, {Mauricio Barbour} and Diane Chen and {De Vos}, Michel and Duncan, {Francesca E.} and Ahmed El-Damen and Douglas Fair and Yemi Famuyiwa and Fechner, {Patricia Y.} and Paula Fontoura and Olivia Frias and Gerkowicz, {Sabrina A.} and Jill Ginsberg and Gracia, {Clarisa R.} and Kara Goldman and Veronica Gomez-Lobo and Brent Hazelrigg and Hsieh, {Michael H.} and Hoyos, {Luis R.} and Alfonso Hoyos-Martinez and Robert Jach and Jacek Jassem and Murid Javed and Yasmin Jayasinghe and Roohi Jeelani and Jeruss, {Jacqueline S.} and Nalini Kaul-Mahajan and Jessica Keim-Malpass and Ketterl, {Tyler G.} and Mohamed Khrouf and Dana Kimelman and Atsuko Kusuhara and Kutteh, {William H.} and Laronda, {Monica M.} and Lee, {Jung Ryeol} and Vicky Lehmann and Letourneau, {Joseph M.} and McGinnis, {Lynda K.} and Eileen McMahon and Meacham, {Lillian R.} and Mijangos, {Monserrat Fabiola Velez} and Molly Moravek and Leena Nahata and Ogweno, {George Moses} and Orwig, {Kyle E.} and Pavone, {Mary Ellen} and Peccatori, {Fedro Alessandro} and Pesce, {Romina Ileana} and Hanna Pulaski and Gwendolyn Quinn and Ramiro Quintana and Tomas Quintana and {de Carvalho}, {Bruno Ramalho} and Rosalind Ramsey-Goldman and Joyce Reinecke and Reis, {Fernando M.} and Julie Rios and Rhoton-Vlasak, {Alice S.} and Rodriguez-Wallberg, {Kenny A.} and Cassandra Roeca and Rotz, {Seth J.} and Erin Rowell and Mahmoud Salama and Saraf, {Amanda J.} and Anibal Scarella and Tara Schafer-Kalkhoff and Deb Schmidt and Suneeta Senapati and Divya Shah and Ariella Shikanov and Margarett Shnorhavorian and Skiles, {Jodi L.} and Smith, {James F.} and Kristin Smith and Fabio Sobral and Kyle Stimpert and Su, {H. Irene} and Kouhei Sugimoto and Nao Suzuki and Mili Thakur and David Victorson and Luz Viale and Wendy Vitek and Wallace, {W. Hamish} and Wartella, {Ellen A.} and Westphal, {Lynn M.} and Stacy Whiteside and Wilcox, {Lea H.} and Christine Wyns and Shuo Xiao and Jing Xu and Mary Zelinski",

note = "Funding Information: Additionally, the OC can help pursue opportunities to advocate for funding at the NIH and offer guidance for particular requests for applications (RFAs). Whether this means providing a letter of support for an NIH grant proposal or helping to identify and disseminate relevant grant and funding opportunities, the OC is committed to the advancement of scientific research. Furthermore, we will utilize our network to identify potential collaborators to enhance the scientific merit of proposals and grant applications. We will disseminate these research findings in journals and via social media and other outlets to broaden reach and keep the field connected through sustained engagement and an interdisciplinary approach. Publisher Copyright: {\textcopyright} 2021, Springer Science+Business Media, LLC, part of Springer Nature.",

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month = jan,

doi = "10.1007/s10815-020-01983-4",

language = "English (US)",

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Woodruff, TK, Ataman-Millhouse, L, Acharya, KS, Almeida-Santos, T, Anazodo, A, Anderson, RA, Appiah, L, Bader, J, Becktell, K, Brannigan, RE, Breech, L, Bourlon, MT, Bumbuliene, Ž, Burns, K, Campo-Engelstein, L, Campos, JR, Centola, GM, Chehin, MB, Chen, D, De Vos, M, Duncan, FE, El-Damen, A, Fair, D, Famuyiwa, Y, Fechner, PY, Fontoura, P, Frias, O, Gerkowicz, SA, Ginsberg, J, Gracia, CR, Goldman, K, Gomez-Lobo, V, Hazelrigg, B, Hsieh, MH, Hoyos, LR, Hoyos-Martinez, A, Jach, R, Jassem, J, Javed, M, Jayasinghe, Y, Jeelani, R, Jeruss, JS, Kaul-Mahajan, N, Keim-Malpass, J, Ketterl, TG, Khrouf, M, Kimelman, D, Kusuhara, A, Kutteh, WH, Laronda, MM, Lee, JR, Lehmann, V, Letourneau, JM, McGinnis, LK, McMahon, E, Meacham, LR, Mijangos, MFV, Moravek, M, Nahata, L, Ogweno, GM, Orwig, KE, Pavone, ME, Peccatori, FA, Pesce, RI, Pulaski, H, Quinn, G, Quintana, R, Quintana, T, de Carvalho, BR, Ramsey-Goldman, R, Reinecke, J, Reis, FM, Rios, J, Rhoton-Vlasak, AS, Rodriguez-Wallberg, KA, Roeca, C, Rotz, SJ, Rowell, E, Salama, M, Saraf, AJ, Scarella, A, Schafer-Kalkhoff, T, Schmidt, D, Senapati, S, Shah, D, Shikanov, A, Shnorhavorian, M, Skiles, JL, Smith, JF, Smith, K, Sobral, F, Stimpert, K, Su, HI, Sugimoto, K, Suzuki, N, Thakur, M, Victorson, D, Viale, L, Vitek, W, Wallace, WH, Wartella, EA, Westphal, LM, Whiteside, S, Wilcox, LH, Wyns, C, Xiao, S, Xu, J & Zelinski, M 2021, 'A View from the past into our collective future: the oncofertility consortium vision statement', Journal of Assisted Reproduction and Genetics, vol. 38, no. 1, pp. 3-15. https://doi.org/10.1007/s10815-020-01983-4

TY - JOUR

T1 - A View from the past into our collective future

T2 - the oncofertility consortium vision statement

AU - Woodruff, Teresa K.

AU - Ataman-Millhouse, Lauren

AU - Acharya, Kelly S.

AU - Almeida-Santos, Teresa

AU - Anazodo, Antoinette

AU - Anderson, Richard A.

AU - Appiah, Leslie

AU - Bader, Joy

AU - Becktell, Kerri

AU - Brannigan, Robert E.

AU - Breech, Lesley

AU - Bourlon, Maria T.

AU - Bumbuliene, Žana

AU - Burns, Karen

AU - Campo-Engelstein, Lisa

AU - Campos, Jacira R.

AU - Centola, Grace M.

AU - Chehin, Mauricio Barbour

AU - Chen, Diane

AU - De Vos, Michel

AU - Duncan, Francesca E.

AU - El-Damen, Ahmed

AU - Fair, Douglas

AU - Famuyiwa, Yemi

AU - Fechner, Patricia Y.

AU - Fontoura, Paula

AU - Frias, Olivia

AU - Gerkowicz, Sabrina A.

AU - Ginsberg, Jill

AU - Gracia, Clarisa R.

AU - Goldman, Kara

AU - Gomez-Lobo, Veronica

AU - Hazelrigg, Brent

AU - Hsieh, Michael H.

AU - Hoyos, Luis R.

AU - Hoyos-Martinez, Alfonso

AU - Jach, Robert

AU - Jassem, Jacek

AU - Javed, Murid

AU - Jayasinghe, Yasmin

AU - Jeelani, Roohi

AU - Jeruss, Jacqueline S.

AU - Kaul-Mahajan, Nalini

AU - Keim-Malpass, Jessica

AU - Ketterl, Tyler G.

AU - Khrouf, Mohamed

AU - Kimelman, Dana

AU - Kusuhara, Atsuko

AU - Kutteh, William H.

AU - Laronda, Monica M.

AU - Lee, Jung Ryeol

AU - Lehmann, Vicky

AU - Letourneau, Joseph M.

AU - McGinnis, Lynda K.

AU - McMahon, Eileen

AU - Meacham, Lillian R.

AU - Mijangos, Monserrat Fabiola Velez

AU - Moravek, Molly

AU - Nahata, Leena

AU - Ogweno, George Moses

AU - Orwig, Kyle E.

AU - Pavone, Mary Ellen

AU - Peccatori, Fedro Alessandro

AU - Pesce, Romina Ileana

AU - Pulaski, Hanna

AU - Quinn, Gwendolyn

AU - Quintana, Ramiro

AU - Quintana, Tomas

AU - de Carvalho, Bruno Ramalho

AU - Ramsey-Goldman, Rosalind

AU - Reinecke, Joyce

AU - Reis, Fernando M.

AU - Rios, Julie

AU - Rhoton-Vlasak, Alice S.

AU - Rodriguez-Wallberg, Kenny A.

AU - Roeca, Cassandra

AU - Rotz, Seth J.

AU - Rowell, Erin

AU - Salama, Mahmoud

AU - Saraf, Amanda J.

AU - Scarella, Anibal

AU - Schafer-Kalkhoff, Tara

AU - Schmidt, Deb

AU - Senapati, Suneeta

AU - Shah, Divya

AU - Shikanov, Ariella

AU - Shnorhavorian, Margarett

AU - Skiles, Jodi L.

AU - Smith, James F.

AU - Smith, Kristin

AU - Sobral, Fabio

AU - Stimpert, Kyle

AU - Su, H. Irene

AU - Sugimoto, Kouhei

AU - Suzuki, Nao

AU - Thakur, Mili

AU - Victorson, David

AU - Viale, Luz

AU - Vitek, Wendy

AU - Wallace, W. Hamish

AU - Wartella, Ellen A.

AU - Westphal, Lynn M.

AU - Whiteside, Stacy

AU - Wilcox, Lea H.

AU - Wyns, Christine

AU - Xiao, Shuo

AU - Xu, Jing

AU - Zelinski, Mary

N1 - Funding Information: Additionally, the OC can help pursue opportunities to advocate for funding at the NIH and offer guidance for particular requests for applications (RFAs). Whether this means providing a letter of support for an NIH grant proposal or helping to identify and disseminate relevant grant and funding opportunities, the OC is committed to the advancement of scientific research. Furthermore, we will utilize our network to identify potential collaborators to enhance the scientific merit of proposals and grant applications. We will disseminate these research findings in journals and via social media and other outlets to broaden reach and keep the field connected through sustained engagement and an interdisciplinary approach. Publisher Copyright: © 2021, Springer Science+Business Media, LLC, part of Springer Nature.

PY - 2021/1

Y1 - 2021/1

N2 - Purpose: Today, male and female adult and pediatric cancer patients, individuals transitioning between gender identities, and other individuals facing health extending but fertility limiting treatments can look forward to a fertile future. This is, in part, due to the work of members associated with the Oncofertility Consortium. Methods: The Oncofertility Consortium is an international, interdisciplinary initiative originally designed to explore the urgent unmet need associated with the reproductive future of cancer survivors. As the strategies for fertility management were invented, developed or applied, the individuals for who the program offered hope, similarly expanded. As a community of practice, Consortium participants share information in an open and rapid manner to addresses the complex health care and quality-of-life issues of cancer, transgender and other patients. To ensure that the organization remains contemporary to the needs of the community, the field designed a fully inclusive mechanism for strategic planning and here present the findings of this process. Results: This interprofessional network of medical specialists, scientists, and scholars in the law, medical ethics, religious studies and other disciplines associated with human interventions, explore the relationships between health, disease, survivorship, treatment, gender and reproductive longevity. Conclusion: The goals are to continually integrate the best science in the service of the needs of patients and build a community of care that is ready for the challenges of the field in the future.

AB - Purpose: Today, male and female adult and pediatric cancer patients, individuals transitioning between gender identities, and other individuals facing health extending but fertility limiting treatments can look forward to a fertile future. This is, in part, due to the work of members associated with the Oncofertility Consortium. Methods: The Oncofertility Consortium is an international, interdisciplinary initiative originally designed to explore the urgent unmet need associated with the reproductive future of cancer survivors. As the strategies for fertility management were invented, developed or applied, the individuals for who the program offered hope, similarly expanded. As a community of practice, Consortium participants share information in an open and rapid manner to addresses the complex health care and quality-of-life issues of cancer, transgender and other patients. To ensure that the organization remains contemporary to the needs of the community, the field designed a fully inclusive mechanism for strategic planning and here present the findings of this process. Results: This interprofessional network of medical specialists, scientists, and scholars in the law, medical ethics, religious studies and other disciplines associated with human interventions, explore the relationships between health, disease, survivorship, treatment, gender and reproductive longevity. Conclusion: The goals are to continually integrate the best science in the service of the needs of patients and build a community of care that is ready for the challenges of the field in the future.

KW - Fertility preservation

KW - Oncofertility

KW - cancer

UR - http://www.scopus.com/inward/record.url?scp=85099247624&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85099247624&partnerID=8YFLogxK

U2 - 10.1007/s10815-020-01983-4

DO - 10.1007/s10815-020-01983-4

M3 - Comment/debate

C2 - 33405006

AN - SCOPUS:85099247624

SN - 1058-0468

VL - 38

SP - 3

EP - 15

JO - Journal of Assisted Reproduction and Genetics

JF - Journal of Assisted Reproduction and Genetics

IS - 1

ER -

A View from the past into our collective future: the oncofertility consortium vision statement

Abstract

Funding

Keywords

ASJC Scopus subject areas

UN SDGs

Access to Document

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