Abstract
Background: The overrepresentation of White participants in food allergy research contributes to the development of research questions and interventions not driven by those disproportionately affected by the condition. This ultimately limits the generalizability of research findings and affects the development of knowledge about food allergy and food allergy management. Objective: To develop recommendations to combat inequitable research paradigms and increase participation of racially underrepresented populations in food allergy research. Methods: This study used a modified consensus development method, known as a Delphi method, to assemble the expertise of food allergy clinicians, advocacy leaders, community-engaged researchers, and patients. Results: Findings resulted in 18 recommendations within four domains: community partnership, intentional engagement and messaging, recruitment activities, and dissemination. Conclusions: Findings from this study provide food allergy researchers with specific recommendations for examining their efforts more critically toward recruiting and engaging with racially underrepresented populations, effectively transitioning from a research-on to a research-with relationship with individuals and families living with food allergy.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 281-291 |
| Number of pages | 11 |
| Journal | Journal of Allergy and Clinical Immunology: In Practice |
| Volume | 11 |
| Issue number | 1 |
| DOIs | |
| State | Published - Jan 2023 |
Funding
This study was funded by Food Allergy Research and Education, McLean, Va.Conflicts of interest: L.A. Bilaver receives research support from the National Institutes of Health (NIH) (R01 AI130348, R21 AI159562, U01AI138907), National Institute on Independent Living, Disability, and Rehabilitation Research (90ARCP0006-01-00), Food Allergy Research & Education (FARE), Thermo Fisher Scientific, National Chocolate Association, Yobee Care, Before Brands, Novartis, and Genentech. R.S. Gupta receives research support from the National Institutes of Health (R21 ID No. AI135705, R01 ID No. AI130348, and U01 ID No. AI138907), FARE, the Melchiorre Family Foundation, the Sunshine Charitable Foundation, the Walder Foundation, the UnitedHealth Group, Thermo Fisher Scientific, Novartis, and Genentech. She serves as a medical consultant/advisor for Genentech, Novartis, Aimmune LLC, Allergenis LLC, and FARE. She has ownership interest in Yobee Care, Inc. The rest of the authors declare that they have no relevant conflicts of interest. Conflicts of interest: L.A. Bilaver receives research support from the National Institutes of Health (NIH) (R01 AI130348, R21 AI159562, U01AI138907), National Institute on Independent Living, Disability, and Rehabilitation Research (90ARCP0006-01-00), Food Allergy Research & Education (FARE), Thermo Fisher Scientific, National Chocolate Association, Yobee Care, Before Brands, Novartis, and Genentech. R.S. Gupta receives research support from the National Institutes of Health (R21 ID No. AI135705, R01 ID No. AI130348, and U01 ID No. AI138907), FARE, the Melchiorre Family Foundation, the Sunshine Charitable Foundation, the Walder Foundation, the UnitedHealth Group, Thermo Fisher Scientific , Novartis , and Genentech . She serves as a medical consultant/advisor for Genentech, Novartis, Aimmune LLC, Allergenis LLC, and FARE. She has ownership interest in Yobee Care, Inc. The rest of the authors declare that they have no relevant conflicts of interest.
Keywords
- Delphi method
- Ethnic disparities
- Food allergy
- Participatory research
- Racial disparities
ASJC Scopus subject areas
- Immunology and Allergy
