Advance care planning in Parkinson’s disease: ethical challenges and future directions

Leonard L. Sokol*, Michael J. Young, Jack Paparian, Benzi M. Kluger, Hillary D. Lum, Jessica Besbris, Neha M. Kramer, Anthony E. Lang, Alberto J. Espay, Ornella M. Dubaz, Janis M. Miyasaki, Daniel D. Matlock, Tanya Simuni, Moran Cerf

*Corresponding author for this work

Research output: Contribution to journalArticle

2 Scopus citations

Abstract

Recent discoveries support the principle that palliative care may improve the quality of life of patients with Parkinson’s disease and those who care for them. Advance care planning, a component of palliative care, provides a vehicle through which patients, families, and clinicians can collaborate to identify values, goals, and preferences early, as well as throughout the disease trajectory, to facilitate care concordant with patient wishes. While research on this topic is abundant in other life-limiting disorders, particularly in oncology, there is a paucity of data in Parkinson’s disease and related neurological disorders. We review and critically evaluate current practices on advance care planning through the analyses of three bioethical challenges pertinent to Parkinson’s disease and propose recommendations for each.

Original languageEnglish (US)
Article number24
Journalnpj Parkinson's Disease
Volume5
Issue number1
DOIs
StatePublished - Dec 1 2019

ASJC Scopus subject areas

  • Clinical Neurology
  • Cellular and Molecular Neuroscience
  • Neurology

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    Sokol, L. L., Young, M. J., Paparian, J., Kluger, B. M., Lum, H. D., Besbris, J., Kramer, N. M., Lang, A. E., Espay, A. J., Dubaz, O. M., Miyasaki, J. M., Matlock, D. D., Simuni, T., & Cerf, M. (2019). Advance care planning in Parkinson’s disease: ethical challenges and future directions. npj Parkinson's Disease, 5(1), [24]. https://doi.org/10.1038/s41531-019-0098-0