Abstract
Recent advances in rare disease research are accelerated by the work of consortia that have been supported by the National Institutes of Health. Development of such consortia rely on multidisciplinary relationships and engagement with patient advocacy groups, as well as the National Institutes of Health and industry and academic partners. In this rostrum we present the development of such a process that focuses on eosinophilic gastrointestinal diseases. Principal investigators, patient advocacy groups, research assistants, and trainees work together to perform natural history studies that promote clinical trial readiness tools, conduct clinical trials, train a new generation of investigators, and perform innovative pilot studies.
| Original language | English (US) |
|---|---|
| Pages (from-to) | 28-37 |
| Number of pages | 10 |
| Journal | Journal of Allergy and Clinical Immunology |
| Volume | 145 |
| Issue number | 1 |
| DOIs | |
| State | Published - Jan 2020 |
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Keywords
- Eosinophils
- advocacy
- allergy
- consortium
- esophagitis
- gastrointestinal
ASJC Scopus subject areas
- Immunology and Allergy
- Immunology
Cite this
}
Advancing patient care through the Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR). / Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR).
In: Journal of Allergy and Clinical Immunology, Vol. 145, No. 1, 01.2020, p. 28-37.Research output: Contribution to journal › Article
TY - JOUR
T1 - Advancing patient care through the Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR)
AU - Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR)
AU - Aceves, Seema
AU - Collins, Margaret H.
AU - Rothenberg, Marc E.
AU - Furuta, Glenn T.
AU - Gonsalves, Nirmala
AU - Abonia, J. Pablo
AU - Almonte, Samuel
AU - Andrews, Rachel
AU - Arrington, Ashley
AU - Arva, Nicoleta
AU - Atkins, Fred
AU - Bailey, Dominique
AU - Berry, Alexis
AU - Besl, Bridget
AU - Bolton, Scott
AU - Bonis, Peter
AU - Book, Wendy
AU - Bray, Kimberly
AU - Brown, Teresa
AU - Burger, Cassandra
AU - Burke, Deirdre
AU - Cahoon, Jonathon
AU - Capocelli, Kelley
AU - Chehade, Mirna
AU - Collins, Margaret
AU - Davis, Carla
AU - Dellon, Evan
AU - DeMarshall, Maureen
AU - DiTommaso, Lauren
AU - Dohil, Ranjan
AU - Eby, Michael
AU - Falk, Gary
AU - Fleischer, David
AU - Foote, Heather
AU - Foss, Kelci
AU - Friedlander, Joel
AU - Fulkerson, Patricia
AU - Furuta, Glenn
AU - Geno, Debra
AU - Greuter, Thomas
AU - Gupta, Sandeep
AU - Hamilton, Frank
AU - Harris, Kirk
AU - Harris, Jennifer
AU - Hirano, Ikuo
AU - Hiremath, Girish
AU - Holland-Thomas, Nicole
AU - Jacinto, Lea
AU - Kagalwalla, Amir
AU - Kaseta, Timothy
PY - 2020/1
Y1 - 2020/1
N2 - Recent advances in rare disease research are accelerated by the work of consortia that have been supported by the National Institutes of Health. Development of such consortia rely on multidisciplinary relationships and engagement with patient advocacy groups, as well as the National Institutes of Health and industry and academic partners. In this rostrum we present the development of such a process that focuses on eosinophilic gastrointestinal diseases. Principal investigators, patient advocacy groups, research assistants, and trainees work together to perform natural history studies that promote clinical trial readiness tools, conduct clinical trials, train a new generation of investigators, and perform innovative pilot studies.
AB - Recent advances in rare disease research are accelerated by the work of consortia that have been supported by the National Institutes of Health. Development of such consortia rely on multidisciplinary relationships and engagement with patient advocacy groups, as well as the National Institutes of Health and industry and academic partners. In this rostrum we present the development of such a process that focuses on eosinophilic gastrointestinal diseases. Principal investigators, patient advocacy groups, research assistants, and trainees work together to perform natural history studies that promote clinical trial readiness tools, conduct clinical trials, train a new generation of investigators, and perform innovative pilot studies.
KW - Eosinophils
KW - advocacy
KW - allergy
KW - consortium
KW - esophagitis
KW - gastrointestinal
UR - http://www.scopus.com/inward/record.url?scp=85076865962&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85076865962&partnerID=8YFLogxK
U2 - 10.1016/j.jaci.2019.11.012
DO - 10.1016/j.jaci.2019.11.012
M3 - Article
C2 - 31758958
AN - SCOPUS:85076865962
VL - 145
SP - 28
EP - 37
JO - Journal of Allergy and Clinical Immunology
JF - Journal of Allergy and Clinical Immunology
SN - 0091-6749
IS - 1
ER -