@article{0e76759825864c9fa90f6ba721c2e5b0,
title = "Advancing patient care through the Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR)",
abstract = "Recent advances in rare disease research are accelerated by the work of consortia that have been supported by the National Institutes of Health. Development of such consortia rely on multidisciplinary relationships and engagement with patient advocacy groups, as well as the National Institutes of Health and industry and academic partners. In this rostrum we present the development of such a process that focuses on eosinophilic gastrointestinal diseases. Principal investigators, patient advocacy groups, research assistants, and trainees work together to perform natural history studies that promote clinical trial readiness tools, conduct clinical trials, train a new generation of investigators, and perform innovative pilot studies.",
keywords = "Eosinophils, advocacy, allergy, consortium, esophagitis, gastrointestinal",
author = "{Consortium of Eosinophilic Gastrointestinal Disease Researchers (CEGIR)} and Seema Aceves and Collins, {Margaret H.} and Rothenberg, {Marc E.} and Furuta, {Glenn T.} and Nirmala Gonsalves and Abonia, {J. Pablo} and Samuel Almonte and Rachel Andrews and Ashley Arrington and Nicoleta Arva and Fred Atkins and Dominique Bailey and Alexis Berry and Bridget Besl and Scott Bolton and Peter Bonis and Wendy Book and Kimberly Bray and Teresa Brown and Cassandra Burger and Deirdre Burke and Jonathon Cahoon and Kelley Capocelli and Mirna Chehade and Margaret Collins and Carla Davis and Evan Dellon and Maureen DeMarshall and Lauren DiTommaso and Ranjan Dohil and Michael Eby and Gary Falk and David Fleischer and Heather Foote and Kelci Foss and Joel Friedlander and Patricia Fulkerson and Glenn Furuta and Debra Geno and Thomas Greuter and Sandeep Gupta and Frank Hamilton and Kirk Harris and Jennifer Harris and Ikuo Hirano and Girish Hiremath and Amir Kagalwalla and Joshua Wechsler and Barry Wershil and Yang, {Guang Yu}",
note = "Funding Information: Supported by the Consortium for Eosinophilic Gastrointestinal Diseases Researchers (CEGIR; U54 AI117804). CEGIR is part of the Rare Diseases Clinical Research Network (RDCRN), an initiative of the Office of Rare Diseases Research (ORDR), National Center for Advancing Translational Sciences (NCATS), and is funded through collaboration between the National Institute of Allergy and Infectious Diseases (NIAID), National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK), and NCATS. CEGIR is also supported by patient advocacy groups, including the American Partnership for Eosinophilic Disorders (APFED), Campaign Urging Research for Eosinophilic Diseases (CURED), and Eosinophilic Family Coalition (EFC). G.T.F. is also supported by the LaCache Chair in Gastrointestinal Allergic and Immunologic Diseases Chair of Pediatrics.",
year = "2020",
month = jan,
doi = "10.1016/j.jaci.2019.11.012",
language = "English (US)",
volume = "145",
pages = "28--37",
journal = "Journal of Allergy and Clinical Immunology",
issn = "0091-6749",
publisher = "Mosby Inc.",
number = "1",
}