Applying best practices to designing patient education for patients with end-stage renal disease pursuing kidney transplant

Stacy L. Skelton*, Amy D. Waterman, La Shara A. Davis, John D. Peipert, Anne F. Fish

*Corresponding author for this work

Research output: Contribution to journalArticle

16 Citations (Scopus)

Abstract

Despite the known benefits of kidney transplant, less than 30% of the 615 000 patients living with end-stage renal disease (ESRD) in the United States have received a transplant. More than 100 000 people are presently on the transplant waiting list. Although the shortage of kidneys for transplant remains a critical factor in explaining lower transplant rates, another important and modifiable factor is patients' lack of comprehensive education about transplant. The purpose of this article is to provide an overview of known best practices from the broader literature that can be used as an evidence base to design improved education for ESRD patients pursuing a kidney transplant. Best practices in chronic disease education generally reveal that education that is individually tailored, understandable for patients with low health literacy, and culturally competent is most beneficial. Effective education helps patients navigate the complex health care process successfully. Recommendations for how to incorporate these best practices into transplant education design are described. Providing more ESRD patients with transplant education that encompasses these best practices may improve their ability to make informed health care decisions and increase the numbers of patients interested in pursuing transplant.

Original languageEnglish (US)
Pages (from-to)77-90
Number of pages14
JournalProgress in Transplantation
Volume25
Issue number1
DOIs
StatePublished - Mar 1 2015

Fingerprint

Patient Education
Practice Guidelines
Chronic Kidney Failure
Transplants
Kidney
Education
Delivery of Health Care
Health Literacy
Waiting Lists
Chronic Disease

ASJC Scopus subject areas

  • Transplantation

Cite this

Skelton, Stacy L. ; Waterman, Amy D. ; Davis, La Shara A. ; Peipert, John D. ; Fish, Anne F. / Applying best practices to designing patient education for patients with end-stage renal disease pursuing kidney transplant. In: Progress in Transplantation. 2015 ; Vol. 25, No. 1. pp. 77-90.
@article{6d794b181a034c60bf3f66b789407515,
title = "Applying best practices to designing patient education for patients with end-stage renal disease pursuing kidney transplant",
abstract = "Despite the known benefits of kidney transplant, less than 30{\%} of the 615 000 patients living with end-stage renal disease (ESRD) in the United States have received a transplant. More than 100 000 people are presently on the transplant waiting list. Although the shortage of kidneys for transplant remains a critical factor in explaining lower transplant rates, another important and modifiable factor is patients' lack of comprehensive education about transplant. The purpose of this article is to provide an overview of known best practices from the broader literature that can be used as an evidence base to design improved education for ESRD patients pursuing a kidney transplant. Best practices in chronic disease education generally reveal that education that is individually tailored, understandable for patients with low health literacy, and culturally competent is most beneficial. Effective education helps patients navigate the complex health care process successfully. Recommendations for how to incorporate these best practices into transplant education design are described. Providing more ESRD patients with transplant education that encompasses these best practices may improve their ability to make informed health care decisions and increase the numbers of patients interested in pursuing transplant.",
author = "Skelton, {Stacy L.} and Waterman, {Amy D.} and Davis, {La Shara A.} and Peipert, {John D.} and Fish, {Anne F.}",
year = "2015",
month = "3",
day = "1",
doi = "10.7182/pit2015415",
language = "English (US)",
volume = "25",
pages = "77--90",
journal = "Progress in Transplantation",
issn = "1526-9248",
publisher = "InnoVision Communications",
number = "1",

}

Applying best practices to designing patient education for patients with end-stage renal disease pursuing kidney transplant. / Skelton, Stacy L.; Waterman, Amy D.; Davis, La Shara A.; Peipert, John D.; Fish, Anne F.

In: Progress in Transplantation, Vol. 25, No. 1, 01.03.2015, p. 77-90.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Applying best practices to designing patient education for patients with end-stage renal disease pursuing kidney transplant

AU - Skelton, Stacy L.

AU - Waterman, Amy D.

AU - Davis, La Shara A.

AU - Peipert, John D.

AU - Fish, Anne F.

PY - 2015/3/1

Y1 - 2015/3/1

N2 - Despite the known benefits of kidney transplant, less than 30% of the 615 000 patients living with end-stage renal disease (ESRD) in the United States have received a transplant. More than 100 000 people are presently on the transplant waiting list. Although the shortage of kidneys for transplant remains a critical factor in explaining lower transplant rates, another important and modifiable factor is patients' lack of comprehensive education about transplant. The purpose of this article is to provide an overview of known best practices from the broader literature that can be used as an evidence base to design improved education for ESRD patients pursuing a kidney transplant. Best practices in chronic disease education generally reveal that education that is individually tailored, understandable for patients with low health literacy, and culturally competent is most beneficial. Effective education helps patients navigate the complex health care process successfully. Recommendations for how to incorporate these best practices into transplant education design are described. Providing more ESRD patients with transplant education that encompasses these best practices may improve their ability to make informed health care decisions and increase the numbers of patients interested in pursuing transplant.

AB - Despite the known benefits of kidney transplant, less than 30% of the 615 000 patients living with end-stage renal disease (ESRD) in the United States have received a transplant. More than 100 000 people are presently on the transplant waiting list. Although the shortage of kidneys for transplant remains a critical factor in explaining lower transplant rates, another important and modifiable factor is patients' lack of comprehensive education about transplant. The purpose of this article is to provide an overview of known best practices from the broader literature that can be used as an evidence base to design improved education for ESRD patients pursuing a kidney transplant. Best practices in chronic disease education generally reveal that education that is individually tailored, understandable for patients with low health literacy, and culturally competent is most beneficial. Effective education helps patients navigate the complex health care process successfully. Recommendations for how to incorporate these best practices into transplant education design are described. Providing more ESRD patients with transplant education that encompasses these best practices may improve their ability to make informed health care decisions and increase the numbers of patients interested in pursuing transplant.

UR - http://www.scopus.com/inward/record.url?scp=84924787168&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=84924787168&partnerID=8YFLogxK

U2 - 10.7182/pit2015415

DO - 10.7182/pit2015415

M3 - Article

C2 - 25758805

AN - SCOPUS:84924787168

VL - 25

SP - 77

EP - 90

JO - Progress in Transplantation

JF - Progress in Transplantation

SN - 1526-9248

IS - 1

ER -