Assessing vigilance in caregivers after traumatic brain injury: TBI-CareQOL Caregiver Vigilance.

Noelle E. Carlozzi*, Rael T. Lange, Michael A. Kallen, Nicholas R. Boileau, Angelle M. Sander, Jill P. Massengale, Risa Nakase-Richardson, David S. Tulsky, Louis M. French, Elizabeth A. Hahn, Phillip A. Ianni, Jennifer A. Miner, Robin Hanks, Tracey A. Brickell

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

1 Scopus citations

Abstract

Objective: Caregivers of individuals with traumatic brain injury (TBI) frequently experience anxiety related to the caregiver role. Often this is due to a caregiver’s perceived need to avoid people and situations that might upset or “trigger” the care recipient. There are currently no self-report measures that capture these feelings; thus, this article describes the development and preliminary validation efforts for the TBI-Caregiver Quality of Life (CareQOL) Caregiver Vigilance item bank. Design: A sample of 532 caregivers of civilians (n = 218) or service members/veterans (SMVs; n = 314) with TBI completed 32 caregiver vigilance items, other measures of health-related quality of life (RAND-12, Patient-Reported Outcomes Measurement Information System [PROMIS] Depression, PROMIS Social Isolation, Caregiver Appraisal Scale), and the Mayo–Portland Adaptability Inventory-4. Results: The final item bank contains 18 items, as supported by exploratory and confirmatory factor analysis, item response theory graded response modeling (GRM), and differential item functioning investigations. Expert review and GRM calibration data informed the selection of a 6-item short form and programming of a computer adaptive test. Internal consistency reliability for the different administration formats were excellent (reliability coefficients ≥ .90). Three-week test–retest stability was supported (i.e., r ≥ .78). Correlations between vigilance and other self-report measures supported convergent and discriminant validity (0.01 ≤ r ≤ .69). Known-groups validity was also supported. Conclusions: The new TBI-CareQOL Caregiver Vigilance computer adaptive test and corresponding 6-item short form were developed using established rigorous measurement development standards, providing the first self-report measure to evaluate caregiver vigilance. This development work indicates that this measure exhibits strong psychometric properties. (PsycInfo Database Record (c) 2020 APA, all rights reserved)

Original languageEnglish (US)
Pages (from-to)418-431
Number of pages14
JournalRehabilitation Psychology
Volume65
Issue number4
DOIs
StatePublished - 2020

Keywords

  • caregiver
  • caregiver burden
  • health-related quality of life
  • patient-reported outcomes
  • traumatic brain injury

ASJC Scopus subject areas

  • Physical Therapy, Sports Therapy and Rehabilitation
  • Rehabilitation
  • Clinical Psychology
  • Psychiatry and Mental health

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