Association between participants' characteristics, patient-reported outcomes, and clinical outcomes in youth with sickle cell disease

Sherif M Badawy*, Leonardo Barrera, Stephanie Cai, Alexis A Thompson

*Corresponding author for this work

Research output: Contribution to journalArticle

1 Citation (Scopus)

Abstract

Background. Sickle cell disease (SCD) is a chronic debilitating illness. SCD-related complications result in substantial impairment in quality of life (QOL). Our study objective was to assess the relationship of participants' characteristics, QOL, hydroxyurea adherence, and SCD-related clinical outcomes in youth with SCD. Procedure. A single-center cross-sectional study. Thirty-four youth with SCD enrolled from clinic between January and December 2015. Participants completed PROMIS® measures and

Original languageEnglish (US)
Article number8296139
JournalBioMed Research International
Volume2018
DOIs
StatePublished - Jan 1 2018

Fingerprint

Sickle Cell Anemia
Quality of Life
Hydroxyurea
Chronic Disease
Cross-Sectional Studies
Patient Reported Outcome Measures

ASJC Scopus subject areas

  • Biochemistry, Genetics and Molecular Biology(all)
  • Immunology and Microbiology(all)

Cite this

@article{7fd44865fc164c48aee9cbe0b82d4dee,
title = "Association between participants' characteristics, patient-reported outcomes, and clinical outcomes in youth with sickle cell disease",
abstract = "Background. Sickle cell disease (SCD) is a chronic debilitating illness. SCD-related complications result in substantial impairment in quality of life (QOL). Our study objective was to assess the relationship of participants' characteristics, QOL, hydroxyurea adherence, and SCD-related clinical outcomes in youth with SCD. Procedure. A single-center cross-sectional study. Thirty-four youth with SCD enrolled from clinic between January and December 2015. Participants completed PROMIS{\circledR} measures and",
author = "Badawy, {Sherif M} and Leonardo Barrera and Stephanie Cai and Thompson, {Alexis A}",
year = "2018",
month = "1",
day = "1",
doi = "10.1155/2018/8296139",
language = "English (US)",
volume = "2018",
journal = "BioMed Research International",
issn = "2314-6133",
publisher = "Hindawi Publishing Corporation",

}

TY - JOUR

T1 - Association between participants' characteristics, patient-reported outcomes, and clinical outcomes in youth with sickle cell disease

AU - Badawy, Sherif M

AU - Barrera, Leonardo

AU - Cai, Stephanie

AU - Thompson, Alexis A

PY - 2018/1/1

Y1 - 2018/1/1

N2 - Background. Sickle cell disease (SCD) is a chronic debilitating illness. SCD-related complications result in substantial impairment in quality of life (QOL). Our study objective was to assess the relationship of participants' characteristics, QOL, hydroxyurea adherence, and SCD-related clinical outcomes in youth with SCD. Procedure. A single-center cross-sectional study. Thirty-four youth with SCD enrolled from clinic between January and December 2015. Participants completed PROMIS® measures and

AB - Background. Sickle cell disease (SCD) is a chronic debilitating illness. SCD-related complications result in substantial impairment in quality of life (QOL). Our study objective was to assess the relationship of participants' characteristics, QOL, hydroxyurea adherence, and SCD-related clinical outcomes in youth with SCD. Procedure. A single-center cross-sectional study. Thirty-four youth with SCD enrolled from clinic between January and December 2015. Participants completed PROMIS® measures and

UR - http://www.scopus.com/inward/record.url?scp=85051021114&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85051021114&partnerID=8YFLogxK

U2 - 10.1155/2018/8296139

DO - 10.1155/2018/8296139

M3 - Article

VL - 2018

JO - BioMed Research International

JF - BioMed Research International

SN - 2314-6133

M1 - 8296139

ER -