@article{7fd44865fc164c48aee9cbe0b82d4dee,
title = "Association between participants' characteristics, patient-reported outcomes, and clinical outcomes in youth with sickle cell disease",
abstract = "Background. Sickle cell disease (SCD) is a chronic debilitating illness. SCD-related complications result in substantial impairment in quality of life (QOL). Our study objective was to assess the relationship of participants' characteristics, QOL, hydroxyurea adherence, and SCD-related clinical outcomes in youth with SCD. Procedure. A single-center cross-sectional study. Thirty-four youth with SCD enrolled from clinic between January and December 2015. Participants completed PROMIS{\textregistered} measures and",
author = "Badawy, {Sherif M.} and Leonardo Barrera and Stephanie Cai and Thompson, {Alexis A.}",
note = "Funding Information: This project was supported by Grant no. K12HS023011 from the Agency for Healthcare Research and Quality. Thanks are due to the PROMIS Assessment Center at the Department of Medical Social Sciences at Northwestern University and REDCap at the Northwestern University Clinical and Translational Sciences (NUCATS) Institute for their technical support during the study. The Northwestern University Clinical and Translational Science (NUCATS) Institute supported REDCap at FSM. Research reported in this publication was supported, in part, by the National Institutes of Health{\textquoteright}s National Center for Advancing Translational Sciences, Grant no. UL1TR001422. Thanks are due also to Dr. Morisky for giving the authors permission to use the {\textcopyright}Modified Morisky Adherence Scale 8-items ({\textcopyright}MMAS-8). Publisher Copyright: {\textcopyright}Modified Morisky Adherence Scale. Results. Participants had a mean age of 14.8 (SD 2.9) years and 41% were female.",
year = "2018",
doi = "10.1155/2018/8296139",
language = "English (US)",
volume = "2018",
journal = "BioMed Research International",
issn = "2314-6133",
publisher = "Hindawi Publishing Corporation",
}