Barriers to care for children and youth with special health care needs: Perceptions of illinois pediatricians

Rishi Agrawal, Parag Shah*, Kathy Zebracki, Kathy Sanabria, Claire Kohrman, Arthur F. Kohrman

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

21 Scopus citations

Abstract

Objective. To assess primary care pediatricians' (PCPs') perceptions of caring for children and youth with special health care needs (CYSHCN). Methods. Cross-sectional survey of Illinois pediatricians. Results. Thirty-five percent of surveys were returned and 26% were analyzed. The top 3 perceived barriers were insufficient time (72%), insufficient reimbursement (68%), and lack of support services (59%). Insufficient interest was the least cited barrier (19%). Preparedness to perform tasks related to care of CYSHCN ranged from 89% for accessing early intervention services to 24% for billing and coding. The percentage of PCPs somewhat or very comfortable providing primary care to patients with technology dependence ranged from 75% for blood glucose monitoring to 12% for dialysis. Conclusions. The issues of time, reimbursement, billing, and coding are perceived as significant barriers to the care CYSHCN. There is substantial variation in PCPs' comfort in the care of CYSHCN who require the assistance of medical technologies.

Original languageEnglish (US)
Pages (from-to)39-45
Number of pages7
JournalClinical pediatrics
Volume51
Issue number1
DOIs
StatePublished - Jan 2012

Keywords

  • children
  • children and youth with special health care needs
  • chronic illness
  • health services research
  • medical home
  • pediatrics
  • primary care
  • technology dependence

ASJC Scopus subject areas

  • Pediatrics, Perinatology, and Child Health

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