TY - JOUR
T1 - Cardiac Networks United
T2 - An integrated paediatric and congenital cardiovascular research and improvement network
AU - Cardiac Networks United Executive Committee and Advisory Board
AU - Gaies, Michael
AU - Anderson, Jeffrey
AU - Kipps, Alaina
AU - Lorts, Angela
AU - Madsen, Nicolas
AU - Marino, Bradley
AU - Costello, John M.
AU - Brown, David
AU - Jacobs, Jeffrey P.
AU - Kasnic, David
AU - Lihn, Stacey
AU - Lannon, Carole
AU - Margolis, Peter
AU - Pearson, Gail D.
AU - Kaltman, Jonathan
AU - Charpie, John R.
AU - Redington, Andrew N.
AU - Pasquali, Sara K.
N1 - Publisher Copyright:
© 2018 Cambridge University Press..
PY - 2019/2/1
Y1 - 2019/2/1
N2 - Optimising short- and long-term outcomes for children and patients with CHD depends on continued scientific discovery and translation to clinical improvements in a coordinated effort by multiple stakeholders. Several challenges remain for clinicians, researchers, administrators, patients, and families seeking continuous scientific and clinical advancements in the field. We describe a new integrated research and improvement network - Cardiac Networks United - that seeks to build upon the experience and success achieved to-date to create a new infrastructure for research and quality improvement that will serve the needs of the paediatric and congenital heart community in the future. Existing gaps in data integration and barriers to improvement are described, along with the mission and vision, organisational structure, and early objectives of Cardiac Networks United. Finally, representatives of key stakeholder groups - heart centre executives, research leaders, learning health system experts, and parent advocates - offer their perspectives on the need for this new collaborative effort.
AB - Optimising short- and long-term outcomes for children and patients with CHD depends on continued scientific discovery and translation to clinical improvements in a coordinated effort by multiple stakeholders. Several challenges remain for clinicians, researchers, administrators, patients, and families seeking continuous scientific and clinical advancements in the field. We describe a new integrated research and improvement network - Cardiac Networks United - that seeks to build upon the experience and success achieved to-date to create a new infrastructure for research and quality improvement that will serve the needs of the paediatric and congenital heart community in the future. Existing gaps in data integration and barriers to improvement are described, along with the mission and vision, organisational structure, and early objectives of Cardiac Networks United. Finally, representatives of key stakeholder groups - heart centre executives, research leaders, learning health system experts, and parent advocates - offer their perspectives on the need for this new collaborative effort.
KW - Clinical registries
KW - collaborative quality improvement
KW - other
KW - paediatric cardiology
KW - quality improvement
UR - http://www.scopus.com/inward/record.url?scp=85061900250&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85061900250&partnerID=8YFLogxK
U2 - 10.1017/S1047951118001683
DO - 10.1017/S1047951118001683
M3 - Article
C2 - 30567622
AN - SCOPUS:85061900250
SN - 1047-9511
VL - 29
SP - 111
EP - 118
JO - Cardiology in the young
JF - Cardiology in the young
IS - 2
ER -