Children's contributions to designing a communication tool for children with cancer

Cornelia M. Ruland*, Laura Slaughter, Justin Starren, Torun M. Vatne, Elisabeth Y. Moe

*Corresponding author for this work

Research output: Chapter in Book/Report/Conference proceedingConference contribution

Abstract

In this paper, we describe the roles played as well as contributions made by child participants in the design of an innovative communication tool for children with cancer. SISOM is a handheld, portable computer application with a graphical user interface that is meant to: (1) help children with cancer communicate their symptoms / problems in a child-friendly, age-adjusted manner; and (2) assist clinicians in addressing children's experienced symptoms and problems in patient care. Unlike other applications for children, the purpose of SISOM is not to provide information to ill children but to elicit personal information from them. Thus the application has a unique set of design issues. Healthy and ill children played an important role in different stages in the design process. They made significant contributions to the graphical design of the system's interface; selection of understandable, child-friendly terms used by the system to describe symptoms; iconic and graphical representations; and its usability. We describe the participatory design methods we used that included children and share important insights from this collaborative design process.

Original languageEnglish (US)
Title of host publicationMEDINFO 2007 - Proceedings of the 12th World Congress on Health (Medical) Informatics
Subtitle of host publicationBuilding Sustainable Health Systems
Pages977-982
Number of pages6
Volume129
Publication statusPublished - Dec 1 2007
Event12th World Congress on Medical Informatics, MEDINFO 2007 - Brisbane, QLD, Australia
Duration: Aug 20 2007Aug 24 2007

Other

Other12th World Congress on Medical Informatics, MEDINFO 2007
CountryAustralia
CityBrisbane, QLD
Period8/20/078/24/07

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Keywords

  • cancer
  • children
  • participatory design
  • usability

ASJC Scopus subject areas

  • Biomedical Engineering
  • Health Informatics
  • Health Information Management

Cite this

Ruland, C. M., Slaughter, L., Starren, J., Vatne, T. M., & Moe, E. Y. (2007). Children's contributions to designing a communication tool for children with cancer. In MEDINFO 2007 - Proceedings of the 12th World Congress on Health (Medical) Informatics: Building Sustainable Health Systems (Vol. 129, pp. 977-982)