TY - JOUR
T1 - Collaborative involvement of primary and secondary caregivers
T2 - Associations with youths diabetes outcomes
AU - Wysocki, Tim
AU - Nansel, Tonja R.
AU - Holmbeck, Grayson N.
AU - Chen, Rusan
AU - Laffel, Lori
AU - Anderson, Barbara J.
AU - Weissberg-Benchell, Jill
N1 - Funding Information:
The following institutions and investigators comprised the steering committee of the Family Management of Diabetes multisite trial. This research was supported by the intramural research program of the National Institutes of Health, National Institute of Child Health, and Human Development. National Institute of Child Health and Human Development, Bethesda, Maryland: Tonja R. Nansel, PhD; Ronald J. Iannotti, PhD. Joslin Diabetes Center, Boston, Massachusetts: Lori Laffel, MD, MPH; Debbie Butler, MSW; Contract N01-HD-4-3361. Nemours Children’s Clinic, Jacksonville, Florida: Tim Wysocki, PhD; Amanda Lochrie, PhD. Contract N01-HD-4-3362. Dr. Wysocki was also supported by an NIH Midcareer Investigator Award in Patient-Oriented Research #K24-DK-67128 during this work. Texas Children’s Hospital, Houston, Texas: Barbara Anderson, PhD. Contract N01-HD-4-3363. Children’s Memorial Hospital, Chicago, Illinois: Jill Weissberg-Benchell, PhD; Grayson Holmbeck, PhD. Contract N01-HD-4-3364. James Bell Associates, Arlington, Virginia; Cheryl McDonnell, PhD; MaryAnn D’Elio, Contract N01-HD-3-3360.
PY - 2009/9
Y1 - 2009/9
N2 - ObjectiveCollaboration between youths with type 1 diabetes (T1D) and their adult caregivers may be central to effective management of T1D. This article includes analysis of cross-sectional associations between T1D outcomes (adherence, glycemic control, quality of life, family conflict, depression, and self-efficacy) and scores on the Collaborative Parent Involvement (CPI) Scale obtained from 309 youths with T1D about their primary and secondary caregivers.MethodsMANCOVA, controlling for age, evaluated associations of diabetes outcomes with youths' CPI scores for each caregiver.ResultsDiabetes outcomes were poor when both caregivers obtained CPI scores below the median. Diabetes outcomes were more strongly associated with CPI scores of primary, rather than secondary, caregivers. CPI scores at or above the median among primary caregivers were associated with more favorable status on multiple youth outcomes. When both caregivers obtained CPI scores at or above the median, children had significantly lower HbA1C and parents retained more responsibility for diabetes care.ConclusionsHigher collaborative involvement, particularly among primary caregivers, was associated with favorable status along a variety of diabetes outcomes. Longitudinal studies could confirm if youthparent collaboration is a justifiable intervention target.
AB - ObjectiveCollaboration between youths with type 1 diabetes (T1D) and their adult caregivers may be central to effective management of T1D. This article includes analysis of cross-sectional associations between T1D outcomes (adherence, glycemic control, quality of life, family conflict, depression, and self-efficacy) and scores on the Collaborative Parent Involvement (CPI) Scale obtained from 309 youths with T1D about their primary and secondary caregivers.MethodsMANCOVA, controlling for age, evaluated associations of diabetes outcomes with youths' CPI scores for each caregiver.ResultsDiabetes outcomes were poor when both caregivers obtained CPI scores below the median. Diabetes outcomes were more strongly associated with CPI scores of primary, rather than secondary, caregivers. CPI scores at or above the median among primary caregivers were associated with more favorable status on multiple youth outcomes. When both caregivers obtained CPI scores at or above the median, children had significantly lower HbA1C and parents retained more responsibility for diabetes care.ConclusionsHigher collaborative involvement, particularly among primary caregivers, was associated with favorable status along a variety of diabetes outcomes. Longitudinal studies could confirm if youthparent collaboration is a justifiable intervention target.
KW - Adherence
KW - Diabetes
KW - Metabolic control
KW - Parent involvement
KW - Responsibility
KW - Social support
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U2 - 10.1093/jpepsy/jsn136
DO - 10.1093/jpepsy/jsn136
M3 - Article
C2 - 19112077
AN - SCOPUS:69249209762
SN - 0146-8693
VL - 34
SP - 869
EP - 881
JO - Journal of Pediatric Psychology
JF - Journal of Pediatric Psychology
IS - 8
ER -
