TY - JOUR
T1 - Community-initiated research engagement
T2 - Equitable partnership delivering research-ready faith-based ambassadors
AU - Johnson, Rebecca
AU - Ingram, Diana
AU - Gordon, Bishop Simon
AU - Davis, Paris
AU - Greer-Smith, Regina
N1 - Funding Information:
We thank all CAB members, faith-based community leaders, and congregations who are part of the P4P network. This project was funded through a Patient-Centered Outcomes Research Institute (PCORI) Eugene Washington Award. The views presented in this article are solely the responsibility of the authors and do not necessarily represent the views of the PCORI, its Board of Governors, or Methodology Committee.
Publisher Copyright:
© 2020 Johns Hopkins University Press.
PY - 2020/6/1
Y1 - 2020/6/1
N2 - Background: Faith-based communities supporting diverse and underserved communities are increasingly being recognized by health researchers as valued partners for research engagement. Although the “why engage” is clearly documented, the how and lessons learned is less well evidenced. Objectives: This article describes community-academic collaboration initiated by African American faith-based church leaders to foster equitable partnership, engagement and shared decision making in patient-centered health research initiatives. Methods: A phased process of relationship and capacity building was used to found and operationalize a mixed stakeholder community advisory board (CAB). Core phases presented in this article are (1) pre-CAB capacity building, (2) developing the CAB vision and mission, (3) extending CAB capacity, and (4) sustaining CAB capacity. Lessons Learned: Collaborative governance and shared goal setting delivers research engagement which supports the data needs and aspirations of faith-based communities. Conclusions: Faith-based communities have the capacity to design and deliver community appropriate governance for research engagement.
AB - Background: Faith-based communities supporting diverse and underserved communities are increasingly being recognized by health researchers as valued partners for research engagement. Although the “why engage” is clearly documented, the how and lessons learned is less well evidenced. Objectives: This article describes community-academic collaboration initiated by African American faith-based church leaders to foster equitable partnership, engagement and shared decision making in patient-centered health research initiatives. Methods: A phased process of relationship and capacity building was used to found and operationalize a mixed stakeholder community advisory board (CAB). Core phases presented in this article are (1) pre-CAB capacity building, (2) developing the CAB vision and mission, (3) extending CAB capacity, and (4) sustaining CAB capacity. Lessons Learned: Collaborative governance and shared goal setting delivers research engagement which supports the data needs and aspirations of faith-based communities. Conclusions: Faith-based communities have the capacity to design and deliver community appropriate governance for research engagement.
KW - Engagement
KW - Faith-based communities
KW - Pastors4PCOR
KW - Research ministry ambassadors
KW - Shared decision making
UR - http://www.scopus.com/inward/record.url?scp=85086028919&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85086028919&partnerID=8YFLogxK
U2 - 10.1353/cpr.2020.0020
DO - 10.1353/cpr.2020.0020
M3 - Article
C2 - 33416641
AN - SCOPUS:85086028919
VL - 14
SP - 197
EP - 206
JO - Progress in Community Health Partnerships: Research, Education, and Action
JF - Progress in Community Health Partnerships: Research, Education, and Action
SN - 1557-0541
IS - 2
ER -