TY - JOUR
T1 - Community perspectives
T2 - Developing and implementing a smartphone intervention for latina breast cancer survivors in Chicago
AU - Oswald, Laura B.
AU - Guitelman, Judy
AU - Buitrago, Diana
AU - Buscemi, Joanna
AU - Iacobelli, Francisco
AU - Perez-Tamayo, Alejandra
AU - Penedo, Frank
AU - Yanez, Betina
N1 - Funding Information:
This study was funded by NCI grant U54CA202995, U54CA202997, U54CA203000. L.B.O. was funded by training grant CA193193.
Publisher Copyright:
© 2019 Johns Hopkins University Press.
PY - 2019
Y1 - 2019
N2 - Compared with non-Latina White breast cancer survivors (BCS), Latina BCS have poorer health-related quality of life and greater psychosocial needs. However, Latinas are less engaged in clinical research owing to barriers including less access to health-related information, less awareness of clinical trials, and practical barriers (e.g., competing time demands). Latina BCS are in need of educational and health-related resources that are culturally informed, scalable, and accessible. In 2015, the Chicago Cancer Health Equity Collaborative (ChicagoCHEC), a National Cancer Institute research collaborative, and ALAS-WINGS, a community organization providing educational and supportive resources to Latina BCS, partnered to develop My Guide. My Guide is a smartphone application-based intervention for Latina BCS designed to improve health-related quality of life (HRQOL). This article summarizes the experiences of ChicagoCHEC and ALAS-WINGS throughout the community-engaged research (CEnR) partnership. Using existing relationships in community and academic settings via CEnR provides an ideal starting point for tailoring resources to Latina BCS and engaging Latina BCS in health-related research.
AB - Compared with non-Latina White breast cancer survivors (BCS), Latina BCS have poorer health-related quality of life and greater psychosocial needs. However, Latinas are less engaged in clinical research owing to barriers including less access to health-related information, less awareness of clinical trials, and practical barriers (e.g., competing time demands). Latina BCS are in need of educational and health-related resources that are culturally informed, scalable, and accessible. In 2015, the Chicago Cancer Health Equity Collaborative (ChicagoCHEC), a National Cancer Institute research collaborative, and ALAS-WINGS, a community organization providing educational and supportive resources to Latina BCS, partnered to develop My Guide. My Guide is a smartphone application-based intervention for Latina BCS designed to improve health-related quality of life (HRQOL). This article summarizes the experiences of ChicagoCHEC and ALAS-WINGS throughout the community-engaged research (CEnR) partnership. Using existing relationships in community and academic settings via CEnR provides an ideal starting point for tailoring resources to Latina BCS and engaging Latina BCS in health-related research.
KW - Breast neoplasms
KW - Community health partnerships
KW - Ehealth
KW - Hispanic
KW - Intervention
UR - http://www.scopus.com/inward/record.url?scp=85070382159&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85070382159&partnerID=8YFLogxK
U2 - 10.1353/cpr.2019.0046
DO - 10.1353/cpr.2019.0046
M3 - Article
C2 - 31378743
AN - SCOPUS:85070382159
SN - 1557-0541
VL - 13
SP - 131
EP - 136
JO - Progress in Community Health Partnerships: Research, Education, and Action
JF - Progress in Community Health Partnerships: Research, Education, and Action
IS - Special Issue 2019
ER -
