Comparing health information sharing preferences of cancer patients, doctors, and navigators

Maia Jacobs, James Clawson, Elizabeth D. Mynatt

Research output: Chapter in Book/Report/Conference proceedingConference contribution

30 Scopus citations

Abstract

As technologies such as personal health records and symptom trackers become more common, we are seeing an increase in patients actively engaging in health tracking behaviors. Patient collected data can provide valuable insight for healthcare providers, particularly in the area of breast cancer. Thus far, little work has examined whether the health information that patients are willing to track and share aligns with the information needs of healthcare providers. Our work provides a comparison between the health information sharing preferences of breast cancer patients, doctors and navigators. We identify discrepancies between stakeholders' preferences, such as patients' hesitation to share feelings of loneliness, signifying where technology can play an important role in helping patients prioritize the health information shared with providers. We present design implications from this work to guide the development of future health information sharing tools that consider the differing needs of healthcare stakeholders.

Original languageEnglish (US)
Title of host publicationCSCW 2015 - Proceedings of the 2015 ACM International Conference on Computer-Supported Cooperative Work and Social Computing
PublisherAssociation for Computing Machinery, Inc
Pages808-818
Number of pages11
ISBN (Electronic)9781450329224
DOIs
StatePublished - Feb 28 2015
Externally publishedYes
Event18th ACM International Conference on Computer-Supported Cooperative Work and Social Computing, CSCW 2015 - BC, Canada
Duration: Mar 14 2015Mar 18 2015

Publication series

NameCSCW 2015 - Proceedings of the 2015 ACM International Conference on Computer-Supported Cooperative Work and Social Computing

Other

Other18th ACM International Conference on Computer-Supported Cooperative Work and Social Computing, CSCW 2015
CountryCanada
CityBC
Period3/14/153/18/15

Keywords

  • Cancer Care
  • Cancer Navigation
  • Health Tracking
  • Physician-Patient Communication

ASJC Scopus subject areas

  • Computer Networks and Communications

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