@article{0a688ee0204e448eafa740ad15154590,
title = "Consensus statement: Palliative and supportive care in advanced heart failure",
abstract = "Background A consensus conference was convened to define the current state and important gaps in knowledge and needed research on {"}Palliative and Supportive Care in Advanced Heart Failure.{"} Evidence Evidence was drawn from expert opinion and from extensive review of the medical literature, evidence-based guidelines, and reviews. Conclusions The conference identified gaps in current knowledge, practice, and research relating to prognostication, symptom management, and supportive care for advanced heart failure (HF). Specific conclusions include: (1) although supportive care should be integrated throughout treatment of patients with advanced HF, data are needed to understand how to best decrease physical and psychosocial burdens of advanced HF and to meet patient and family needs; (2) prognostication in advanced HF is difficult and data are needed to understand which patients will benefit from which interventions and how best to counsel patients with advanced HF; (3) research is needed to identify which interventions improve quality of life and best achieve the outcomes desired by patients and family members; (4) care should be coordinated between sites of care, and barriers to evidence-based practice must be addressed programmatically; and (5) more research is needed to identify the content and technique of communicating prognosis and treatment options with patients with advanced HF; physicians caring for patients with advanced HF must develop skills to better integrate the patient's preferences into the goals of care.",
keywords = "advanced heart failure, palliative care",
author = "Goodlin, {Sarah J.} and Hauptman, {Paul J.} and Robert Arnold and Kathleen Grady and Hershberger, {Ray E.} and Jean Kutner and Frederick Masoudi and John Spertus and Kathleen Dracup and Cleary, {James F.} and Ruth Medak and Kathy Crispell and Ileana Pi{\~n}a and Brad Stuart and Christy Whitney and Thomas Rector and Joan Teno and Renlund, {Dale G.}",
note = "Funding Information: The authors wish to thank Jill Rhead, MA, for her assistance with medical illustration. Conference attendees: Recommendations for participants came from the American Heart Association, the American College of Cardiology, the Heart Failure Society of America, the American Academy of Hospice and Palliative Medicine, the National Hospice Work Group, the National Hospice and Palliative Care Organization, the Hospice and Palliative Nurses Association, the National Institute on Nursing Research, the National Heart Lung and Blood Institute, and the National Institute on Aging. Robert Arnold, MD University of Pittsburgh Medical School Section of Palliative Care and Medical Ethics Pittsburgh, Pennsylvania Ira Byock, MD Promoting Excellence in End of Life Care Missoula, Montana Jane E. Castle, PhD, RN School of Nursing University of Alabama at Birmingham Birmingham, Alabama James F. Cleary, MB, BS, FRACP University of Wisconsin Palliative Care Service Madison, Wisconsin Tom Cloward, MD Pulmonary and Critical Care Medicine LDS Hospital Salt Lake City, Utah Kathy Crispell, MD Section of Cardiology Portland VAMC Portland, Oregon Dale W. Dahl, MD Sierra Health Plans Las Vegas, Nevada Patricia Davidson RN, PhD Cardiology Department St. George Hospital Kogarah, Australia Kathleen Dracup, RN, FNP, DNSc, FAAN UCSF School of Nursing San Francisco, California Sarah Goodlin, MD Institute for Health Care Delivery and Research, Intermountain Health Care Salt Lake City, Utah Kathleen Grady, PhD, RN Rush Heart Failure and Cardiac Transplant Program Rush Presbyterian–St. Luke's Medical Center Chicago, Illinois Paul J. Hauptman, MD Heart Failure and Transplant Program Saint Louis University Health Sciences Center Saint Louis, Missouri Ray E. Hershberger, MD Heart Failure and Cardiac Transplantation Oregon Health Sciences University Portland, Oregon Susan D. Horn, PhD Senior Scientist Institute for Clinical Outcomes Research Salt Lake City, Utah Edward Kasper, MD, FACC Cardiomyopathy & Heart Transplant Services Johns Hopkins Hospital Baltimore, Maryland Jean Kutner, MD, MSPH Division of General Internal Medicine University of Colorado Health Sciences Center Denver, Colorado James Long, MD, PhD Utah Artificial Heart Program LDS Hospital Salt Lake City, Utah Frederick A. Masoudi, MD, MSPH Division of Cardiology, MC 0960 Denver Health Medical Center Denver, Colorado Ruth Medak, MD Oregon Medical Peer Review Organization Portland, Oregon Dierdre Nauman, BSN, RN Oregon Health Sciences University Portland, Oregon Karl Nelson, MBA, RN Utah Artificial Heart Program Salt Lake City, Utah Ileana L. Pi{\~n}a, MD Division of Cardiology University Hospitals of Cleveland Cleveland, Ohio Jane Peterson MD, MS Stratis Health Bloomington, Minnesota Thomas Rector Pharm D. PhD UnitedHealth Group Health Care Research and Policy Minnetonka, Minnesota Dale Renlund, MD Heart Failure Prevention & Treatment Program IHC/LDS Hospital Salt Lake City, Utah Monica R. Shah, MD Cardiology Duke University Medical Center Durham, North Carolina Diane Smith, MD Hope Hospice & Palliative Care Fort Myers, Florida Brad Stuart, MD Sutter VNA & Hospice Emeryville, California John Spertus, MD Mid-America Heart Institute Kansas City, Missouri Joan M. Teno, MD Center for Gerontology and Health Care Research Brown University Medical School Providence, Rhode Island Rodney Tucker, MD UAB Center for Palliative Medicine Birmingham, Alabama Christy Whitney, RN, MSHospice and Palliative Care of Western Colorado Grand Junction, Colorado ",
year = "2004",
month = jun,
doi = "10.1016/j.cardfail.2003.09.006",
language = "English (US)",
volume = "10",
pages = "200--209",
journal = "Journal of Cardiac Failure",
issn = "1071-9164",
publisher = "Churchill Livingstone",
number = "3",
}