Coping with the disfigurement of scleroderma: Facial, skin, and hand changes

Shadi Gholizadeh; Rina S. Fox; Sarah D. Mills; Lisa R. Jewett; Brett D. Thombs; Vanessa L. Malcarne

doi:10.1007/978-3-319-31407-5_56

Coping with the disfigurement of scleroderma: Facial, skin, and hand changes

Shadi Gholizadeh, Rina S. Fox, Sarah D. Mills, Lisa R. Jewett, Brett D. Thombs^*, Vanessa L. Malcarne

^*Corresponding author for this work

Medical Social Sciences

Research output: Chapter in Book/Report/Conference proceeding › Chapter

6 Scopus citations

Abstract

Changes in appearance are a common and distressing aspect of scleroderma. Disfigurement in scleroderma often occurs in areas of the body that are both visible and socially relevant (e.g., face, hands), which can contribute to increased social anxiety and avoidance. A case study is provided to share examples of common concerns and challenges associated with treating patients with scleroderma who are experiencing body image distress; social, self-esteem, mood, and sexual impacts of body image distress are also discussed.The presence of significant body image is not always associated with severity of appearance changes, and open communication around changes in appearance is important. Referrals to mental health professionals should be initiated as appropriate.

Original language	English (US)
Title of host publication	Scleroderma
Subtitle of host publication	From Pathogenesis to Comprehensive Management
Publisher	Springer International Publishing
Pages	713-721
Number of pages	9
ISBN (Electronic)	9783319314075
ISBN (Print)	9783319314051
DOIs	https://doi.org/10.1007/978-3-319-31407-5_56
State	Published - Jan 1 2016

Keywords

Appearance changes
Body image
Disfigurement
Distress
Interventions
Quality of life

ASJC Scopus subject areas

General Medicine

UN SDGs

This output contributes to the following UN Sustainable Development Goals (SDGs)

Access to Document

10.1007/978-3-319-31407-5_56

Cite this

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abstract = "Changes in appearance are a common and distressing aspect of scleroderma. Disfigurement in scleroderma often occurs in areas of the body that are both visible and socially relevant (e.g., face, hands), which can contribute to increased social anxiety and avoidance. A case study is provided to share examples of common concerns and challenges associated with treating patients with scleroderma who are experiencing body image distress; social, self-esteem, mood, and sexual impacts of body image distress are also discussed.The presence of significant body image is not always associated with severity of appearance changes, and open communication around changes in appearance is important. Referrals to mental health professionals should be initiated as appropriate.",

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AU - Fox, Rina S.

AU - Mills, Sarah D.

AU - Jewett, Lisa R.

AU - Thombs, Brett D.

AU - Malcarne, Vanessa L.

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AB - Changes in appearance are a common and distressing aspect of scleroderma. Disfigurement in scleroderma often occurs in areas of the body that are both visible and socially relevant (e.g., face, hands), which can contribute to increased social anxiety and avoidance. A case study is provided to share examples of common concerns and challenges associated with treating patients with scleroderma who are experiencing body image distress; social, self-esteem, mood, and sexual impacts of body image distress are also discussed.The presence of significant body image is not always associated with severity of appearance changes, and open communication around changes in appearance is important. Referrals to mental health professionals should be initiated as appropriate.

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KW - Distress

KW - Interventions

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Coping with the disfigurement of scleroderma: Facial, skin, and hand changes

Abstract

Keywords

ASJC Scopus subject areas

UN SDGs

Access to Document

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