TY - JOUR
T1 - Creating the Trans Youth Research Network
T2 - A Collaborative Research Endeavor
AU - Olson-Kennedy, Johanna
AU - Chan, Yee Ming
AU - Rosenthal, Stephen
AU - Hidalgo, Marco A.
AU - Chen, DIane
AU - Clark, Leslie
AU - Ehrensaft, DIane
AU - Tishelman, Amy
AU - Garofalo, Robert
N1 - Funding Information:
Research reported in this publication was supported by the Eunice Kennedy Shriver National Institute of Child Health & Human Development of the National Institutes of Health under Award Number R01HD082554.
Funding Information:
CBPR = community-based participatory research DISC = Diagnostic Interview Schedule for Children GIGDQAA = Gender Identity/Gender Dysphoria Questionnaire for Adolescents and Adults GnRHa = gonadotropin releasing hormone analogs IOM = Institute of Medicine NIH = National Institutes of Health PI = principal investigator TGD = transgender and gender-diverse TYC = Trans Youth Care UGDS = Utrecht Gender Dysphoria Scale
Publisher Copyright:
© Johanna Olson-Kennedy et al. 2019; Published by Mary Ann Liebert, Inc. 2019.
PY - 2019/11/1
Y1 - 2019/11/1
N2 - Purpose: This article outlines the process of establishing the Trans Youth Care Research Network, composed of four academic clinics providing care for transgender and gender-diverse (TGD) youth. The Network was formed to design and implement research studies to better understand physiologic and psychosocial outcomes of gender-affirming medical care among TGD youth. Methods: Formed in response to both the Institute of Medicine's report recommendation for an increase of data concerning sexual and gender minority populations and a transgender-specific NIH program announcement, The Center for Transyouth Health and Development at Children's Hospital Los Angeles, the Gender Management Service at Boston Children's Hospital, the Child and Adolescent Gender Center Clinic at Benioff Children's Hospital in San Francisco, and the Gender and Sex Development Program at Lurie Children's Hospital of Chicago established a collaborative research network that subsequently designed a longitudinal observational study of TGD youth undergoing medical interventions to address gender dysphoria. Results: Two cohorts, youth starting puberty blockers and youth starting gender-affirming hormones, are participating. Psychosocial measures that span multiple domains of mental and behavioral health are collected from youth and parents. Physiologic data are abstracted from patient's charts. Baseline and follow-up data of this large cohort will be disseminated through conferences, abstracts, posters, and articles. Conclusion: Since initiation of funding in 2015, a total of 497 participants have been enrolled in TYC across the four sites; gonadotropin releasing hormone analogs (GnRHa) cohort youth (n=93), GnRHa cohort parents (n=93), and gender affirming hormone cohort youth (n=311). As the network moves toward data dissemination, its lessons learned have helped strengthen the current study, as well as inform future endeavors in this field.
AB - Purpose: This article outlines the process of establishing the Trans Youth Care Research Network, composed of four academic clinics providing care for transgender and gender-diverse (TGD) youth. The Network was formed to design and implement research studies to better understand physiologic and psychosocial outcomes of gender-affirming medical care among TGD youth. Methods: Formed in response to both the Institute of Medicine's report recommendation for an increase of data concerning sexual and gender minority populations and a transgender-specific NIH program announcement, The Center for Transyouth Health and Development at Children's Hospital Los Angeles, the Gender Management Service at Boston Children's Hospital, the Child and Adolescent Gender Center Clinic at Benioff Children's Hospital in San Francisco, and the Gender and Sex Development Program at Lurie Children's Hospital of Chicago established a collaborative research network that subsequently designed a longitudinal observational study of TGD youth undergoing medical interventions to address gender dysphoria. Results: Two cohorts, youth starting puberty blockers and youth starting gender-affirming hormones, are participating. Psychosocial measures that span multiple domains of mental and behavioral health are collected from youth and parents. Physiologic data are abstracted from patient's charts. Baseline and follow-up data of this large cohort will be disseminated through conferences, abstracts, posters, and articles. Conclusion: Since initiation of funding in 2015, a total of 497 participants have been enrolled in TYC across the four sites; gonadotropin releasing hormone analogs (GnRHa) cohort youth (n=93), GnRHa cohort parents (n=93), and gender affirming hormone cohort youth (n=311). As the network moves toward data dissemination, its lessons learned have helped strengthen the current study, as well as inform future endeavors in this field.
KW - Trans Youth Network
KW - gender affirming hormones
KW - mental health of transgender youth
KW - puberty suppression
KW - transgender youth
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U2 - 10.1089/trgh.2019.0024
DO - 10.1089/trgh.2019.0024
M3 - Article
C2 - 31701011
AN - SCOPUS:85074668506
SN - 2380-193X
VL - 4
SP - 304
EP - 312
JO - Transgender Health
JF - Transgender Health
IS - 1
ER -