Cultural competency of a mobile, customized patient education tool for improving potential kidney transplant recipients’ knowledge and decision-making

David A. Axelrod*, Crystal S. Kynard-Amerson, David Wojciechowski, Marie Jacobs, Krista L. Lentine, Mark Schnitzler, John D. Peipert, Amy D. Waterman

*Corresponding author for this work

Research output: Contribution to journalArticle

2 Citations (Scopus)

Abstract

Patients considering renal transplantation face an increasingly complex array of choices as a result of the revised kidney transplant allocation system. Decision aids have been shown to improve patient decision-making through the provision of detailed, relevant, individualized clinical data. A mobile iOS-based application (app) including animated patient education and individualized risk-adjusted outcomes following kidney transplants with varying donor characteristics and DSA waiting times was piloted in two large US transplant programs with a diverse group of renal transplant candidates (N = 81). The majority (86%) of patients felt that the app improved their knowledge and was culturally appropriate for their race/ethnicity (67%-85%). Patients scored significantly higher on transplant knowledge testing (9.1/20 to 13.8/20, P <.001) after viewing the app, including patients with low health literacy (8.0 to 13.0, P <.001). Overall knowledge of and interest in living and deceased donor kidney transplantation increased. This pilot project confirmed the benefit and cultural acceptability of this educational tool, and further refinement will explore how to better communicate the risks and benefits of nonstandard donors.

Original languageEnglish (US)
Article numbere12944
JournalClinical Transplantation
Volume31
Issue number5
DOIs
StatePublished - May 1 2017

Fingerprint

Cultural Competency
Patient Education
Decision Making
Transplants
Kidney
Kidney Transplantation
Tissue Donors
Health Literacy
Decision Support Techniques
Living Donors
Transplant Recipients

Keywords

  • EPTS
  • KPDI
  • kidney transplant
  • living donor
  • outcomes research
  • patient education

ASJC Scopus subject areas

  • Transplantation

Cite this

Axelrod, D. A., Kynard-Amerson, C. S., Wojciechowski, D., Jacobs, M., Lentine, K. L., Schnitzler, M., ... Waterman, A. D. (2017). Cultural competency of a mobile, customized patient education tool for improving potential kidney transplant recipients’ knowledge and decision-making. Clinical Transplantation, 31(5), [e12944]. https://doi.org/10.1111/ctr.12944
Axelrod, David A. ; Kynard-Amerson, Crystal S. ; Wojciechowski, David ; Jacobs, Marie ; Lentine, Krista L. ; Schnitzler, Mark ; Peipert, John D. ; Waterman, Amy D. / Cultural competency of a mobile, customized patient education tool for improving potential kidney transplant recipients’ knowledge and decision-making. In: Clinical Transplantation. 2017 ; Vol. 31, No. 5.
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Cultural competency of a mobile, customized patient education tool for improving potential kidney transplant recipients’ knowledge and decision-making. / Axelrod, David A.; Kynard-Amerson, Crystal S.; Wojciechowski, David; Jacobs, Marie; Lentine, Krista L.; Schnitzler, Mark; Peipert, John D.; Waterman, Amy D.

In: Clinical Transplantation, Vol. 31, No. 5, e12944, 01.05.2017.

Research output: Contribution to journalArticle

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