TY - JOUR
T1 - Cultural considerations for autonomy and medical adherence in a young Palestinian American Muslim female with Spina Bifida
T2 - A longitudinal case study in a research context
AU - Ohanian, Diana M.
AU - Stiles-Shields, Colleen
AU - Afzal, Khalid I.
AU - Bechtel Driscoll, Colleen F.
AU - Papadakis, Jaclyn Lennon
AU - Stern, Alexa
AU - Starnes, Meredith
AU - Holmbeck, Grayson N.
PY - 2018/12
Y1 - 2018/12
N2 - This case study examines the unique presentation of a young Palestinian American Muslim female who is a part of an ongoing longitudinal study examining family and peer relationships, psychological adjustment, and neuropsychological functioning in youth with spina bifida. Throughout 10 years of data collection, Palestinian-Arab culture and Islamic faith have consistently emerged as important factors that can be considered when interpreting this participant's general level of autonomy, medical autonomy, medical adherence, and psychological adjustment. This case study examines important aspects of adaptive and independent functioning for youth with spina bifida and how this family's culture interacts with these different domains of functioning. In order to fully capture this family's distinct lived experience, this case study reviews both quantitative data and qualitative data, highlighting the importance of considering context when performing clinical research. Moreover, it explores potential conflicts between an Arab collectivist family structure and Western biomedical ethics and suggests how clinicians might navigate these conflicts and bolster culturally rooted strengths of families and patients from non-Western backgrounds.
AB - This case study examines the unique presentation of a young Palestinian American Muslim female who is a part of an ongoing longitudinal study examining family and peer relationships, psychological adjustment, and neuropsychological functioning in youth with spina bifida. Throughout 10 years of data collection, Palestinian-Arab culture and Islamic faith have consistently emerged as important factors that can be considered when interpreting this participant's general level of autonomy, medical autonomy, medical adherence, and psychological adjustment. This case study examines important aspects of adaptive and independent functioning for youth with spina bifida and how this family's culture interacts with these different domains of functioning. In order to fully capture this family's distinct lived experience, this case study reviews both quantitative data and qualitative data, highlighting the importance of considering context when performing clinical research. Moreover, it explores potential conflicts between an Arab collectivist family structure and Western biomedical ethics and suggests how clinicians might navigate these conflicts and bolster culturally rooted strengths of families and patients from non-Western backgrounds.
KW - Adherence
KW - Case study
KW - Culture
KW - Self-management
KW - Spina bifida
UR - http://www.scopus.com/inward/record.url?scp=85058179269&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85058179269&partnerID=8YFLogxK
U2 - 10.1037/cpp0000250
DO - 10.1037/cpp0000250
M3 - Article
C2 - 31231602
AN - SCOPUS:85058179269
VL - 6
SP - 386
EP - 397
JO - Clinical Practice in Pediatric Psychology
JF - Clinical Practice in Pediatric Psychology
SN - 2169-4826
IS - 4
ER -