Developing a measure of health-related quality of life for women with cervical dysplasia resulting from human papillomavirus infection

D. Rao*, N. Gela, E. M. Daley, R. Kattezham, G. Rodriguez, D. Cella

*Corresponding author for this work

Research output: Contribution to journalArticlepeer-review

14 Scopus citations

Abstract

Human papillomavirus (HPV) infection is the most common sexually transmitted infection in the USA, and has major physical and psychological consequences including fear, anxiety and stigma. To date, there is no measure of health-related quality of life specifically designed to assess symptoms and functioning for people with cervical dysplasia resulting from HPV infection. In the present study, we set out to develop a disease-specific measure of health-related quality of life among women with low-grade cervical dysplasia. We conducted literature reviews, open-ended interviews with patients, clinician surveys and cognitive interviews which guided item development. The result is a preliminary 36-item measure, the Functional Assessment of Chronic Illness Therapy - Cervical Dysplasia (FACIT-CD), which sets out to assess the physical and psychological health-related quality-of-life aspects of cervical dysplasia and will be validated in an upcoming study.

Original languageEnglish (US)
Pages (from-to)697-701
Number of pages5
JournalInternational Journal of STD and AIDS
Volume21
Issue number10
DOIs
StatePublished - Oct 2010

Funding

The authors would like to thank Anna Giuliano and Gustavo Rodriguez for their assistance with this project. We are also grateful for the time and efforts of the women who were interviewed for this study. This study was funded by Takeda Pharmaceuticals North America. The first author's time in writing this manuscript was supported by a career development award (K23 MH 084551).

Keywords

  • Cervical dysplasia
  • HIV
  • Health-related quality of life
  • Measurement

ASJC Scopus subject areas

  • Dermatology
  • Public Health, Environmental and Occupational Health
  • Pharmacology (medical)
  • Infectious Diseases

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