Development and Calibration of the TBI-QOL Ability to Participate in Social Roles and Activities and TBI-QOL Satisfaction With Social Roles and Activities Item Banks and Short Forms

Allen W. Heinemann, Pamela A. Kisala, Aaron J. Boulton, Mark Sherer, Angelle M. Sander, Nancy Chiaravalloti, Tamara Bushnik, Robin Hanks, Elliot Roth, David S. Tulsky*

*Corresponding author for this work

Research output: Contribution to journalArticle

1 Citation (Scopus)

Abstract

Objective: To develop traumatic brain injury (TBI)-optimized versions of the Quality of Life in Neurological Disorders (Neuro-QoL) Ability to Participate in Social Roles and Activities and Satisfaction with Social Roles and Activities item banks, evaluate the psychometric properties of the item banks developed for adults with TBI, develop short form and computer adaptive test (CAT) versions, and report information to facilitate research and clinical applications. Design: We used a mixed methods design to develop and evaluate Ability to Participate in Social Roles and Activities and Satisfaction with Social Roles and Activities items. Focus groups defined the constructs, cognitive interviews guided item revisions, and confirmatory factor analysis and item response theory methods helped calibrate item banks and evaluate differential item functioning related to demographic and injury characteristics. Setting: Five TBI Model Systems centers in the United States. Participants: Community-dwelling adults with TBI (N=556). Interventions: None. Outcome Measures: Traumatic Brain Injury–Quality of Life (TBI-QOL) Ability to Participate in Social Roles and Activities and TBI-QOL Satisfaction with Social Roles and Activities item banks. Results: Forty-five Ability to Participate in Social Roles and Activities and 41 Satisfaction with Social Roles and Activities items demonstrated good psychometric properties. Although some of the items are new, most were drawn from analogous banks in the Neuro-QoL measurement system. Consequently, the 2 TBI-QOL item banks were linked to the Neuro-QoL metric, and scores are comparable with the general population. All CAT and short forms correlated highly (>0.90) with the full item banks and demonstrate comparable construct coverage and measurement error. Conclusion: The TBI-QOL Ability to Participate in Social Roles and Activities and TBI-QOL Satisfaction with Social Roles and Activities item banks are TBI-optimized versions of the Neuro-QoL Ability to Participate in Social Roles and Activities and Satisfaction with Social Roles and Activities item banks and demonstrate excellent measurement properties in individuals with TBI. These measures, particularly in CAT or short form format, are suitable for efficient and precise measurement of social outcomes in clinical and research applications.

Original languageEnglish (US)
Pages (from-to)20-32
Number of pages13
JournalArchives of physical medicine and rehabilitation
Volume101
Issue number1
DOIs
StatePublished - Jan 2020

Fingerprint

Aptitude
Calibration
Psychometrics
Traumatic Brain Injury
Independent Living
Nervous System Diseases
Focus Groups
Research
Statistical Factor Analysis
Quality of Life
Demography
Outcome Assessment (Health Care)
Interviews

Keywords

  • Brain injuries, traumatic
  • Patient reported outcome measures
  • Psychometrics
  • Quality of life
  • Rehabilitation
  • Social participation

ASJC Scopus subject areas

  • Physical Therapy, Sports Therapy and Rehabilitation
  • Rehabilitation

Cite this

Heinemann, Allen W. ; Kisala, Pamela A. ; Boulton, Aaron J. ; Sherer, Mark ; Sander, Angelle M. ; Chiaravalloti, Nancy ; Bushnik, Tamara ; Hanks, Robin ; Roth, Elliot ; Tulsky, David S. / Development and Calibration of the TBI-QOL Ability to Participate in Social Roles and Activities and TBI-QOL Satisfaction With Social Roles and Activities Item Banks and Short Forms. In: Archives of physical medicine and rehabilitation. 2020 ; Vol. 101, No. 1. pp. 20-32.
@article{79224ef519d54fe0ba2c20d4391deca7,
title = "Development and Calibration of the TBI-QOL Ability to Participate in Social Roles and Activities and TBI-QOL Satisfaction With Social Roles and Activities Item Banks and Short Forms",
abstract = "Objective: To develop traumatic brain injury (TBI)-optimized versions of the Quality of Life in Neurological Disorders (Neuro-QoL) Ability to Participate in Social Roles and Activities and Satisfaction with Social Roles and Activities item banks, evaluate the psychometric properties of the item banks developed for adults with TBI, develop short form and computer adaptive test (CAT) versions, and report information to facilitate research and clinical applications. Design: We used a mixed methods design to develop and evaluate Ability to Participate in Social Roles and Activities and Satisfaction with Social Roles and Activities items. Focus groups defined the constructs, cognitive interviews guided item revisions, and confirmatory factor analysis and item response theory methods helped calibrate item banks and evaluate differential item functioning related to demographic and injury characteristics. Setting: Five TBI Model Systems centers in the United States. Participants: Community-dwelling adults with TBI (N=556). Interventions: None. Outcome Measures: Traumatic Brain Injury–Quality of Life (TBI-QOL) Ability to Participate in Social Roles and Activities and TBI-QOL Satisfaction with Social Roles and Activities item banks. Results: Forty-five Ability to Participate in Social Roles and Activities and 41 Satisfaction with Social Roles and Activities items demonstrated good psychometric properties. Although some of the items are new, most were drawn from analogous banks in the Neuro-QoL measurement system. Consequently, the 2 TBI-QOL item banks were linked to the Neuro-QoL metric, and scores are comparable with the general population. All CAT and short forms correlated highly (>0.90) with the full item banks and demonstrate comparable construct coverage and measurement error. Conclusion: The TBI-QOL Ability to Participate in Social Roles and Activities and TBI-QOL Satisfaction with Social Roles and Activities item banks are TBI-optimized versions of the Neuro-QoL Ability to Participate in Social Roles and Activities and Satisfaction with Social Roles and Activities item banks and demonstrate excellent measurement properties in individuals with TBI. These measures, particularly in CAT or short form format, are suitable for efficient and precise measurement of social outcomes in clinical and research applications.",
keywords = "Brain injuries, traumatic, Patient reported outcome measures, Psychometrics, Quality of life, Rehabilitation, Social participation",
author = "Heinemann, {Allen W.} and Kisala, {Pamela A.} and Boulton, {Aaron J.} and Mark Sherer and Sander, {Angelle M.} and Nancy Chiaravalloti and Tamara Bushnik and Robin Hanks and Elliot Roth and Tulsky, {David S.}",
year = "2020",
month = "1",
doi = "10.1016/j.apmr.2019.07.015",
language = "English (US)",
volume = "101",
pages = "20--32",
journal = "Archives of Physical Medicine and Rehabilitation",
issn = "0003-9993",
publisher = "W.B. Saunders Ltd",
number = "1",

}

Development and Calibration of the TBI-QOL Ability to Participate in Social Roles and Activities and TBI-QOL Satisfaction With Social Roles and Activities Item Banks and Short Forms. / Heinemann, Allen W.; Kisala, Pamela A.; Boulton, Aaron J.; Sherer, Mark; Sander, Angelle M.; Chiaravalloti, Nancy; Bushnik, Tamara; Hanks, Robin; Roth, Elliot; Tulsky, David S.

In: Archives of physical medicine and rehabilitation, Vol. 101, No. 1, 01.2020, p. 20-32.

Research output: Contribution to journalArticle

TY - JOUR

T1 - Development and Calibration of the TBI-QOL Ability to Participate in Social Roles and Activities and TBI-QOL Satisfaction With Social Roles and Activities Item Banks and Short Forms

AU - Heinemann, Allen W.

AU - Kisala, Pamela A.

AU - Boulton, Aaron J.

AU - Sherer, Mark

AU - Sander, Angelle M.

AU - Chiaravalloti, Nancy

AU - Bushnik, Tamara

AU - Hanks, Robin

AU - Roth, Elliot

AU - Tulsky, David S.

PY - 2020/1

Y1 - 2020/1

N2 - Objective: To develop traumatic brain injury (TBI)-optimized versions of the Quality of Life in Neurological Disorders (Neuro-QoL) Ability to Participate in Social Roles and Activities and Satisfaction with Social Roles and Activities item banks, evaluate the psychometric properties of the item banks developed for adults with TBI, develop short form and computer adaptive test (CAT) versions, and report information to facilitate research and clinical applications. Design: We used a mixed methods design to develop and evaluate Ability to Participate in Social Roles and Activities and Satisfaction with Social Roles and Activities items. Focus groups defined the constructs, cognitive interviews guided item revisions, and confirmatory factor analysis and item response theory methods helped calibrate item banks and evaluate differential item functioning related to demographic and injury characteristics. Setting: Five TBI Model Systems centers in the United States. Participants: Community-dwelling adults with TBI (N=556). Interventions: None. Outcome Measures: Traumatic Brain Injury–Quality of Life (TBI-QOL) Ability to Participate in Social Roles and Activities and TBI-QOL Satisfaction with Social Roles and Activities item banks. Results: Forty-five Ability to Participate in Social Roles and Activities and 41 Satisfaction with Social Roles and Activities items demonstrated good psychometric properties. Although some of the items are new, most were drawn from analogous banks in the Neuro-QoL measurement system. Consequently, the 2 TBI-QOL item banks were linked to the Neuro-QoL metric, and scores are comparable with the general population. All CAT and short forms correlated highly (>0.90) with the full item banks and demonstrate comparable construct coverage and measurement error. Conclusion: The TBI-QOL Ability to Participate in Social Roles and Activities and TBI-QOL Satisfaction with Social Roles and Activities item banks are TBI-optimized versions of the Neuro-QoL Ability to Participate in Social Roles and Activities and Satisfaction with Social Roles and Activities item banks and demonstrate excellent measurement properties in individuals with TBI. These measures, particularly in CAT or short form format, are suitable for efficient and precise measurement of social outcomes in clinical and research applications.

AB - Objective: To develop traumatic brain injury (TBI)-optimized versions of the Quality of Life in Neurological Disorders (Neuro-QoL) Ability to Participate in Social Roles and Activities and Satisfaction with Social Roles and Activities item banks, evaluate the psychometric properties of the item banks developed for adults with TBI, develop short form and computer adaptive test (CAT) versions, and report information to facilitate research and clinical applications. Design: We used a mixed methods design to develop and evaluate Ability to Participate in Social Roles and Activities and Satisfaction with Social Roles and Activities items. Focus groups defined the constructs, cognitive interviews guided item revisions, and confirmatory factor analysis and item response theory methods helped calibrate item banks and evaluate differential item functioning related to demographic and injury characteristics. Setting: Five TBI Model Systems centers in the United States. Participants: Community-dwelling adults with TBI (N=556). Interventions: None. Outcome Measures: Traumatic Brain Injury–Quality of Life (TBI-QOL) Ability to Participate in Social Roles and Activities and TBI-QOL Satisfaction with Social Roles and Activities item banks. Results: Forty-five Ability to Participate in Social Roles and Activities and 41 Satisfaction with Social Roles and Activities items demonstrated good psychometric properties. Although some of the items are new, most were drawn from analogous banks in the Neuro-QoL measurement system. Consequently, the 2 TBI-QOL item banks were linked to the Neuro-QoL metric, and scores are comparable with the general population. All CAT and short forms correlated highly (>0.90) with the full item banks and demonstrate comparable construct coverage and measurement error. Conclusion: The TBI-QOL Ability to Participate in Social Roles and Activities and TBI-QOL Satisfaction with Social Roles and Activities item banks are TBI-optimized versions of the Neuro-QoL Ability to Participate in Social Roles and Activities and Satisfaction with Social Roles and Activities item banks and demonstrate excellent measurement properties in individuals with TBI. These measures, particularly in CAT or short form format, are suitable for efficient and precise measurement of social outcomes in clinical and research applications.

KW - Brain injuries, traumatic

KW - Patient reported outcome measures

KW - Psychometrics

KW - Quality of life

KW - Rehabilitation

KW - Social participation

UR - http://www.scopus.com/inward/record.url?scp=85074410490&partnerID=8YFLogxK

UR - http://www.scopus.com/inward/citedby.url?scp=85074410490&partnerID=8YFLogxK

U2 - 10.1016/j.apmr.2019.07.015

DO - 10.1016/j.apmr.2019.07.015

M3 - Article

C2 - 31473208

AN - SCOPUS:85074410490

VL - 101

SP - 20

EP - 32

JO - Archives of Physical Medicine and Rehabilitation

JF - Archives of Physical Medicine and Rehabilitation

SN - 0003-9993

IS - 1

ER -